Positive aspects of care in informal caregivers of community‐dwelling dementia patients

2019 ◽  
Vol 27 (4) ◽  
pp. 330-341 ◽  
Author(s):  
Oscar Ribeiro ◽  
Daniela Brandão ◽  
Ana F. Oliveira ◽  
Laetitia Teixeira ◽  
Constança Paúl
Keyword(s):  
Informal Caregivers ◽  
Community Dwelling ◽  
Dementia Patients ◽  
Positive Aspects Of Care

scholarly journals Implementation of an innovative web-based conference table for community-dwelling frail older people, their informal caregivers and professionals: a process evaluation

2012 ◽  
Vol 12 (1) ◽  
Author(s):  
Sarah HM Robben ◽  
Marieke Perry ◽  
Mirjam Huisjes ◽  
Leontien van Nieuwenhuijzen ◽  
Henk J Schers ◽  
...  
Keyword(s):  
Older People ◽  
Process Evaluation ◽  
Informal Caregivers ◽  
Community Dwelling ◽  
Frail Older People ◽  
Web Based

scholarly journals The project “understAID” – a platform that helps informal caregivers to understand and aid their demented relatives

2014 ◽  
Vol 83 (2) ◽  
pp. 182-188
Author(s):  
Elżbieta Skorupska ◽  
Ewa Mojs ◽  
Włodzimierz Samborski ◽  
José C. Millán-Calenti ◽  
Ana Maseda ◽  
...  
Keyword(s):  
Social Learning ◽  
Case Studies ◽  
System Integration ◽  
Informal Caregivers ◽  
Real Case ◽  
International Project ◽  
Formal Caregivers ◽  
Dementia Patients ◽  
The Social

“UnderstAID” is a platform that helps informal caregivers to understand and aid their demented relatives. It is an international project initiated by Denmark, Poland and Spain.The aim of the project is to design, and implement the multimedia platform “understAID” to support informal caregivers of dementia patients. The project was launched in April 2013 and is expected to end 36 months later. The project is divided into five tasks concerning the final aim. The aim of task 1 is the management of the project, as well as the exploitation and dissemination of gathered information. Task 2 is meant to define the contents and solutions of the CarePlatform based on the knowledge gained from real-case studies. Demented elderlies from each country (n = 40) suffering from different degrees of dementia were evaluated by formal caregivers and dementia professionals. The aim of task 3 is the development of the social learning interface. Task 4 focuses on the CarePlatform development and system integration. Finally, task 5 assumes testing and validation of the platform. The platform is devised to be available in two versions, namely the light one for mobile appliance and the premium version. Also different activities leading to the popularization of the platform are planned.

scholarly journals The Informal Caregivers’ Viewpoint About Care Inhibitors for Community-Dwelling Elderly in an Iranian Context: A Qualitative Study

2016 ◽  
Vol 14 (3) ◽  
pp. 185-196
Author(s):  
Samaneh Pourhadi ◽  
Hamid Reza Khankeh ◽  
Reza Fadayevatan ◽  
Robab Sahaf ◽  
◽  
...  
Keyword(s):  
Qualitative Study ◽  
Informal Caregivers ◽  
Community Dwelling ◽  
Iranian Context

Predictors of Societal Costs in Dementia Patients and Their Informal Caregivers: A Two-Year Prospective Cohort Study

2015 ◽  
Vol 23 (11) ◽  
pp. 1193-1203 ◽  
Author(s):  
Karlijn J. Joling ◽  
Jakob Schöpe ◽  
Hein P.J. van Hout ◽  
Harm W.J. van Marwijk ◽  
Henriëtte E. van der Horst ◽  
...  
Keyword(s):  
Cohort Study ◽  
Prospective Cohort Study ◽  
Prospective Cohort ◽  
Informal Caregivers ◽  
Societal Costs ◽  
Dementia Patients

Community-Dwelling Patients With Dementia and Their Informal Caregivers With and Without Case Management: 2-Year Outcomes of a Pragmatic Trial

