Effectiveness of psychosocial interventions in reducing grief experienced by family carers of people with dementia

2017 ◽  
Vol 15 (3) ◽  
pp. 809-839 ◽  
Author(s):  
Sally Wilson ◽  
Christine Toye ◽  
Samar Aoun ◽  
Susan Slatyer ◽  
Wendy Moyle ◽  
...  
Keyword(s):  
Psychosocial Interventions ◽  
Family Carers ◽  
People With Dementia

Psychosocial Interventions for Family Carers of People With Dementia: A Systematic Review and Meta-Analysis

2020 ◽  
Vol 32 (9) ◽  
pp. 1198-1213 ◽  
Author(s):  
Áine Teahan ◽  
Attracta Lafferty ◽  
Eilish McAuliffe ◽  
Amanda Phelan ◽  
Liam O’Sullivan ◽  
...  
Keyword(s):  
Social Sciences ◽  
Systematic Review ◽  
Positive Impact ◽  
Meta Analysis ◽  
Psychosocial Interventions ◽  
Future Research ◽  
Family Carers ◽  
People With Dementia ◽  
Meta Analyses ◽  
Study Designs

Objective:This study aimed to review and synthesize findings of the effectiveness of psychosocial interventions aimed at improving outcomes for family carers of people with dementia. Method: A systematic review and meta-analysis were conducted according to Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. We systematically searched the following databases: Cochrane, PubMed, Cumulative Index to Nursing and Allied Health Literature (CINAHL), PsycInfo, Excerpta Medica Database (EMBASE), and Applied Social Sciences Index and Abstracts (ASSIA). RevMan 5 software was used to conduct meta-analysis and subgroup analysis using a random-effects model. Results: The search yielded 22 high-quality intervention articles that were suitable for further meta-analysis. Meta-analysis revealed that psychosocial interventions have a small to moderate significant effect on carer burden (standardized mean difference [SMD] = −0.34, confidence interval [CI] = [−0.59, −0.09]), depression (SMD = −0.36, CI = [−0.60, −0.13]), and general health (SMD = 0.34, CI = [0.18, 0.51]). Discussion: Psychosocial interventions had a positive impact on carer outcomes; however, these results should be interpreted with caution, given the significant level of heterogeneity in study designs. Future research could examine contextual and implementation mechanisms underlying psychosocial interventions to develop effective support systems for family carers of people with dementia.

scholarly journals Behavioural and psychological symptoms in dementia and the challenges for family carers: Systematic review

2016 ◽  
Vol 208 (5) ◽  
pp. 429-434 ◽  
Author(s):  
Alexandra Feast ◽  
Martin Orrell ◽  
Georgina Charlesworth ◽  
Nina Melunsky ◽  
Fiona Poland ◽  
...  
Keyword(s):  
Systematic Review ◽  
Social Norms ◽  
Psychological Symptoms ◽  
Psychosocial Interventions ◽  
Family Carers ◽  
High Quality ◽  
People With Dementia ◽  
Behavioural And Psychological Symptoms ◽  
Fundamental Reason ◽  
Support Programmes

BackgroundTailored psychosocial interventions can help families to manage behavioural and psychological symptoms in dementia (BPSD), but carer responses to their relative's behaviours contribute to the success of support programmes.AimsTo understand why some family carers have difficulty in dealing with BPSD, in order to improve the quality of personalised care that is offered.MethodA systematic review and meta-ethnographic synthesis was conducted of high-quality quantitative and qualitative studies between 1980 and 2012.ResultsWe identified 25 high-quality studies and two main reasons for behaviours being reported as challenging by family carers: changes in communication and relationships, resulting in ‘feeling bereft’; and perceptions of transgressions against social norms associated with ‘misunderstandings about behaviour’ in the relative with dementia. The underlying belief that their relative had lost, or would inevitably lose, their identity to dementia was a fundamental reason why family carers experienced behaviour as challenging.ConclusionsFamily carers' perceptions of BPSD as challenging are associated with a sense of a declining relationship, transgressions against social norms and underlying beliefs that people with dementia inevitably lose their ‘personhood’. Interventions for the management of challenging behaviour in family settings should acknowledge unmet psychological need in family carers.

