Giving Voice to Persons With Intellectual Disabilities About Family Quality of Life

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.

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Family quality of life of Chinese families of children with intellectual disabilities

Journal of Intellectual Disability Research ◽

10.1111/j.1365-2788.2011.01391.x ◽

2011 ◽

Vol 56 (1) ◽

pp. 30-44 ◽

Cited By ~ 60

Author(s):

X. Hu ◽

M. Wang ◽

X. Fei

Keyword(s):

Quality Of Life ◽

Intellectual Disabilities ◽

Family Quality Of Life ◽

Chinese Families

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Positive perceptions and perceived control in families with children with intellectual disabilities: relationship to family quality of life

Quality & Quantity ◽

10.1007/s11135-016-0318-1 ◽

2016 ◽

Vol 51 (2) ◽

pp. 903-918 ◽

Cited By ~ 9

Author(s):

Fina Ferrer ◽

Rosa Vilaseca ◽

Joan Guàrdia Olmos

Keyword(s):

Quality Of Life ◽

Intellectual Disabilities ◽

Perceived Control ◽

Family Quality Of Life ◽

Families With Children

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Quality of Life of Parents of Children with Intellectual Disabilities in Croatia

Journal of Educational and Social Research ◽

10.5901/jesr.2017.v7n2p43 ◽

2017 ◽

Vol 7 (2) ◽

pp. 43-48 ◽

Cited By ~ 4

Author(s):

Anja Kovac Misura ◽

Haris Memisevic

Keyword(s):

Quality Of Life ◽

Intellectual Disability ◽

Intellectual Disabilities ◽

Educational Status ◽

Control Group ◽

Family Quality Of Life ◽

Significant Difference ◽

Survey Results ◽

Children With Intellectual Disability

Abstract The goal of the present study was to examine the quality of life (QOL) of parents of children with intellectual disability. An additional goal was to examine the effects of gender and educational status on the QOL of these parents. The sample for this study consisted of 50 parents of children with intellectual disabilities and 50 parents of children without disabilities as a control group. As A measure of QOL, we used Family Quality of Life Survey. Results have shown that there is a statistically significant difference between the perceived QOL of parents of children with intellectual disabilities and parents of typically developing children. The effects of gender and educational status on QOL of parents of children with intellectual disabilities were also statistically significant. However, there were no interaction effects of gender and educational status on the QOL. Given the lower QOL of parents of children with intellectual disability, it is important to provide them with support programs in order to improve their QOL.

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