scholarly journals Improving care and treatment options for women and girls with bleeding disorders

2015 ◽  
Vol 95 ◽  
pp. 2-10 ◽  
Author(s):  
Roshni Kulkarni
2019 ◽  
Vol 22 ◽  
pp. S850
Author(s):  
O. Dabbous ◽  
V. Taieb ◽  
E. Abdennadher ◽  
M. Bouchemi ◽  
J. Chorąży ◽  
...  

2019 ◽  
Vol 405 ◽  
pp. 36
Author(s):  
O. Dabbous ◽  
V. Taieb ◽  
E. Abdennadher ◽  
M. Bouchemi ◽  
J. Chorąży ◽  
...  

2019 ◽  
pp. 127-140
Author(s):  
Dov Fox

Procreation is confounded when clinical professionals misdiagnose, misrepresent, or switch reproductive cells or entities. These errors lead patients to initiate, continue, or terminate pregnancies in ways that thwart their efforts to have a child of one kind or another: How serious is that reproductive injury? Do its benefits outweigh its harms? What are the chances of it manifesting within certain windows of time and at varying levels of severity? How likely is it that misconduct is what caused procreation to be confounded? Is some other factor responsible in addition or instead? To what extent was genetic randomness or diagnostic uncertainty to blame? The seriousness of that harm depends on its foreseeable impact on people’s lives—injury severity is an objective inquiry that begins by asking what kind of child the plaintiffs wanted and why. The variable expression of medical conditions or other targeted traits ratchets up the guesswork to forecast how a defendant’s negligence that thwarted their prenatal selection can be expected to affect the plaintiff. But all this uncertainty needn’t keep courts from assessing how serious confounded procreation is in particular cases: Just because any such determination is bound to admit of some arbitrariness doesn’t mean injury severity can’t be worked out in a principled and systematic way. For health conditions, relevant factors include foreseeable implications for offspring lifespan, impairment, medical care, and treatment options. Courts should reduce dollar awards by however much confounded procreation can be expected to simultaneously benefit plaintiffs, depending on its associated reasons and repercussions.


Haemophilia ◽  
2021 ◽  
Author(s):  
Karin van Galen ◽  
Michelle Lavin ◽  
Naja Skouw‐Rasmussen ◽  
Kathelijn Fischer ◽  
Declan Noone ◽  
...  

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Ana Toledo-Chávarri ◽  
Vanesa Ramos-García ◽  
Alezandra Torres-Castaño ◽  
María M Trujillo-Martín ◽  
Wenceslao Peñate Castro ◽  
...  

Abstract Background Generalized anxiety disorder (GAD) is one of the most common mental disorders in primary care (PC). GAD has low remission and high relapse rates over long follow-up periods. Qualitative evidence was synthesized to understand the implementation of care and treatment options for people with GAD in PC. Methods Research published from 2008 to September 2020 was searched in five databases (MEDLINE, EMBASE, CINAHL, WOS and PsycArticles). Studies that used qualitative methods for data collection and analysis to investigate the implementation of care and treatment options for people with GAD in PC and outpatient settings were included. Non-qualitative studies, mixed methods studies that did not separately report qualitative findings and studies in languages other than English or Spanish were excluded. We used the Confidence in the Evidence from Reviews of Qualitative Research (CERQual) framework to assess the overall confidence in the findings. Results The results with a moderate level of confidence showed that the trajectory of care for people with GAD in PC and outpatient settings is long and fluctuates over time, involving multiple difficulties in accessing and maintaining initial treatment or successive treatment options. In addition, there are wide variations in the preferences for and acceptability of different treatment options. The results with a high level of confidence indicated that more information on GAD and its treatment options is needed for PC practitioners, GAD patients and their carers. The results with a low level of confidence suggested that patients use antidepressants for longer than recommended and that the interruption of treatment is not usually planned. Conclusions Initial resistance to new treatments among people with GAD can make access and adherence to treatment difficult. Improving care may require patients to be informed of possible trajectories in stepped care pathways before the initiation of treatment so they are aware that they may need to try a number of options until the most effective treatment for them is found. Increased awareness of and information materials on GAD may facilitate both appropriate diagnosis and long-term care.


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