Effectiveness of psychosocial interventions in reducing grief experienced by family carers of people with dementia

2016 ◽  
Vol 14 (6) ◽  
pp. 30-41 ◽  
Author(s):  
Sally Wilson ◽  
Christine Toye ◽  
Samar Aoun ◽  
Susan Slatyer ◽  
Wendy Moyle ◽  
...  
Keyword(s):  
Psychosocial Interventions ◽  
Family Carers ◽  
People With Dementia

scholarly journals “I just keep thinking that I don’t want to rely on people.” a qualitative study of how people living with dementia achieve and maintain independence at home: stakeholder perspectives

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Penny Rapaport ◽  
Alexandra Burton ◽  
Monica Leverton ◽  
Ruminda Herat-Gunaratne ◽  
Jules Beresford-Dent ◽  
...  
Keyword(s):  
Risk Taking ◽  
Qualitative Interviews ◽  
Care Home ◽  
Psychosocial Interventions ◽  
Family Carers ◽  
Community Connectedness ◽  
Stakeholder Perspectives ◽  
People With Dementia ◽  
Health And Social Care ◽  
At Home

Abstract Background Most people living with dementia want to remain in their own homes, supported by family and paid carers. Care at home often breaks down, necessitating transition to a care home and existing interventions are limited. To inform the development of psychosocial interventions to enable people with dementia to live well for longer at home, we qualitatively explored the views of people living with dementia, family carers and health and social care professionals, on how to achieve and maintain independence at home and what impedes this. Methods We conducted an inductive thematic analysis of qualitative interviews with 11 people living with dementia, 19 professionals and 22 family carers in England. Results We identified four overarching themes: being in a safe and familiar environment, enabling not disabling care, maintaining relationships and community connectedness, and getting the right support. For people living with dementia, the realities of staying active were complex: there was a tension between accepting support that enabled independence and a feeling that in doing so they were accepting dependency. Their and professionals’ accounts prioritised autonomy and ‘living well with dementia’, while family carers prioritised avoiding harm. Professionals promoted positive risk-taking and facilitating independence, whereas family carers often felt they were left holding this risk. Discussion Psychosocial interventions must accommodate tensions between positive risk-taking and avoiding harm, facilitating autonomy and providing support. They should be adaptive and collaborative, combining self-management with flexible support. Compassionate implementation of rights-based dementia care must consider the emotional burden for family carers of supporting someone to live positively with risk.

scholarly journals 473 - Post-diagnostic Dyadic Intervention for People with Dementia and their Family Carers

2020 ◽  
Vol 32 (S1) ◽  
pp. 195-195
Author(s):  
Marleen Prins ◽  
Elsemieke van Belzen ◽  
Henriëtte van der Roest
Keyword(s):  
Psychosocial Support ◽  
Early Stage ◽  
Psychosocial Interventions ◽  
Emotional Impact ◽  
Family Carer ◽  
Family Carers ◽  
People With Dementia ◽  
The Family ◽  
The Future ◽  
Person With Dementia

Background and objectives Support directly after the diagnosis is often experiences as inadequate by people with dementia and their family carers. In this phase, appropriate psychosocial support is important to adapt to and cope with the dementia diagnosis. Often, available support is focused on practical matters and not on the emotional impact of the diagnosis. Also, very often problems have already started to accumulate before support is provided. In the US, the intervention SHARE [Support, Health, Activities, Resources, Education] was therefore developed and studied. This intervention is innovative, because it is designed for dyads (e.g., the person with dementia and their family carer) dealing with early-stage dementia. Its’ primary goal is to enhance communication between people with dementia and their family carers and to prepare them for the future. Several years ago, the intervention was adjusted and pilot -tested in the Netherlands, with positive results. This RCT study evaluates the (cost-)effectiveness of the Dutch SHARE intervention.Methods During four or five session and a pre-session, a healthcare psychologist carries out the intervention with dyads dealing with early-stage dementia. This to enhance skills of the dyad to cope with changes and stressors that might be expected in the future due to the dementia. The intervention takes place in an early stage when the person with dementia is still able to participate actively and before the family carer is overwhelmed by care-related stress. The primary outcome measurements are the quality of life of the person with dementia and self-efficacy of the family carer. Secondary outcomes are stress, communication in the relationship and perspective taking measured only for family carers. The design and procedures of the RCT will be presented in this session as well as the content of the intervention and demographic characteristics of participating dyads.Conclusion This intervention increases the ability of the dyad to cope with the disease and capacity to deal with the situation, with positive experiences of participating dyads and professionals. The study enhances knowledge about psychosocial interventions for people with dementia and family carer

