Factors determining diabetes care outcomes in patients with type 1 diabetes after transition from pediatric to adult health care: a systematic review

Purpose The purpose of the study was to evaluate an adult health care program model for emerging adults with type 1 diabetes transitioning from pediatric to adult care. Methods Evaluation of the Pediatric to Adult Diabetes Transition Clinic at the University of Pennsylvania included a cohort of 72 emerging adults with type 1 diabetes, ages 18 to 25 years. Data were extracted from transfer summaries and the electronic medical record, including sociodemographic, clinical, and follow-up characteristics. Pre- and postprogram assessment at 6 months included mean daily blood glucose monitoring frequency (BGMF) and glycemic control (A1C). Paired t tests were used to examine change in outcomes from baseline to 6 months, and multiple linear regression was utilized to adjust outcomes for baseline A1C or BGMF, sex, diabetes duration, race, and insulin regimen. Open-ended survey responses were used to assess acceptability amongst participants. Results From baseline to 6 months, mean A1C decreased by 0.7% (8 mmol/mol), and BGMF increased by 1 check per day. Eighty-eight percent of participants attended ≥2 visits in 6 months, and the program was rated highly by participants and providers (pediatric and adult). Conclusions This study highlights the promise of an adult health care program model for pediatric to adult diabetes transition.

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Experiences and Outcomes of Transition from Pediatric to Adult Health Care Services for Young People with Congenital Heart Disease: A Systematic Review

Congenital Heart Disease ◽

10.1111/chd.12251 ◽

2015 ◽

Vol 10 (5) ◽

pp. 413-427 ◽

Cited By ~ 81

Author(s):

Emily Heery ◽

Aisling M. Sheehan ◽

Alison E. While ◽

Imelda Coyne

Keyword(s):

Systematic Review ◽

Health Care ◽

Congenital Heart Disease ◽

Heart Disease ◽

Young People ◽

Health Care Services ◽

Congenital Heart ◽

Adult Health ◽

Care Services ◽

Adult Health Care

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Development of an eHealth Program for Parents of Adolescents With Type 1 Diabetes

The Diabetes Educator ◽

10.1177/0145721717748606 ◽

2017 ◽

Vol 44 (1) ◽

pp. 72-82 ◽

Cited By ~ 4

Author(s):

Robin Whittemore ◽

Rebekah M. Zincavage ◽

Sarah S. Jaser ◽

Margaret Grey ◽

Julia L. Coleman ◽

...

Keyword(s):

Health Care ◽

Type 1 Diabetes ◽

Health Care Providers ◽

Diabetes Care ◽

Multiple Time ◽

Hormonal Changes ◽

Care Providers ◽

Personal Time ◽

Multiple Time Points

Purpose The purpose of this study was to understand the experience of parenting an adolescent with type 1 diabetes (T1DM), to develop a prototype of an eHealth program for parents of adolescents with T1DM, and to evaluate the prototype content and acceptability from the perspective of parents and health care providers. Methods A multiphase method was used generating both qualitative and quantitative data at multiple time points. There were 27 parents of adolescents aged 12 to 18 years with T1DM and 16 health care providers who participated in semistructured interviews to identify parental challenges; 53 parents and 27 providers evaluated the prototype. Thematic content analysis was used to analyze interview transcripts, and descriptive statistics were used to summarize survey data. Results Challenges experienced by parents of adolescents with T1DM included understanding the developmental and hormonal changes of adolescence that affect diabetes care, feeling tension between adolescent independence and parent control, communicating without nagging or conflict, transferring diabetes care responsibility safely, dealing with feelings of stress and distress, and perceiving a lack of resources for T1DM care and insufficient personal time for self-care. In the prototype evaluation, both parents and providers found content to be relevant and provided feedback to guide the development of the full program. Conclusions Parents of adolescents with T1DM and providers expressed a need for parents to have more support in transitioning diabetes care from parent to adolescent. eHealth programs offer an ideal way to address these needs and ultimately can be linked to electronic medical records improving quality and efficiency of health care in this population.

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Happiness and Hope for Success in T1DM Patients

10.21203/rs.3.rs-957500/v1 ◽

2021 ◽

Author(s):

Katarzyna Cyranka ◽

Domnika Dudek ◽

Bartłomiej Matejko ◽

Piotr Małecki ◽

Maciej T Małecki ◽

...

Keyword(s):

Diabetes Mellitus ◽

Health Care ◽

Type 1 Diabetes ◽

General Population ◽

Young Adulthood ◽

Diabetes Care ◽

Self Esteem ◽

Subjective Happiness ◽

Subjective Happiness Scale

Abstract Happiness and hope are essential parts of human health. One of the main purposes of health care, including diabetes care, are to achieve happiness and a sense of purpose in life. Material and methodDuring educational workshops a short survey concerning the level of happiness and hope for success in the group of Type 1 Diabetes Mellitus (T1DM) patients was carried out. 120 patients anonymously filled in Subjective Happiness Scale (SHS) and a Hope for Success Questionnaire (KNS).Results and conclusionsThe level of subjective happiness in T1DM patients was lower than in general population for both sexes, for all age categories apart from people older than 50, who seem to be happy and satisfied with their life with no differences compared to the general population. In terms of hope for success, T1DM teenagers and adults aged 27-50 did not differ from the general population. T1DM patients older than 50 turned out to have higher hope for success in life that other T1DM patients. Special attention should be paid to patients in young adulthood (18-26), who seem to be the most pessimistic group of T1DM patients, with low self-esteem and low believe in their possibilities.

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