scholarly journals Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis

BMJ Open ◽  
2020 ◽  
Vol 10 (1) ◽  
pp. e034588
Author(s):  
Serena Francesca Flocco ◽  
Rosario Caruso ◽  
Serena Barello ◽  
Tiziana Nania ◽  
Silvio Simeone ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Congenital Heart ◽  
Phenomenological Analysis ◽  
Adult Women ◽  
Early Motherhood ◽  
Italian Women ◽  
Experiences Of Women

ObjectiveThis study explored the lived experiences of women with congenital heart disease (CHD) during pregnancy and early motherhood.DesignQualitative study using semistructured interviews. Data were analysed according to interpretative phenomenological analysis.SettingSan Donato Milanese, Italy.Participants12 adult women during pregnancy or early motherhood.ResultsThree main themes emerged from the analysis that were labelled as follows: ‘Being a woman with CHD’; ‘Being a mother with CHD’; and ‘Don’t be alone’. Mothers described both positive and negative feelings about their pregnancies and transitions from childless women to mothers with CHD. They needed supportive care to improve the management of their health during pregnancy and early motherhood.ConclusionThis study explored the lived experiences of women with CHD during pregnancy and early motherhood. The emerged themes represent an initial framework for implementing theory-grounded educational and supportive strategies that improve self-care, engagement and quality of life for women with CHD. Furthermore, the study’s results provide guidance for operationalising the described experiences into items and domains for future cross-national surveys.

Understanding the experiences of fathers of children with congenital heart disease: An interpretative phenomenological analysis

2016 ◽  
Vol 22 (11) ◽  
pp. 1447-1457 ◽  
Author(s):  
Carla Gower ◽  
Aiveen Higgins ◽  
Nicola Doherty ◽  
David McCormack
Keyword(s):  
Decision Making ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Congenital Heart ◽  
Phenomenological Analysis ◽  
Clinical Implications

Little is known about the experiences of fathers of children with congenital heart disease. Using interpretative phenomenological analysis, the lived experiences of six fathers were explored. Two master themes emerged: ‘relinquishing and reclaiming control’ and ‘living in the shadow of illness’. Subordinate themes included playing the support act, a pragmatic/emotional dichotomy, and becoming the child’s protector. Other themes included living in limbo and redefining ‘normality’ to encompass the condition. Theoretical links are made between these findings and existing literature while clinical implications include the need to involve fathers in decision-making and to respect their need to maintain control.

What Does it Mean to Live with a Congenital Heart Disease? A Qualitative Study on the Lived Experiences of Adult Patients

2005 ◽  
Vol 4 (1) ◽  
pp. 3-10 ◽  
Author(s):  
Patricia Claessens ◽  
Philip Moons ◽  
Bernadette Dierckx de Casterlé ◽  
Nancy Cannaerts ◽  
Werner Budts ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Lived Experience ◽  
Lived Experiences ◽  
Congenital Heart ◽  
Adult Congenital Heart Disease ◽  
Medical Problems ◽  
Heart Defect ◽  
Psychosocial Concerns ◽  
Adult Congenital

Background: Adults with congenital heart disease constitute a relatively new and continuously growing patient population. In addition to medical problems, patients perceive specific psychosocial concerns that influence their lived experiences and quality of life. Aim: This study aimed to explore the lived experiences of adult congenital heart disease patients. Methods: Unstructured, in-depth interviews were performed with 12 patients, aged between 25 and 40 years and suffering from moderate or severe heart defect (tetralogy of Fallot, transposition of the great arteries). Interviews were tape recorded and transcribed verbatim. Data were analyzed using Grounded Theory procedures. Results: Feeling different was the central theme of the patients’ lived experience, as they are faced with physical limitations and visible signs due to the heart defect. The experienced discordance between their world and healthy individuals’ world implies that patients struggle constantly with themselves and with their environment to be accepted as normal. The feeling of being different was influenced by attitudes of the environment, health care, and patient's personality. Moreover, it determined the perceived impact of the disease on the patient's daily life. Conclusion: This study shows that normalisation is the most important process when dealing with patients suffering from a congenital heart disease.

scholarly journals Lived Experiences of Women with Dissociative Disorder: An Interpretative Phenomenological Analysis

2021 ◽  
pp. 025371762110448
Author(s):  
Ashti Emran ◽  
Vibha Sharma ◽  
Ravinder Singh ◽  
Manisha Jha ◽  
Naved Iqbal
Keyword(s):  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Psychological Treatment ◽  
Tertiary Care ◽  
Phenomenological Analysis ◽  
North India ◽  
Subjective Experiences ◽  
Indian Setting ◽  
Experiences Of Women

Background: In the Indian setting, several studies have documented that dissociative disorders (DDs) are more common in females, and the most commonly elicited stressors are interpersonal. However, much of the research up to now has been quantitative. There is a notable paucity of qualitative studies exploring the subjective experiences of women with DD. Therefore, the present study sought to explore and gain an in-depth understanding of the lived experiences of women diagnosed with DD. Methods: Five women were recruited who were seeking psychological treatment for dissociative symptoms at a tertiary care neuropsychiatric institute in North India. In-depth interviews were conducted with each, and the transcripts were analyzed using the analytic method of interpretative phenomenological analysis. Results: Three superordinate themes that emerged were: patients’ illness perspectives, the salience of relationships, and dealing with relationship conflicts. Conclusions: Our findings highlight the role of culture in influencing the participants’ illness perspectives. Women with DD tend to define their self in relational terms and, thus, inhibit the expression of one’s needs and opinions, to avoid conflict and to maintain harmony in relationships.

Reproductive and Contraceptive Counseling Received by Adult Women with Congenital Heart Disease: A Risk-based Analysis

2012 ◽  
Vol 8 (1) ◽  
pp. 20-31 ◽  
Author(s):  
Alicia Hinze ◽  
Shelby Kutty ◽  
Harlan Sayles ◽  
Erin K. Sandene ◽  
Jane Meza ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adult Women ◽  
Contraceptive Counseling

scholarly journals Adequacy of Cancer Screening in Adult Women with Congenital Heart Disease

2013 ◽  
Vol 2013 ◽  
pp. 1-6 ◽  
Author(s):  
Mitalee P. Christman ◽  
Margarita Castro-Zarraga ◽  
Doreen DeFaria Yeh ◽  
Richard R. Liberthson ◽  
Ami B. Bhatt
Keyword(s):  
Primary Care ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Cancer Screening ◽  
Primary Care Physicians ◽  
Congenital Heart ◽  
Care Center ◽  
Adult Women ◽  
Cancer Society ◽  
Pap Tests

Adults with congenital heart disease (ACHD) face noncardiac healthcare challenges as the population ages. We assessed whether women with ACHD have comparable cancer screening rates to non-ACHD women in a cardiac practice and to the general population. We performed a retrospective review of 175 adult women seen in a cardiac care center in 2009–2011. Data on Pap tests, mammography, and colonoscopies, were collected through electronic medical records and primary care provider records. Adequate documentation was available for 100 individuals with ACHD and 40 comparator cardiac patients. The adequacy of screening was determined using guidelines set forth by the American Cancer Society in 2010. Compared with the national average, ACHD patients had significantly lower rates of Pap tests (60% versus 83%, ) and mammography (48% versus 72%, ). Compared with non-ACHD women in the same practice, ACHD patients had consistently lower rates of mammography (48% versus 81%, ) and colonoscopies (54% versus 82%, ). As the population of ACHD individuals ages, attention to cancer screening becomes increasingly important but may be overlooked in this population. Primary care physicians and cardiologists should collaborate to ensure appropriate cancer screening for this growing population.

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