In-house information about and contact with self-help groups in breast cancer patients: associated with patient and hospital characteristics?

本研究旨在了解内地乳腺癌患者的情感体验特徵，进而探索乳腺癌患者在自助组织获得的情感支持。研究发现，乳腺癌患者的情感体验特徵表现为：对死亡的种种不确定所产生的恐惧和沮丧；对婚姻解体的焦虑和无助；女性角色的负重和内疚等等。患者在自助组织中感受到的情感支持，在分享、情感讨论和互助方面均有较好的情感支持功效。 This study aims to understand Chinese breast cancer patients' emotions and the emotional support they receive from self-help groups. The findings showed various responses, such as fear and depression of the uncertainty of death; helplessness towards the eventual parting with spouse; feeling of guilt resulting from inability to meet traditional female role expectations and others. The emotional support that the patients received in the self-help groups through sharing and discussion showed a positive turn.

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Reasons why breast cancer patients leave online self-help groups

Cancer Nursing Practice ◽

10.7748/cnp.7.4.30.s16 ◽

2008 ◽

Vol 7 (4) ◽

pp. 30-31

Keyword(s):

Breast Cancer ◽

Cancer Patients ◽

Breast Cancer Patients ◽

Self Help ◽

Self Help Groups

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Persepsi Pasien Dan Suami Tentang Pengaruh Mastektomi Terhadap Citra Tubuh dan Fungsi Seksual

Jurnal Keperawatan Indonesia ◽

10.7454/jki.v6i2.119 ◽

2014 ◽

Vol 6 (2) ◽

pp. 50-60

Author(s):

Achir Yani S. Hamid ◽

Agung Waluyo ◽

Mustikasari Mustikasari

Keyword(s):

Breast Cancer ◽

Body Image ◽

Cancer Patients ◽

Sexual Functioning ◽

Social Stigma ◽

Breast Cancer Patients ◽

Open Communication ◽

Self Help ◽

Financial Burdens

Penelitian ini bertujuan untuk menggali secara mendalam persepsi isteri dan persepsi suami tentang pengaruh mastektomi terhadap citra tubuh dan fungsi seksual. Penelitian ini menggunakan rancangan deskriptif eksploratif (descriptive explorative design) dengan metode riset kualitatif. Lima pasien kanker payudara yang menjalani mastektomi dan suaminya diwawancara mulai dari satu minggu sebelum mastektomi hingga sebulan setelah mastektomi. Temuan penelitian ini adalah: 1) persepsi istri dan persepsi suami tentang pengaruh mastektomi terhadap citra tubuh dan fungsi seksual dalam perkawinan memberikan gambaran fenomena yang tidak terpisah tetapi merupakan interaksi dari berbagai faktor; 2) terdapat perbedaan persepsi istri dan persepsi suami terhadap citra tubuh dan fungsi seksual, istri merasa suami tidak tertarik pada penampilannya, sedangkan suami merasa takut menyakiti isterinya jika berhubungan seksual; 3) pengaruh mastektomi terhadap citra tubuh sudah dipersepsikan pasien bahkan sejak sebelum mastektomi dilakukan; 4) upaya mencari dukungan sudah dilakukan sejak sebelum mastektomi, meliputi dukungan spiritual, dukungan social, dan dukungan professional; 5) tem alai yang muncul yaitu beban lain psikologik, stigma social, dan financial yang dipersepsikan oleh pasangan; 6) besarnya pengaruh mastektomi terhadapa citra tubuh dan fungsi seksual dalam perkawinan ditentukan oleh kualitas hubungan perkawinan khususnya komunikasi. Rekomendasi: 1) mengembangkan program pelatihan Bimbingan Antisipatif bagi perawat; 2) memfasilitasi komunikasi yang lebih terbuka antara pasien dan suaminya; 3) mengembangkan program self help group yang terdiri dari pasien dan suaminya; 4) menyediakan informasi tentang sumber bantuan yang tersedia di fasilitas kesehatan maupun masyarakat; 5) mempertahankan kesinambungan asuhan keperawatan; dan 6) melakukan penelitian lanjutan menggunakan pendekatan antropologis dan sosiologis. The purpose of the study was to explore the perception of breast cancer patients and their husband on the influence of mastectomy towards body image and sexual functioning. A descriptive explorative design with qualitative method of research was used. Five selected breast cancer patients and their husbands meeting criteria were interviewed from the first week after diagnose until one month after mastectomy. The findings were: 1) the influence of mastectomy on body image and sexual functioning as perceived by wives and their revealed the contributions of multi factors and dimensions; 2) there were different perceptions between the patients and their husband on the influence of mastectomy towards body image and sexual functioning, patients felt their husband were not attracted to them anymore while their husbands were afraid to hurt the patients if they had sexual relationship; 3) the influence of the mastectomy on body image had been perceived by the patients even before the mastectomy; 4) both patients and husbands had seeking for spiritual, social and professional supports before mastectomy; 5) other theme revealed were: psychological, social stigma, and financial burdens; 6) the extent of mastectomy had influence body image and sexual functioning was determined by the quality of marriage, particularly the openness of communication. Recommendations were: 1) to develop anticipatory guidance training program for nurse; 2) facilitate open communication between patients and their husband; 3) to develop self group program for patients and their husbands; 4) to provide information on resource available in the community; 5) to sustains continuity of care for patients and family; 6) to conduct further research using anthropological and social approaches.

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Hospital characteristics and breast cancer patients’ evaluation of care.

Journal of Clinical Oncology ◽

10.1200/jco.2013.31.15_suppl.e17550 ◽

2013 ◽

Vol 31 (15_suppl) ◽

pp. e17550-e17550

Author(s):

Holger Pfaff ◽

Christoph Kowalski ◽

Lena Ansmann ◽

Julia Ingendahl

Keyword(s):

Breast Cancer ◽

Cancer Patients ◽

Large Body ◽

Patient Characteristics ◽

Teaching Hospitals ◽

Breast Cancer Patients ◽

Cross Sectional Survey ◽

Oncological Patient ◽

Breast Center ◽

Hospital Characteristics

e17550 Background: There is a large body of research on patient evaluations of care and its associations with patient characteristics, such as the sociodemographics or the severity of diseases. A number of studies have recently been published that consider the characteristics of various hospitals in order to explain the differences in patient evaluations between hospitals in non-oncological patient populations. This study investigates the relationship between13 dimensions of satisfaction and breast center hospital characteristics which account for the patient case mix. Methods: The cross-sectional survey data of 3,601 newly-diagnosed breast cancer patients (response rate: 88% of consenting patients) who were treated in 85 out of 91 breast center hospitals in the German state of North Rhine-Westphalia in 2010 were combined with structural data from a key informant survey from the same hospitals. Multilevel linear regression models were calculated in order to investigate patients’ evaluations of the care differences between hospitals and their associations with hospital characteristics (i.e. teaching status, volume, network size, clinical studies, case manager employed) accounting for patient characteristics (self-rated health, mother language, insurance status, age, education, cancer stage, type of surgery). Results: Patients evaluated non-teaching hospitals as being statistically significantly better in 8 out of 13 satisfaction dimensions. None of the other hospital characteristics were significantly associated with any of the satisfaction dimensions. Overall, the differences between hospitals were small to moderate, with null model ICCs ranging from 0.02 to 0.09 for the different dimensions. Conclusions: Teaching breast cancer hospitals face substantial difficulties in achieving patient evaluations that are as good as those from non-teaching hospitals in Germany. The question of extra staffing for the additional teaching tasks needs to be discussed.

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