Letter to Editor Re: Tulu, Cook, Oman, Meek, and Gudina's article, Chronic disease self‐care: A concept analysis (2021)

Nursing Forum ◽  
2022 ◽  
Author(s):  
Davide Ausili ◽  
Ercole Vellone ◽  
Victoria V. Dickson ◽  
Christopher S. Lee ◽  
Barbara Riegel
Nursing Forum ◽  
2021 ◽  
Author(s):  
Seifu N. Tulu ◽  
Paul Cook ◽  
Kathleen S. Oman ◽  
Paula Meek ◽  
Esayas Kebede Gudina

2021 ◽  
Author(s):  
Jawhrah ALQAHTANI ◽  
Ibtesam ALQAHTANI

Abstract Background. Chronic disease care is considered a challenging dilemma for health organizations’ sustainability and patient health. Self-care is key to chronic disease management and is substantially important in all aspects of health and levels of care. In the past years, research regarding self-care in the context of chronic disease has evolved, yet this complex concept continues to be ambiguous and has not been clearly conceptualized in the literature. A discussion of an in-depth concept analysis of self-care in the older adult population with chronic disease and an outline of its defining common attributes, referents, antecedents, consequences, and related concepts.Methods. An extensive review of the literature concerning the concept of self-care in the older adult population with chronic disease was conducted using different databases. Literature from nursing and other disciplines was selected to differentiate this concept from other related concepts. Rodgers’s evolutionary methodology of concept analysis was used to investigate the concept of self-care in detail to better understand its meanings in the context of chronic disease. Results. Multiple definitions of self-care exist, and a consensus definition was not shown to have been achieved across disciplines. The common attributes, referents, antecedents, consequences, and related concepts were identified, and a model case was constructed to clarify the concept of self-care in the context of the older adult population living with chronic disease.Conclusion. This concept analysis provides a theoretical definition of self-care of the older adult population living with chronic disease to offer nurses and others insight into the concept, which will ultimately provide a foundation for further research needed in the areas of clinical practice, policy, and education. Identification of the core of the self-care concept affords professionals and researchers the ability to identify appropriate practice priorities, enhance current practices, and develop theories regarding self-care, leading to improvements in patient care and outcomes.


Author(s):  
Nilmini Wickramasinghe ◽  
Arthur Tatnall ◽  
Steve Goldberg

In an environment of escalating healthcare costs, chronic disease management is particularly challenging, since, by definition such diseases have no foreseeable cure and if poorly managed typically lead to further, complicated secondary health issues, which ultimately only serve to exacerbate cost. Diabetes is one of the leading chronic diseases and its prevalence continues to rise exponentially. Thus it behooves all to focus on solutions that can result in superior management of this disease. Hence, this article presents findings from a longitudinal exploratory case study that examined the application of a pervasive technology solution; a mobile phone, to provide superior diabetes self-care. Notably, the benefits of a pervasive technology solution for supporting superior self-care in the context of chronic disease are made especially apparent when viewed through the rich lens of Actor-Network Theory (ANT) and thus the paper underscores the importance of using ANT in such contexts to facilitate a deeper understanding of all potential advantages.


2001 ◽  
Vol 57 (1) ◽  
pp. 20-25 ◽  
Author(s):  
C. J. Eales ◽  
A. V. Stewart

Self-care and self-efficacy have been discussed in the medical, psychological and sociological literature (Bandura, 1977b; Barofsky, 1978; Hickey, 1988; Mahler and Kulik, 1990; Mahler, 1991). However neither of these two concepts accurately describe the behaviour required of a patient with a chronic disease to ensure the best outcome of medical treatment. The concept of self-responsibility seems to be more appropriate. This article presents the definitions of self-efficacy, self-care and self-responsibility. An argument why self-responsibility is of importance in patients who have undergone bypass surgery will be presented. Coronary artery disease is a chronic disease, for which CABG is indicated only in special cases. The surgical intervention is costly and the operative outcome will not be successful if the patient does not comply with lifestyle and risk factor modification. In a climate where health costs are under scrutiny and attempts are being made to make the available funding accessible to a greater percentage of the population, there is a moral responsibility for patients who have undergone expensive interventions to accept the responsibility for their rehabilitation to ensure the optimal outcome of these interventions.