2015 ◽  
Vol 16 (9) ◽  
pp. 800.e1-800.e8 ◽  
Author(s):  
Janet MacNeil Vroomen ◽  
Judith E. Bosmans ◽  
Peter M. van de Ven ◽  
Karlijn J. Joling ◽  
Lisa D. van Mierlo ◽  
...  
Keyword(s):  
Case Management ◽  
Informal Caregivers ◽  
Pragmatic Trial ◽  
Community Dwelling

scholarly journals EXPLORING TECHNOLOGY-ENABLED ASSESSMENTS OF SYMPTOMS EXPERIENCE BY INFORMAL CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S336-S336
Author(s):  
Daniel J Schulman ◽  
Portia Singh ◽  
Mladen Milosevic ◽  
Ali Samadani
Keyword(s):  
Older Adults ◽  
Symptom Management ◽  
Information Source ◽  
Informal Caregivers ◽  
Smartphone Application ◽  
Relevant Information ◽  
Community Dwelling ◽  
Communication And Coordination ◽  
Community Dwelling Older Adults

Abstract For community-dwelling older adults with chronic conditions, effective symptom management is a determinant of quality of life. Providers often have poor knowledge of an individual’s symptoms experience, especially when contact is infrequent, leading to suboptimal symptom management. Many older adults receive frequent care and contact from family, friends, and other informal caregivers (ICGs). Subjective observation by ICGs is an underexplored information source, but faces barriers including ICG burden and lack of ICG knowledge. It is unclear what relevant information might be collected by ICG observations. We conducted a pilot evaluation of Philips CarePartners Mobile (CPM), a prototype smartphone application that provides communication and coordination support to a “circle” of ICGs assisting an older adult. CPM includes features enabling ICGs to share semi-structured observations. 19 caregivers (in 8 circles) used CPM for 12 weeks, contributing 397 observations and participating in interviews and other assessments. We performed a qualitative analysis of the observations, coding for presence of content relevant to dimensions in the UCSF Symptom Management Theory (perception of, evaluation of, and response to symptoms). Relevant content was found in 150 observations, with perception and assessment more common (141) than response (32). Common symptoms included mobility difficulty (31), fatigue (23), dizziness (21), pain (19), and confusion (18). Among observations without symptom-relevant content, many reported on overall mood (92), and reference to social activities was frequent. These results demonstrate that symptoms experience can be assessed using caregiver observations, although further work may be needed to enable caregivers to provide a comprehensive assessment.

Prolonged grief in caregivers of community-dwelling dementia patients

2014 ◽  
Vol 30 (2) ◽  
pp. 192-200 ◽  
Author(s):  
Serena Passoni ◽  
Alessio Toraldo ◽  
Barbara Villa ◽  
Gabriella Bottini
Keyword(s):  
Community Dwelling ◽  
Prolonged Grief ◽  
Dementia Patients

End-of-life care research in Hong Kong: A systematic review of peer-reviewed publications

2015 ◽  
Vol 13 (6) ◽  
pp. 1711-1720 ◽  
Author(s):  
Chong-Wen Wang ◽  
Cecilia L.W. Chan
Keyword(s):  
Systematic Review ◽  
Hong Kong ◽  
End Of Life ◽  
Informal Caregivers ◽  
Physical Symptoms ◽  
Community Dwelling ◽  
Care Staff ◽  
Care Research ◽  
Research Themes ◽  
Eol Care

ABSTRACTObjective:This systematic review aimed to examine end-of-life (EoL) care research undertaken in an Eastern cultural context—Hong Kong—with the hope of better informing EoL care professionals and policy makers and providing lessons for other countries or areas that share similar EoL care challenges.Method:Eight databases were searched from their respective inception through to August of 2014. All of the resulting studies conducted in Hong Kong and relevant to EoL care or palliative care were examined. The included studies were assessed with respect to study design, care settings, participants, research themes, and major findings.Results:Some 107 publications published between 1991 and 2014 were identified. These studies were undertaken at a range of places by different professionals. Of the total, 44 were led by physicians, 36 by nurses, 17 by social workers, and 10 by other professionals. Participants included both inpatients and outpatients with different illnesses, nursing home residents, older community-dwelling adults, deceased individuals, care staff, and informal caregivers. A total of 13 research themes were identified: (1) attitudes to or perceptions of death and dying; (2) utilization of healthcare services, (3) physical symptoms or medical problems; (4) death anxiety or mental health issues; (5) quality of life; (6) advance directives or advance care planning; (7) supportive care needs, (8) decision making; (9) spirituality; (10) cost-effectiveness or utility studies; (11) care professionals' education and training; (12) informal caregivers' perceptions and experience; and (13) scale development or validation.Significance of results:While there has been a wide and diverse range of research activities in Hong Kong, EoL care services at primary care settings should be strengthened. Some priority areas for further research are recommended.

