scholarly journals Assessment of Quality of Life among Children with End-Stage Renal Disease: A Cross-Sectional Study

2018 ◽  
Vol 2018 ◽  
pp. 1-6 ◽  
Author(s):  
Arwa M. El Shafei ◽  
Ibrahim Soliman Hegazy ◽  
Fatina Ibrahim Fadel ◽  
Eman M. Nagy

Background. Measuring health-related quality of life is considered an important outcome indicator in evaluating health-care interventions and treatments and in understanding the burden of diseases.Objectives. This study aimed at assessing quality of life among children with end-stage renal disease, either undergoing hemodialysis or had renal transplantation therapy and comparing it with healthy controls.Methods. A cross-sectional study was conducted between December 2016 and May 2017 in Abo El-Reesh Pediatric Hospital using parent/child reports of generic module for QoL assessment: PedsQLTMInventory version 4 for both cases and controls. Disease-specific module: PedsQLTMESRD version 3 was used for ESRD cases. 55 ESRD cases and 86 controls were enrolled in the study.Results. Statistically significant difference between ESRD cases and controls regarding all aspects of QoL was found; total QoL mean score was 58.4 ± 15.3 and 86.8 ± 10 among cases and controls, respectively. All individual QoL domains were significantly worse in ESRD cases. Transplantation group had better Spearman’s correlation between child and parents’ scores which showed significant positive moderate correlation.Conclusions. ESRD and its treatment modalities are affecting negatively all aspects of quality of life; incorporating QoL assessment and management is highly recommended.

2020 ◽  
Vol 4 (1) ◽  
pp. 1-9
Author(s):  
Evangelos C. Fradelos

The aim of this study was to assess the quality of life (QoL) in end-stage renal disease (ESRD) patients undergoing hemodialysis and to examine the clinical and demographic attributes associated with it.This is a multicenter, cross-sectional study, conducted in 2018, in which 367 patients with ESRD undergoing hemodialysis were recruited. Data were collected through a two-part anon-ymous, self-completed questionnaire. The first part contained questions regarding demographic, social, and clinical information, and the Greek version of Missoula–Vitas Quality of Life Index-15 (MVQoL-15) scale was used to assess QoL. Descriptive and inferential statistical methods were applied. All reported p-values were two-tailed, and the statistical significance level was set at 0.05. Of the study participants, 62.1% were male, with a mean age of 61.80 ±15.11. Of the participants, 67.3% were living in urban areas and 59.1% were married. The majority of the Hemodialysis (HD) patients evaluated possessively all the domains of MVQoL except the wellbeing Domain. QoL was found to be influenced, among others, by age (0.001), occupation (0.002), education (0.003), and additional health problems (<0.001). The role of patient characteristics in QoL is an area of interest, and early and proper intervention is important to enhance QoL.


The Lancet ◽  
2018 ◽  
Vol 391 ◽  
pp. S32
Author(s):  
Sa'ed H Zyoud ◽  
Dala N Daraghmeh ◽  
Diana O Mezyed ◽  
Razan L Khdeir ◽  
Mayas N Sawafta ◽  
...  

2021 ◽  
Vol 60 (1) ◽  
Author(s):  
K Promsakun ◽  
◽  
N Yingchankul ◽  

Objectives To study the prevalence of and factors related to caregiver burden amongst caregivers of end-stage renal disease patients. Methods A cross-sectional study was conducted in which data was collected from July 2019 to December 2019 from a total of 152 caregivers aged 18 years and over recruited into this study. Paid caregivers were excluded. The data collected included patient factors, caregiver factors, social support assessment, the Thai version of the Zarit Burden Interview for assessing caregiver burden along with the EQ-5D-5L questionnaire for assessing quality of life. . Results The prevalence of caregiver burden in cases of end-stage renal disease was 18.42%. Factors associated with caregiver burden included single or divorced status, inadequate income, owing money, need for more information and knowledge in caring for patients, low social support, and low quality of life (p < 0.05). Conclusion Caregiver burden screening should be done for individuals providing end-stage chronic kidney disease care including their need for additional information on patient care as well as their economic and social situation. It is important that caregivers be screened as well as supervised. Chiang Mai Medical Journal 2021;60(1):41-52. doi 10.12982/CMUMEDJ.2021.04