scholarly journals DYADIC INTERVENTION FOR PEOPLE WITH DEMENTIA AND THEIR FAMILY CARERS AFTER THE DIAGNOSIS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S111-S111
Author(s):  
Marleen Prins ◽  
Marjolein Veerbeek ◽  
Claudia van der Velden ◽  
Bernadette Willemse
Keyword(s):  
Early Stage ◽  
Outcome Measurement ◽  
Psychosocial Interventions ◽  
Emotional Impact ◽  
Family Carers ◽  
People With Dementia ◽  
Future Care ◽  
The Right ◽  
The Cost ◽  
And Coping

Abstract Adaptation to and coping with the diagnosis dementia is a complex process. The right support in this phase is important to find the right care and to (self-)manage future care wishes. However, people with dementia (PWD) and their family carers (FC) often experience support directly after the diagnosis as inadequate. Support is not provided until problems start to accumulate and available support is not focused on continuation of their life and the emotional impact of the diagnosis. Therefore, the intervention SHARE [Support, Health, Activities, Resources, Education] was developed and studied in the US and adjusted to and pilot-tested in the Netherlands with positive results. SHARE is innovative because it is designed for dyads dealing with early-stage dementia to enhance communication between PWD and their FC and to prepare them for the future. In this study, the Dutch SHARE intervention was adjusted because of new insights and an RCT is being conducted to evaluate the (cost)effectiveness of this version of the Dutch SHARE. The primary outcome measurement for the PWD is quality of life and self-efficacy for the FC. Secondary outcomes are stress, communication in the relationship and perspective taking (only FC). The design and procedures of the RCT will be presented in this poster session as well as the demographic characteristics of participating dyads. This study contributes to knowledge about psychosocial interventions for PWD and FC with special attention for preventive empowerment of the ability to cope with the disease and the capacity to deal with the situation.

Cancer treatment decisions for people living with dementia: experiences of family carers

2020 ◽  
Vol 70 (suppl 1) ◽  
pp. bjgp20X711545
Author(s):  
Catherine Hynes ◽  
Caroline Mitchell ◽  
Lynda Wyld
Keyword(s):  
Cancer Treatment ◽  
Healthcare Professionals ◽  
Cancer Recurrence ◽  
Treatment Decisions ◽  
Support Needs ◽  
Family Carers ◽  
Structured Interviews ◽  
Power Of Attorney ◽  
Cancer Data ◽  
People With Dementia

BackgroundDementia and cancer are both diseases associated with older age. The National Cancer Data Audit in England found that 4.4% of people diagnosed with cancer also had cognitive impairment. Decisions about cancer treatment can be very complex when someone already has dementia. Often someone’s closest relative may be asked to make decisions on their behalf. Little is known about the psychosocial impact that this has on carers, or what their support needs are during this time.AimTo explore the experiences of family carers who have been involved in making cancer treatment decisions on behalf of a relative with dementia, in particular identifying challenges and support needs.MethodThe authors are conducting semi-structured interviews with carers of people with dementia who have been involved in making decisions about cancer treatment on their behalf. Data is being thematically analysed using an inductive approach. Two researchers will independently verify themes.ResultsThe authors expect to have completed 14–18 interviews and will report their preliminary findings. Family carers experience many difficulties in the context of cancer and dementia, including lack of support when coping with the aftereffects of cancer treatment, lack of awareness among healthcare professionals regarding the authority granted by a lasting power of attorney and the anxiety created by feeling responsible for identifying cancer recurrence.ConclusionThis study will highlight that supporting someone with dementia through cancer treatment, and having to make decisions about it on their behalf, creates unique challenges for carers. Currently there is a significant lack of support for those facing this distressing experience.

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