scholarly journals Parent and Clinician Perspectives on the Participation of Children with Cerebral Palsy in Community-Based Football: A Qualitative Exploration in a Regional Setting

2020 ◽  
Vol 17 (3) ◽  
pp. 1102
Author(s):  
Carmel Sivaratnam ◽  
Katherine Howells ◽  
Nicole Stefanac ◽  
Kelly Reynolds ◽  
Nicole Rinehart
Keyword(s):  
Cerebral Palsy ◽  
Environmental Factors ◽  
Community Based ◽  
Child Characteristics ◽  
Regional Setting ◽  
Factors Influencing ◽  
Australian Rules Football ◽  
Children With Cerebral Palsy ◽  
Clinician Perspectives ◽  
Qualitative Exploration

The current study aimed to qualitatively explore parent and clinician perspectives on the factors influencing participation in a community-based Australian-Rules Football program for five to 12-year-old children with cerebral palsy (CP) in a regional setting. Six allied-health clinicians and two parents of children with CP participated in focus groups exploring factors influencing participation. Thematic analysis indicated seven key factors influencing participation—of which, six were environmental factors and one was related to child characteristics. Environmental factors included resources, communication, knowledge and previous experience, attitudes and expectations, game factors and community relevance. Child characteristics included age, preferences, confidence, as well and cognitive and physical functioning. Notwithstanding limitations, the current study highlights the central role of ‘people factors’ in the child’s environment, in facilitating participation in community-based physical activity.

scholarly journals Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community-based training in Ghana

2018 ◽  
Vol 7 (1) ◽  
pp. 35-43 ◽  
Author(s):  
Claudia Mary Donkor ◽  
Jackie Lee ◽  
Natasha Lelijveld ◽  
Melanie Adams ◽  
Marjolein Meande Baltussen ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Qualitative Study ◽  
Nutritional Status ◽  
Community Based ◽  
Children With Cerebral Palsy ◽  
Caregiver Experiences ◽  
Nutritional Status Of Children

scholarly journals Supporting Ultra Poor People with Rehabilitation and Therapy among families of children with Cerebral Palsy in rural Bangladesh (SUPPORT CP): Protocol of a randomised controlled trial

PLoS ONE ◽  
2021 ◽  
Vol 16 (12) ◽  
pp. e0261148
Author(s):  
Mahmudul Hassan Al Imam ◽  
Israt Jahan ◽  
Mohammad Muhit ◽  
Manik Chandra Das ◽  
Rosalie Power ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Early Intervention ◽  
Randomised Controlled Trial ◽  
Controlled Trial ◽  
Community Based ◽  
Rural Bangladesh ◽  
Community Based Rehabilitation ◽  
Poor Families ◽  
Children With Cerebral Palsy ◽  
Randomised Controlled

Introduction Poverty is a key contributor to delayed diagnosis and limited access to early intervention and rehabilitation for children with cerebral palsy (CP) in rural Bangladesh. 97% of families of children with CP live below the poverty line in Bangladesh. Therefore, in low-and middle-income countries (LMICs), efforts to improve outcomes for children with CP (including health-related quality of life, motor function, communication, and nutritional attainments) should also include measures to improve family economic and social capital. We propose a randomised controlled trial (RCT) to evaluate the effectiveness of an integrated microfinance/livelihood and community-based rehabilitation (IMCBR) program for ultra-poor families of children with CP in rural Bangladesh. Material and methods This will be a cluster RCT comparing three arms: (a) integrated microfinance/livelihood and community-based rehabilitation (IMCBR); (b) community-based rehabilitation (CBR) alone; and (c) care-as-usual (i.e. no intervention). Seven clusters will be recruited within each arm. Each cluster will consist of 10 child-caregiver dyads totalling 21 clusters with 210 dyads. Parents recruited in the IMCBR arm will take part in a microfinance/livelihood program and Parent Training Module (PTM), their children with CP will take part in a Goal Directed Training (GDT) program. The programs will be facilitated by specially trained Community Rehabilitation Officers. The CBR arm includes the same PTM and GDT interventions excluding the microfinance/livelihood program. The care-as-usual arm will be provided with information about early intervention and rehabilitation. The assessors will be blinded to group allocation. The duration of the intervention will be 12 months; outcomes will be measured at baseline, 6 months, 12 months, and 18 months. Conclusion This will be the first RCT of an integrated microfinance/livelihood and CBR program for children with CP in LMIC settings. Evidence from the study could transform approaches to improving wellbeing of children with CP and their ultra-poor families.

scholarly journals Outcome of Community-Based Early Intervention and Rehabilitation for Children with Cerebral Palsy in Rural Bangladesh: A Quasi-Experimental Study

2021 ◽  
Vol 11 (9) ◽  
pp. 1189
Author(s):  
Tasneem Karim ◽  
Mohammad Muhit ◽  
Israt Jahan ◽  
Claire Galea ◽  
Catherine Morgan ◽  
...  
Keyword(s):  
Experimental Study ◽  
Cerebral Palsy ◽  
Early Intervention ◽  
Intervention Program ◽  
Community Based ◽  
Children With Cerebral Palsy ◽  
Functional Measure ◽  
Quasi Experimental ◽  
Group A ◽  
Group B

We evaluated the outcome of a community-based early intervention and habilitation for children with cerebral palsy (CP) in Bangladesh. Children registered on the Bangladesh CP Register (BCPR) were recruited in two groups for this study: Group A received a comprehensive six-month long community-based caregiver-led intervention program at the “Shishu Shorgo” (Bengali title, which translates to ‘Children’s Heaven’) Early Intervention and Rehabilitation Centres developed to support participants from the BCPR. Group B received standard care. A quasi-experimental study was conducted. Data were obtained at baseline, at the end of the program (i.e., 6 months), and at a 12-month follow-up. Outcome measures for children included gross motor functional measure (GMFM-66), Communication Function Classification System (CFCS), and Viking Speech Scale (VSS) and, for adult caregivers, the depression, anxiety, and stress scale (DASS 21). Between October 2016 and March 2017, 156 children with CP were recruited (77 in Group A and 79 in Group B). The total score of GMFM-66, CFCS level, and VSS level significantly improved statistically in Group A (p < 0.05 for all) and deteriorated in Group B (p < 0.001, p = 0.095, p = 0.232). The intervention showed promising outcomes particularly for children with CP under five years of age. There is a need for caregiver-led community-based programs for children with CP in LMICs.

scholarly journals Evaluating the impact of a community-based parent training programme for children with cerebral palsy in Ghana

PLoS ONE ◽  
2018 ◽  
Vol 13 (9) ◽  
pp. e0202096 ◽  
Author(s):  
Maria Zuurmond ◽  
David O’Banion ◽  
Melissa Gladstone ◽  
Sandra Carsamar ◽  
Marko Kerac ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Parent Training ◽  
Training Programme ◽  
Community Based ◽  
Children With Cerebral Palsy ◽  
The Impact
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