scholarly journals LONGITUDINAL CHARACTERISTICS OF INFORMAL CAREGIVERS OF COMMUNITY-DWELLING PERSONS WITH DEMENTIA

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S450-S450
Author(s):  
Eric Jutkowitz ◽  
Joseph E Gaugler ◽  
Amal Trivedi ◽  
Lauren L Mitchell ◽  
Pedro L Gozalo
Keyword(s):  
Nursing Home ◽  
Adult Children ◽  
Functional Limitations ◽  
Informal Caregivers ◽  
Mixed Effects ◽  
Community Dwelling ◽  
Mixed Effects Models ◽  
Linear Mixed Effects Models ◽  
Linear Mixed Effects ◽  
Retirement Study

Abstract Alzheimer’s disease and related dementias (ADRD) affect >5 million Americans. Persons with ADRD experience functional limitations and often require support from informal caregivers (e.g., help with feeding). Little is known about how caregiving evolves over the full course of the disease. We used data from the Health and Retirement Study to identify incident predicted community-dwelling persons with ADRD (n=565), their informal caregivers, and the total hours of care they received in a month from predicted incidence up to 8-years post incidence. We estimated linear mixed-effects models to determine the characteristics of the person with ADRD that are associated with trajectories of caregiving hours. At predicted incidence, persons with ADRD received 120 hours of care in a month of which spouses provided 30% of care hours, adult children provided 32% of care hours, other relatives provided 12% of care hours, and non-relatives (including paid support) provided 25% of care hours. By 8-years post incidence, persons with ADRD still in the community (n=23) received 303 hours of care in a month of which spouses provided 28% of care hours, adult children provided 41% of care hours, other relatives provided 3% of care hours, and non-relatives provided 28% of care hours. Having great grandchildren and more functional limitations were associated with receiving more hours of informal care. Attrition (mortality and residing in a nursing home) was influenced by hours of care received in the previous interview and resulted in those that remained in the community being persons that required less care.

scholarly journals Dementia Patients Are More Sedentary and Less Physically Active than Age- and Sex-Matched Cognitively Healthy Older Adults

2018 ◽  
Vol 46 (1-2) ◽  
pp. 81-89 ◽  
Author(s):  
Yvonne A.W. Hartman ◽  
Esther G.A. Karssemeijer ◽  
Lisanne A.M. van Diepen ◽  
Marcel G.M. Olde Rikkert ◽  
Dick H.J. Thijssen
Keyword(s):  
Physical Activity ◽  
Sedentary Behaviour ◽  
Sedentary Time ◽  
Physical Activities ◽  
Community Dwelling ◽  
Lower Percentage ◽  
Cross Sectional ◽  
Mortality And Morbidity ◽  
Bout Duration ◽  
Dementia Patients

Aims: The aim of this study was to examine physical activity and sedentary behaviour characteristics of ambulatory and community-dwelling patients with dementia compared to cognitively healthy age-, sex- and weight-matched controls. Methods: In this cross-sectional study, we included community-dwelling dementia patients (n = 45, age 79.6 ± 5.9 years, Mini-Mental State Examination [MMSE] 22.8 ± 3.2) and matched controls (n = 49, age 80.0 ± 7.7 years, MMSE 29.0 ± 1.2). Participants wore a wrist accelerometer for 7 days to assess sedentary time, sedentary bout duration and time spent in very light, light-to-moderate and moderate-to-vigorous physical activities. Results: Relative sedentary time and sedentary bout duration was significantly higher in dementia patients than in controls (median [interquartile range] 57% [49–68] vs. 55% [47–59] and 18.3 [16.4–21.1] min vs. 16.6 [15.3–18.4] min, p = 0.042 and p = 0.008, respectively). In addition, dementia patients spent a lower percentage of their waking time in light-to-moderate and moderate-to-vigorous intensity physical activities (20% [15–23] vs. 22% [18–25] and 5% [2–10] vs. 10% [5–13], p = 0.017 and p = 0.001, respectively). Conclusion: We revealed that dementia patients are more sedentary and perform less physical activity than cognitively healthy controls. This may have clinically important consequences, given the observation that sedentary behaviour and little physical activity independently predict all-cause mortality and morbidity.

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