scholarly journals Quality of life and perceived health status in surviving adults with univentricular heart

Heart ◽  
2001 ◽  
Vol 86 (1) ◽  
pp. 69-73 ◽  
Author(s):  
Z Saliba
2019 ◽  
Vol 3 (1) ◽  
Author(s):  
A. Barnadas ◽  
◽  
M. Muñoz ◽  
M. Margelí ◽  
J. I. Chacón ◽  
...  

Abstract Background Bone metastasis (BM) is the most common site of disease in metastatic breast cancer (MBC) patients. BM impacts health-related quality of life (HRQoL). We tested prospectively the psychometric properties of the Bone Metastasis Quality of Life (BOMET-QoL-10) measure on MBC patients with BM. Methods Patients completed the BOMET-QoL-10 questionnaire, the Visual Analogue Scale (VAS) for pain, and a self-perceived health status item at baseline and at follow-up visits. We performed psychometric tests and calculated the effect size of specific BM treatment on patients´ HRQoL. Results Almost 70% of the 172 patients reported symptoms, 23.3% experienced irruptive pain, and over half were receiving chemotherapy. BOMET-QoL-10 proved to be a quick assessment tool performing well in readability and completion time (about 10 min) with 0–1.2% of missing/invalid data. Although BOMET-QoL-10 scores remained fairly stable during study visits, differences were observed for patient subgroups (e.g., with or without skeletal-related events or adverse effects). Scores were significantly correlated with physician-reported patient status, patient-reported pain, symptoms, and perceived health status. BOMET-QoL-10 scores also varied prospectively according to changes in pain intensity. Conclusions BOMET-QoL-10 performed well as a brief, easy-to-administer, useful, and sensitive HRQoL measure for potential use for clinical practice with MBC patients. Trial registration NCT03847220. Retrospectively registered on clinicaltrials.gov (February the 20th 2019).


2021 ◽  
Author(s):  
Elaine Valias Sodré Pereira ◽  
Carolina Pessoni Garcia ◽  
Maria José D’Elboux

INTRODUCTION: Assessing quality of life in older adults is relevant due to the significant increase in this population. Based on Maslow’s need hierarchy model, CASP-19 is a broad measure of quality of life that focuses on positive aspects of older adults’ lives, regardless of health conditions or other factors. OBJECTIVE: To compare sociodemographic and health variables with quality of life according to CASP-19 scores. METHODOLOGY: Using data from the Frailty in Brazilian Older People (FIBRA 80+) follow-up study, this study included 233 adults aged ≥ 80 years who resided near the University of Campinas (Campinas, SP, Brazil). Sociodemographic variables (gender, age, and perceived social support), health variables (perceived health status and depressive symptoms) and quality of life were evaluated. RESULTS: The participants were predominantly women (69.09%) with a mean age of 83.46 ± 3.7 years. A total of 77.25% rated their health as fair or good, and 79% showed no signs of depression. The mean CASP-19 score was 41.8 ± 2.62 points, which corresponds to better well-being (total scores range from 0 to 57). Among the instrument’s domains, autonomy and pleasure obtained the highest mean scores (11.15 and 11.64 respectively). When comparing these variables with quality of life, social support (p = 0.001), depressive symptoms (p <0.001), and perceived health status (p <0.001) were statistically significant. CONCLUSIONS: Older adults who were satisfied with their social support, presented no depressive symptoms, and who rated their health as good or very good had higher overall quality of life scores.


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