Study of environmental factors and quality of life in children with cerebral palsy based on international classification of functioning, disability and health

2021 ◽  
pp. 030802262110087
Author(s):  
Amin Rezaei ◽  
Parvin Raji ◽  
Seyedeh Tahmineh Mousavi ◽  
Mahmoud Mahmoodian ◽  
Ahmad Reza Baghestani

Introduction Identification of environmental barriers is an important factor for improving quality of life. The aim was to investigate the relationship between environmental factors and quality of life of children with cerebral palsy and to prioritize environmental factors affecting the quality of life. Method In this cross-sectional study, participants were children with cerebral palsy ( n = 67) 8–12 years. The European Child Environment Questionnaire and cerebral palsy quality of life questionnaire were used. In order to prioritize environmental codes, each of the items in the European Child Environment Questionnaire was linked to environmental codes of the cerebral palsy ICF Core Set. Data were analyzed using SPSS and Pearson correlation and regression tests. Results There was a significant negative relationship between quality of life and environmental barriers ( p < 0.05, r = −0.36). The European Child Environment Questionnaire covered 75% of the environmental codes of cerebral palsy ICF Core Set. Also, e5 (services, systems and policies) was identified as the main priority of environmental factors affecting the quality of life. Conclusion Occupational Therapists should devote part of the interventional plan to reduce environmental barriers. On the other hand, decision-making organizations have to make supportive laws to improve the physical environment of the home, community, school, and work.

2021 ◽  
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  

2008 ◽  
Vol 50 (3) ◽  
pp. 199-203 ◽  
Author(s):  
A Shelly ◽  
E Davis ◽  
E Waters ◽  
A Mackinnon ◽  
D Reddihough ◽  
...  

Toxins ◽  
2022 ◽  
Vol 14 (1) ◽  
pp. 43
Author(s):  
Christian Wong ◽  
Ian Westphall ◽  
Josephine Sandahl Michelsen

Sixty-seven percent of children with cerebral palsy (CCP) experience pain. Pain is closely interrelated to diminished quality of life. Despite this, pain is an overlooked and undertreated clinical problem. The objective of this study was to examine the analgesic effect of a single lower extremity intramuscular injection of Abobotulinum toxin A/Dysport in CCP. Twenty-five CCP with at least moderate pain (r-FLACC ≥ 4) during passive range of motion were included. Localized pain and pain in everyday living were measured by r-FLACC and the Paediatric Pain Profile (PPP), respectively. Functional improvements were evaluated by the goal attainment scale (SMART GAS). Quality of life was evaluated by either the CPCHILD or the CP-QOL. The subjects were evaluated at baseline before injection, then after 4, 12, and 28 weeks. Twenty-two subjects had a significant mean and maximum localized pain reduction (p < 0.001) at four weeks post-treatment in 96% (21/22). The reduction was maintained at 12 (19/19) and 28 weeks (12/15). Daily pain evaluated by the PPP was significantly reduced and functional SMART GAS goals were significantly achieved from 4 to 28 weeks. Quality of life improved significantly at four weeks (CPCHILD). Significant functional gains and localized and daily pain reduction were seen from 4 to 28 weeks.


2019 ◽  
Vol 8 (4) ◽  
pp. 58-73
Author(s):  
A. Pevneva

In studies of psychological problems of mothers bringing up children with cerebral palsy, the least explored is the problem of the quality of life. The knowledge of the structural and dynamic characteristics of the quality of life may give an answer to a number of methodological and theoretical issues on the change in the quality of life over time, its structural hierarchy and organization, structure sustainability/unsustainability and core elements. The aim of present study was to identify the dynamics of the quality of life of the mother of a child with cerebral palsy. 66 mothers raising a child with cerebral palsy have been surveyed; 48 respondents participated in a repeated measurement. The outcome of the study is the proof that the quality of life is not stable, it depends on the situation and is reproduced in the context of the situation. The dynamics of the quality of life of the mother of a child with cerebral palsy is characterized by difference in indicators of all structural components with the tendency to change positively, constancy of dominant position of physical functioning, structural transformation of the organization, its flexibility, as well as change of the structural core element.


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