scholarly journals P45 The acceptability of using genetic information to guide treatment of asthma to children, young people, and parents (pilot study)

2019 ◽  
Vol 104 (6) ◽  
pp. e35.3-e36
Author(s):  
C King ◽  
L Bracken ◽  
E McDonough ◽  
M Pirmohamed ◽  
M Peak ◽  
...  
Keyword(s):  
Mental Health ◽  
Young People ◽  
Childhood Asthma ◽  
Genetic Information ◽  
Data Privacy ◽  
Personalised Medicine ◽  
Genomic Data ◽  
Health Data ◽  
Special Focus ◽  
Legal Guardians

BackgroundThere are multiple pharmacogenomic studies in children’s asthma. It has not been established how (or if) children, young people or their parents/legal guardians would accept use of their genetic information to guide their treatment.AimTo determine the views of CYP, and parents/legal guardians, on aspects of using genetic testing to guide management of childhood asthma.MethodsFocus group session with both the Liverpool’s young people advisory group (YPAG), and Parents’ group, at Alder Hey Children’s Hospital. Group members completed anonymous questionnaires determining the importance and privacy associated with different themes of data, with a special focus on health data.ResultsThere were 11 responders, five parents/guardians and six CYP. Both the parents and the CYP considered personal data, such as date of birth, NI number and name, both the most important and the most private. Health data was considered the second most important, and private, although parents rated data from social media data an equal second in terms of privacy. Within healthcare data, CYP considered data regarding their mental health, followed by medical conditions and genomic data, as the sources to be of highest importance. Parents considered their child’s illnesses most important, followed by genomic data. In relation to privacy, CYP considered genomic data first followed by information concerning their mental health. The parents considered genomic data highest for data privacy.ConclusionFrom this session it is clear that health data in general, and genetic data in particular, has a high value of importance to CYP and parents, but there are variations in how data is prioritised. These pilot data will inform a large scale patient and parent acceptability study in personalised medicine and childhood asthma (CHANGE study).Disclosure(s)Nothing to disclose

scholarly journals Privacy and Trust Redefined in Federated Machine Learning

2021 ◽  
Vol 3 (2) ◽  
pp. 333-356
Author(s):  
Pavlos Papadopoulos ◽  
Will Abramson ◽  
Adam J. Hall ◽  
Nikolaos Pitropakis ◽  
William J. Buchanan
Keyword(s):  
Mental Health ◽  
Machine Learning ◽  
Data Privacy ◽  
Communication Channels ◽  
Privacy Preserving ◽  
Health Data ◽  
Proof Of Concept ◽  
Sensitive Data ◽  
Privacy Issue ◽  
Highly Sensitive

A common privacy issue in traditional machine learning is that data needs to be disclosed for the training procedures. In situations with highly sensitive data such as healthcare records, accessing this information is challenging and often prohibited. Luckily, privacy-preserving technologies have been developed to overcome this hurdle by distributing the computation of the training and ensuring the data privacy to their owners. The distribution of the computation to multiple participating entities introduces new privacy complications and risks. In this paper, we present a privacy-preserving decentralised workflow that facilitates trusted federated learning among participants. Our proof-of-concept defines a trust framework instantiated using decentralised identity technologies being developed under Hyperledger projects Aries/Indy/Ursa. Only entities in possession of Verifiable Credentials issued from the appropriate authorities are able to establish secure, authenticated communication channels authorised to participate in a federated learning workflow related to mental health data.

Baker's Dozen: A Program of Training Young People as Mental Health Aides

1971 ◽  
Author(s):  
Jacob Fishman ◽  
Lonnie E. Mitchell ◽  
Clarissa Wittenberg
Keyword(s):  
Mental Health ◽  
Young People

Suicidality and Treatment Experience Among Young People Who Inject Drugs

2020 ◽  
Author(s):  
Mary Ellen Mackesy-Amiti ◽  
Lawrence J. Ouellet
Keyword(s):  
Mental Health ◽  
Substance Use ◽  
Young People ◽  
Mental Disorders ◽  
Mental Health Treatment ◽  
People Who Inject Drugs ◽  
Multivariable Analysis ◽  
Psychiatric Research ◽  
Health Treatment ◽  
The Past

Background. We examined correlates of past year suicidal thoughts and behavior (STB) and described past year treatment experiences among young people who inject drugs (PWID). Methods. Participants were 570 adults (18-25 years) who injected primarily heroin. Interviews were conducted at field stations operated by Community Outreach Intervention Projects in Chicago, Illinois (USA). Interviewers administered the Psychiatric Research Instrument for Substance and Mental Disorders. Substance use and mental disorders were based on DSM-IV diagnostic criteria. Past year STB was based on multiple questions. Results. Sixteen percent of men and 25% of women reported STB in the past year. In multivariable analysis, STB was associated with non-heterosexual orientation, foster care, and being raised by two parents. Primary major depression, post-traumatic stress disorder, other anxiety disorders, and borderline personality disorder had independent effects on suicidality. Among those reporting past year STB (n=111), 83% ever received mental health treatment, while 44% did so in the past year. While 24% of respondents indicated that at least one treatment matched their needs very well, 30% reported treatment that did not match their needs at all. The most common reason for ending treatment was program completion (about 50%) while getting better was endorsed by about 25%. Nearly half reported ending treatment due to a bad experience, logistical issues, or expense. Conclusions. Young PWID are at high risk for suicidal behavior and their mental health treatment experiences often do not meet their needs. There is a pressing need for more integrated substance use and mental health treatment.

Report1: Impact of Covid-19 on young people aged 13-24 in the UK- preliminary findings

2020 ◽  
Author(s):  
Liat Levita ◽  
Jilly Gibson Miller ◽  
Todd K. Hartman ◽  
Jamie Murphy ◽  
Mark Shevlin ◽  
...  
Keyword(s):  
Mental Health ◽  
Young People ◽  
Emotional Regulation ◽  
Health Anxiety ◽  
Self Control ◽  
Social Risk ◽  
Need For Support ◽  
The Uk ◽  
Social Recovery ◽  
The Impact

COVID-19 has led to an unprecedented disruption of normal social relationships and activities, which are so important during the teen years and young adulthood, and to education and economic activity worldwide. The impact of this on young people’s mental health and future prospects may affect their need for support and services, and the speed of the nation’s social recovery afterwards. This study focused on the unique challenges facing young people at different points during adolescent development, which spans from the onset of puberty until the mid-twenties. Although this is an immensely challenging time and there is a potential risk for long term trauma, adolescence can be a period of opportunity, where the teenagers’ brain enjoys greater capacity for change. Hence, the focus on young people is key for designing age-specific interventions and public policies, which can offer new strategies for instilling resilience, emotional regulation, and self-control. In fact, adolescents might be assisted to not only cope, but excel, in spite of the challenges imposed by this pandemic. Our work will feed into the larger societal response that utilizes the discoveries about adolescence in the way we raise, teach, and treat young people during this time of crisis. Wave 1 data has already been collected from 2,002 young people aged 13-24, measuring their mental health (anxiety, depression, trauma), family functioning, social networks, and resilience, and social risk-taking at the time of the pandemic. Here we present a preliminary report of our findings, (Report 1). Data collected 21/4/20- 29/4/20 - a month after the lockdown started).

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