scholarly journals Identification and description of environmental factors that influence participation of children with cerebral palsy

2007 ◽  
Vol 46 (5) ◽  
pp. 299-304 ◽  
Author(s):  
Svetozar I Mihaylov ◽  
Stephen N Jarvis ◽  
Allan F Colver ◽  
Bryony Beresford
Author(s):  
Carmel Sivaratnam ◽  
Katherine Howells ◽  
Nicole Stefanac ◽  
Kelly Reynolds ◽  
Nicole Rinehart

The current study aimed to qualitatively explore parent and clinician perspectives on the factors influencing participation in a community-based Australian-Rules Football program for five to 12-year-old children with cerebral palsy (CP) in a regional setting. Six allied-health clinicians and two parents of children with CP participated in focus groups exploring factors influencing participation. Thematic analysis indicated seven key factors influencing participation—of which, six were environmental factors and one was related to child characteristics. Environmental factors included resources, communication, knowledge and previous experience, attitudes and expectations, game factors and community relevance. Child characteristics included age, preferences, confidence, as well and cognitive and physical functioning. Notwithstanding limitations, the current study highlights the central role of ‘people factors’ in the child’s environment, in facilitating participation in community-based physical activity.


2021 ◽  
Vol 21 (4) ◽  
pp. 422-435
Author(s):  
Masoud Gharib ◽  
◽  
Masoud Shayesteh Azar ◽  
Roshanak Vameghi ◽  
Seyed Ali Hosseini ◽  
...  

Objective: Cerebral palsy Spastic Diplegia (CPSD) is the most common motor disability in childhood. It is a neurodevelopmental condition beginning early in life and continues throughout life. In addition to mobility problems, the environment can also affect the CPSD children’s social participation. This study aims to investigate the relationship of environmental factors with the social participation of children with CPSD. Materials & Methods: This cross-sectional study was conducted on 116 parents of children with CPSD referred to the occupational therapy clinics in Tehran, Mazandaran, and Alborz provinces of Iran in 2018-2019. They were recruited using a convenience sampling method. Parents completed the European Child Environment Questionnaire (ECEQ) and the life habit questionnaire to assess their perception of the environmental factors and their children’s participation, respectively. The Gross Motor Function Classification System-Expanded and Revised (GMFCS-E&R) was initially used to classify the gross motor function (walking ability) of the children with cerebral palsy living in Europe (The SPARCLE project). We used it to estimate cognitive levels in children. The Pearson correlation coefficient and linear regression of SPSS version 22 were used to analyze the results. Results: Based on the GMFCS-E&R classification, 23.3% of children were at level I, 27.6% at level II, 31.9% at level III, and 17.2% at level IV. Moreover, 89.7% of the children had an IQ>75, and 85.3% had no seizures. All domains and sub-domains of ECEQ had significantly correlated with social participation (P<0.01), where the physical environment had the highest correlation (r=-0.811, P<0.01). Based on the linear regression model, physical environment (β=-0.475, P<0.01) and attitudinal environment (β=-0.285, P<0.05) were the predictors of social participation (adjusted R2=0.71). Conclusion: Physical and attitudinal environments are predictors of social participation in children with CPSD. Environmental modifications and adaptations at home, community, school, and especially transportation system can increase the social participation of these children.


2018 ◽  
pp. 29-40
Author(s):  
Mahyar Salavati ◽  
Roshanak Vameghi ◽  
Seyed Ali Hosseini ◽  
Ahmad Saeedi ◽  
Masoud Gharib

2021 ◽  
pp. 030802262110087
Author(s):  
Amin Rezaei ◽  
Parvin Raji ◽  
Seyedeh Tahmineh Mousavi ◽  
Mahmoud Mahmoodian ◽  
Ahmad Reza Baghestani

Introduction Identification of environmental barriers is an important factor for improving quality of life. The aim was to investigate the relationship between environmental factors and quality of life of children with cerebral palsy and to prioritize environmental factors affecting the quality of life. Method In this cross-sectional study, participants were children with cerebral palsy ( n = 67) 8–12 years. The European Child Environment Questionnaire and cerebral palsy quality of life questionnaire were used. In order to prioritize environmental codes, each of the items in the European Child Environment Questionnaire was linked to environmental codes of the cerebral palsy ICF Core Set. Data were analyzed using SPSS and Pearson correlation and regression tests. Results There was a significant negative relationship between quality of life and environmental barriers ( p < 0.05, r = −0.36). The European Child Environment Questionnaire covered 75% of the environmental codes of cerebral palsy ICF Core Set. Also, e5 (services, systems and policies) was identified as the main priority of environmental factors affecting the quality of life. Conclusion Occupational Therapists should devote part of the interventional plan to reduce environmental barriers. On the other hand, decision-making organizations have to make supportive laws to improve the physical environment of the home, community, school, and work.


2010 ◽  
Vol 19 (1) ◽  
pp. 12-20 ◽  
Author(s):  
Guro Andersen ◽  
Tone R. Mjøen ◽  
Torstein Vik

Abstract This study describes the prevalence of speech problems and the use of augmentative and alternative communication (AAC) in children with cerebral palsy (CP) in Norway. Information on the communicative abilities of 564 children with CP born 1996–2003, recorded in the Norwegian CP Registry, was collected. A total of 270 children (48%) had normal speech, 90 (16%) had slightly indistinct speech, 52 (9%) had indistinct speech, 35 (6%) had very indistinct speech, 110 children (19%) had no speech, and 7 (1%) were unknown. Speech problems were most common in children with dyskinetic CP (92 %), in children with the most severe gross motor function impairments and among children being totally dependent on assistance in feeding or tube-fed children. A higher proportion of children born at term had speech problems when compared with children born before 32 weeks of gestational age 32 (p > 0.001). Among the 197 children with speech problems only, 106 (54%) used AAC in some form. Approximately 20% of children had no verbal speech, whereas ~15% had significant speech problems. Among children with either significant speech problems or no speech, only 54% used AAC in any form.


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