scholarly journals Justice: a key consideration in health policy and systems research ethics

2020 ◽  
Vol 5 (4) ◽  
pp. e001942 ◽  
Author(s):  
Bridget Pratt ◽  
Verina Wild ◽  
Edwine Barasa ◽  
Dorcas Kamuya ◽  
Lucy Gilson ◽  
...  
Keyword(s):  
Health Policy ◽  
Research Ethics ◽  
Ethics Committees ◽  
Ethical Review ◽  
Research Ethics Committees ◽  
Systems Research ◽  
The Social ◽  
Principle Of Justice ◽  
The Rich ◽  
Health Policy And Systems

Health policy and systems research (HPSR) is increasingly being funded and conducted worldwide. There are currently no specific guidelines or criteria for the ethical review and conduct of HPSR. Academic debates on HPSR ethics in the scholarly literature can inform the development of guidelines. Yet there is a deficiency of academic bioethics work relating to justice in HPSR. This gap is especially problematic for a field like HPSR, which can entail studies that intervene in ways affecting the social and health system delivery structures of society. In this paper, we call for interpreting the principle of justice in a more expansive way in developing and reviewing HPSR studies (relative to biomedical research). The principle requires advancing health equity and social justice at population or systems levels. Drawing on the rich justice literature from political philosophy and public health ethics, we propose a set of essential justice considerations to uphold this principle. These considerations are relevant for research funders, researchers, research ethics committees, policymakers, community organisations and others who are active in the HPSR field.

Operationalizing the Ethical Review of Global Health Policy and Systems Research: A Proposed Checklist

2021 ◽  
Vol 49 (1) ◽  
pp. 92-122
Author(s):  
Abbas Rattani ◽  
Adnan A. Hyder
Keyword(s):  
Health Policy ◽  
Global Health ◽  
Ethical Review ◽  
Systems Research ◽  
Global Health Policy ◽  
Health Policy And Systems

AbstractThere has been growing consensus to develop relevant guidance to improve the ethical review of global health policy and systems research (HPSR) and address the current absence of formal ethics guidance.

Human research ethics committees members: ethical review personal perceptions

2021 ◽  
Author(s):  
Boris Handal ◽  
Chris Campbell ◽  
Kevin Watson ◽  
Marguerite Maher ◽  
Keagan Brewer ◽  
...  
Keyword(s):  
Research Ethics ◽  
Ethics Committees ◽  
Ethical Review ◽  
Research Ethics Committees ◽  
Human Research ◽  
Human Research Ethics ◽  
Personal Perceptions

scholarly journals Participatory Research and the Medicalization of Research Ethics Processes

2016 ◽  
Vol 26 (3) ◽  
pp. 378-400 ◽  
Author(s):  
Tehseen Noorani ◽  
Andrew Charlesworth ◽  
Alison Kite ◽  
Morag McDermont
Keyword(s):  
Research Ethics ◽  
Participatory Research ◽  
Mental Distress ◽  
Ethical Decision Making ◽  
Ethics Committees ◽  
Ethical Review ◽  
Small Scale ◽  
Research Ethics Committees ◽  
Law Schools ◽  
Methodological Innovation

This article illustrates how medicalized epistemologies and methodologies significantly influence the institutional ethical review processes applied to sociolegal research in law schools. It argues this development has elevated particular renderings of mental distress and objectivity to universal definitions, potentially placing a straitjacket on methodological innovation. The authors use two case studies from their experiences as researchers in a UK Law School, alongside a small-scale survey of sociolegal researchers in other UK law schools, to illustrate the problems that can arise in securing ethical approval for sociolegal research, in particular with participatory research designs that mobilize ideas of mental distress and objectivity not premised on conventional medical understandings. The article develops key proposals that the authors feel merit further inquiry. First, there should be a comprehensive evaluation of how the jurisdiction of ethical review for sociolegal research is established. Second, sociolegal scholarship can contribute to debates concerning the discursive, material and procedural constitution of institutional ethics approval processes. Finally, we might rethink the nature of, and relationship between, university-based research ethics committees and National Health Service research ethics committees, by placing both within wider ecologies of capacities for ethical decision-making.

Incorporating attention to gender equity in the work of local research ethics committees in europe: A case study of ethical review practices

2006 ◽  
Vol 3 ◽  
pp. S32
Author(s):  
Clara J. Moerman ◽  
Joke A. Haafken ◽  
Margareta Soderstrom ◽  
Eva Rasky ◽  
Peggy Maguire ◽  
...  
Keyword(s):  
Research Ethics ◽  
Gender Equity ◽  
Ethics Committees ◽  
Ethical Review ◽  
Research Ethics Committees ◽  
Local Research

scholarly journals Regulating Research: The Origins and Institutionalization of Research Ethics Committees in Sweden

2021 ◽  
pp. 1-20
Author(s):  
Helena Tinnerholm Ljungberg
Keyword(s):  
Medical Research ◽  
Research Ethics ◽  
Ethical Issues ◽  
Ethics Committees ◽  
Medical Community ◽  
Ethical Review ◽  
Research Ethics Committees ◽  
Karolinska Institute ◽  
Swedish Society ◽  
The 1960S

Abstract The year 1966 saw the birth of Sweden’s first formal Research Ethics Committee (rec) at the medical university Karolinska Institute (ki). In the following years other ethical committees were institutionalized, coordinated by a working group steered by the Swedish Medical Research Council (smrc). Research ethical issues of a principled nature were also discussed by the Ethics Delegation of the Swedish Society of Medicine (ssm). Between 1966 and 1975, around 500 research proposals were assessed by rec s in Sweden, and the medical community started to follow certain protocols when preparing applications for ethical review. This paper traces the origins and early development of the rec system in Sweden and offers an analysis of their practices, discussions, and assessments through the reading of meeting protocols and correspondence between central actors. The aim is to sketch out how and why the system of research ethics committees emerged, became institutionalized, and developed in Sweden from the 1960s to the early 1980s. This paper connects to the recent empirical turn in historical research on medical research ethics and regulations, by focusing on how the insiders, i.e., the medical community, reacted to new demands of ethical review. The analysis illustrates how the medical researchers interacted with transnational funders, the Patients Association, a broader public, governmental authorities, and parliamentary politics when developing the Swedish rec system.

Sign in / Sign up

Export Citation Format

Share Document