2014 ◽  
Vol 27 (4) ◽  
pp. 397-420 ◽  
Author(s):  
Cristiano Storni

Purpose – The purpose of this paper is to raise issues about the design of personal health record systems (PHRs) and self-monitoring technology supporting self-care practices of an increasing number of individuals dealing with the management of a chronic disease in everyday life. It discusses the results of an ethnographic study exposing to analysis the intricacies and practicalities of managing diabetes “in the wild”. It then describe and discuss the patient-centric design of a diabetes journaling platform that followed the analysis. Design/methodology/approach – The study includes ethnometodological investigation based on in depth interviews, observations in a support group for adults with type 1 diabetes, home visits, shadowing sessions and semi-structured interviews with a series of medical experts (endocrinologists, general practitioners and diabetes nurses). Findings informed the design of a proof-of-concept PHR called Tag-it-Yourself (TiY): a mobile journaling platform that enables the personalization of self-monitoring practices. The platform is thoroughly described along with an evaluation of its use with real users. Findings – The investigation sheds light on a series of general characters of everyday chronic self-care practices, and how they ask to re-think some of the assumptions and connotations of the current medical model and the traditional sick role of the patient – often unreflectively assumed also in the design of personal technologies (e.g. PHR) to be used by patients in clinically un-controlled settings. In particular, the analysis discusses: the ubiquitous nature of diabetes that is better seen as a lifestyle, the key role of lay expertises and different forms of knowledge developed by the patient in dealing with a disease on a daily basis, and the need of more symmetrical interactions and collaborations with the medical experts. Research limitations/implications – Reported discussions suggest the need of a more holistic view of self-management of chronic disease in everyday life with more attention being paid on the perspective of the affected individuals. Findings have potential implications on the way PHR and systems to support self-management of chronic disease in everyday life are conceived and designed. Practical implications – The paper suggests designers and policy makers to look at chronic disease not as a medical condition to be disciplined by a clinical perspective but rather as a complex life-style where the medical cannot be separated by other aspects of everyday life. Such shift in the perspective might suggest new forms of collaborations, new ways of creative evidence and new form of knowledge creation and validation in chronic self-care. Social implications – The paper suggests re-thinking the role of the patient in chronic-disease self-management. In particular, it suggests giving more room to the patient voice and concerns and suggest how these can enrich rather than complicate the generation of knowledge about self-care practices, at least in type 1 diabetes. Originality/value – The paper sheds light on everyday intricacies and practicalities of dealing with a chronic disease. Studies of self-care practices that shed light on the patient perspectives are sporadic and often assume a clinical perspective, its assumptions (e.g. biomedical knowledge is the only one available to improve health outcome, doctors know best) and implications (e.g. compliance, asymmetry between the specialist and the patient).


2015 ◽  
Vol 63 (2) ◽  
pp. 154-161 ◽  
Author(s):  
Wendy R. Miller ◽  
Sue Lasiter ◽  
Rebecca Bartlett Ellis ◽  
Janice M. Buelow

2009 ◽  
Vol 8 (3) ◽  
pp. 190-199 ◽  
Author(s):  
Sandra Lauck ◽  
Joy L. Johnson ◽  
Pamela A. Ratner

Background: The demand for percutaneous coronary intervention (PCI) exerts constant pressure on health care systems to meet the growing needs of patients. The practice of same-day discharge PCI has emerged as a medically safe option to optimize resource utilization and improve access to care. Aim: The purpose of this study was to describe elective same-day discharge PCI patients' self-care behaviour in the two to five days following their procedure, and the factors associated with cardiac self-efficacy (CSE) and self-care agency (SCA). Methods: Using a cross-sectional correlational design, 98 consecutive patients were contacted by telephone, following PCI, and asked about their CSE, SCA, and adherence to discharge recommendations. Associations between selected variables were explored through multiple regression analysis. Results: The findings revealed a high degree of adherence to discharge recommendations, although participants' appreciation of the long term management of their chronic disease was limited. Factors associated with lower levels of CSE and SCA included the burden of having additional chronic co-morbidities, living alone and lacking social support, and a positive screening for psychosocial distress. Conclusion: Same-day discharge PCI presents a sustainable option for delivery of care for most patients. Some clients may require additional support to manage the transition between acute intervention and chronic disease management.


Sign in / Sign up

Export Citation Format

Share Document