2017 ◽  
Vol 18 (1) ◽  
Author(s):  
Paulo Roberto Santos ◽  
José Roberto Frota Gomes Capote Júnior ◽  
José Renan Miranda Cavalcante Filho ◽  
Ticianne Pinto Ferreira ◽  
José Nilson Gadelha dos Santos Filho ◽  
...  

2020 ◽  
Author(s):  
Marwah Mohamed

Abstract Background: End-stage renal disease (ESRD) is the last stage of chronic kidney disease (CKD) when renal replacement therapy (RRT) is necessary for sustaining life. Assessment of QoL of ESRD patients has become an essential tool to measure how the disease affects patients’ lives, and to develop better plans of care. Little is known about QoL in patients with CKD before RRT. This study aims to examine the various socio-demographic and other factors that affect the daily QoL of ESRD patients on haemodialysis (HD).Methods: A cross-sectional study was conducted at Dr Selma Dialysis Center, Khartoum, Sudan from September to December 2018. A total of 138 adult patients on chronic dialysis were recruited in this observational study. The QoL was assessed using the Kidney Disease Quality of Life-Short Form questionnaire (KDQoL-SF™).Results: Out of 138 enrolled patients, there were 105 patients (76.1%) had a good QoL and 33 patients (23.9%) had a poor QoL.Patients with a poor QoL had an average age of 42.8 ± 12.9 years. The good-QoL group had an average age of 46.9 ± 14.9 years. The total score of KDQoL-SF was 61.6%, while the scores for the physical and mental components were 39.3 ± 9.6 and 50.0 ± 10.6 respectively.Conclusion: This study indicated that the main factors that have a significant impact on the QoL were social status, origin, employment status, duration of the CKD, family history of kidney disease, time on HD, and Hypertension.


2020 ◽  
Vol 58 (226) ◽  
Author(s):  
Kajan Raj Shrestha ◽  
Dinesh Gurung ◽  
Uttam Krishna Shrestha

Introduction: Arteriovenous fistula is the most common vascular access for patients requiringhemodialysis, but it is not always possible or practical hence cuffed tunneled dialysis cathetercomes into play. The aim of the study was to determine the outcome of cuffed tunneled dialysiscatheter used for hemodialysis at a teaching hospital. Methods: A descriptive cross-sectional study was conducted between January 2014 and December2019 on 103 chronic dialysis patients with end-stage renal disease presenting to a tertiary carehospital. Ethical approval was received from the institutional review board (2/(6-11) E2/076/77).Whole sampling was done. Data entry and analysis were done in Microsoft Excel 10. Results: The study included 103 patients with 117 cuffed tunneled dialysis catheters placed forhemodialysis. On assessing the outcome of the catheters, the primary and secondary patencyrates of the catheters were 5.85±4.87 and 1.21±3.77 months. Thirty-one (30.1%) patients requiredone intervention, and 11 (10.68%) catheters required 3 or more interventions to maintain patency.Eighteen (17.48%) patients presented with catheter dysfunction while in 11 (10.68%) cases, thecatheter was kinked or malpositioned at the notch. In one patient, procedure was abandoned dueto severe bleeding and in 2 (1.94%) patients dialysis catheters could not be negotiated into the rightatrium and left in brachiocephalic junction. Conclusions: Cuffed tunneled dialysis catheter is effective for maintenance hemodialysis in patientswith the end-stage renal disease if used with proper care during dialysis even in our setup. Theresults and outcomes of the procedure are at par with standards.


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