Abstract B28: Catering to the needs of young and older Asian American breast cancer survivors: In-depth interviews

Author(s):  
Sunmin Lee ◽  
Grace X. Ma ◽  
Carolyn Y. Fang ◽  
Lu Chen ◽  
Oh Youngsuk
2021 ◽  
pp. 019394592110319
Author(s):  
Wonshik Chee ◽  
Eun-Ok Im

The purpose of the study was to explore the associations of sub-ethnicity to the survivorship experience of Asian American breast cancer survivors and identify the multiple factors that influenced their survivorship experience. This was a secondary analysis of the data among 94 Asian American breast cancer survivors from a larger ongoing study. Instruments included: questions on background characteristics, the perceived isolation scale, the Personal Resource Questionnaire, the Memorial Symptom Assessment Scale-Short Form, and the Functional Assessment of Cancer Therapy-Breast Cancer. Data were analyzed using hierarchical logistic and multiple regression analyses. After controlling for other factors, being a Japanese American (ref. = being a Chinese American) was significantly associated with pain scores (odds ratio [OR] = −0.32, p < .01), symptom distress scores ( β = −0.27, p < .01), and the quality of life scores ( β = 0.22, p = .03). Sub-ethnic variations in cultural attitudes, values, and beliefs need to be considered in future research/practice with Asian American breast cancer survivors.


2021 ◽  
Author(s):  
Shao-Hua Chen ◽  
Jun-E Liu ◽  
Dong-Mei Guo ◽  
Ya-Li Su ◽  
Yan-Fei Liu

Abstract Purpose Breast cancer affects survivors and their first-degree relatives. They face breast cancer together as a unit. This study aimed to explore the mutual support of breast cancer survivors and their first-degree relatives in their joint coping with breast cancer. Methods A qualitative case study with purposeful sampling was conducted. Ten breast cancer survivors and 21 of their first-degree relatives were recruited for in-depth interviews. Data were analyzed by thematic analysis using MAXQDA software. Results Three themes were extracted under the overarching theme “a shared journey to a better future”: 1. “Mutual support is needed as we are in the same boat,” suggesting mutual support in responding to breast cancer; 2. “We experience stormy and windy weather during our journey,” emphasizing challenges encountered in providing support; and 3. “Sunny and breezy days are a gift for both of us,” indicating they perceived reciprocity during the process of mutual support. Conclusions Mutual support was an important feature of breast cancer survivors and first-degree relatives coping with breast cancer and beneficial to both groups. However, significant challenges in supporting each other were reported, indicating the necessity of external support in coping with breast cancer. Health professionals should not ignore first-degree relatives of breast cancer survivors, and need to support both of these groups.


2016 ◽  
Vol 23 (6) ◽  
pp. 618-626 ◽  
Author(s):  
Wonshik Chee ◽  
Yaelim Lee ◽  
Eun-Ok Im ◽  
Eunice Chee ◽  
Hsiu-Min Tsai ◽  
...  

Introduction The necessity of culturally competent Internet Cancer Support Groups (ICSGs) for ethnic minorities has recently been highlighted in order to increase its attractiveness and usage. The purpose of this study was to determine the preliminary efficacy of a culturally tailored registered-nurse-moderated ICSG for Asian American breast cancer survivors in enhancing the women’s breast cancer survivorship experience. Methods The study included two phases: (a) a usability test and an expert review; and (b) a randomized controlled pilot intervention study. The usability test was conducted among five Asian American breast cancer survivors using a one-month online forum, and the expert review was conducted among five experts using the Cognitive Walkthrough method. The randomized controlled pilot intervention study (a pre-test and post-test design) was conducted among 65 Asian American breast cancer survivors. The data were analysed using content analysis and descriptive and inferential statistics including the repeated ANOVA. Results All users and experts positively evaluated the program and provided their suggestions for the display, educational contents, and user-friendly structure. There were significant positive changes in the support care needs and physical and psychological symptoms ( p < 0.05) of the control group. There were significant negative changes in the uncertainty level of the intervention group ( p < 0.10). Controlling for background and disease factors, the intervention group showed significantly greater improvements than the control group in physical and psychological symptoms and quality of life ( p < 0.10). Discussion The findings supported the positive effects of ICSGs on support care needs, psychological and physical symptoms, and quality of life.


2021 ◽  
Vol 48 (5) ◽  
pp. 507-521
Author(s):  
Timiya Nolan ◽  
Elizabeth Arthur ◽  
Ogechi Nwodim ◽  
Amelia Spaulding ◽  
Jennifer Kue

JMIR Cancer ◽  
10.2196/15859 ◽  
2020 ◽  
Vol 6 (1) ◽  
pp. e15859
Author(s):  
Hannah Arem ◽  
Remle Scott ◽  
Daniel Greenberg ◽  
Rebecca Kaltman ◽  
Daniel Lieberman ◽  
...  

Background Breast cancer survivors (BCSs) are a growing population with a higher prevalence of insomnia than women of the same age without a history of cancer. Cognitive behavioral therapy for insomnia (CBT-I) has been shown to be effective in this population, but it is not widely available to those who need it. Objective This study aimed to better understand BCSs’ experiences with insomnia and to explore the feasibility and acceptability of delivering CBT-I using a virtual assistant (Amazon Alexa). Methods We first conducted a formative phase with 2 focus groups and 3 in-depth interviews to understand BCSs’ perceptions of insomnia as well as their interest in and comfort with using a virtual assistant to learn about CBT-I. We then developed a prototype incorporating participant preferences and CBT-I components and demonstrated it in group and individual settings to BCSs to evaluate acceptability, interest, perceived feasibility, educational potential, and usability of the prototype. We also collected open-ended feedback on the content and used frequencies to describe the quantitative data. Results We recruited 11 BCSs with insomnia in the formative phase and 14 BCSs in the prototype demonstration. In formative work, anxiety, fear, and hot flashes were identified as causes of insomnia. After prototype demonstration, nearly 79% (11/14) of participants reported an interest in and perceived feasibility of using the virtual assistant to record sleep patterns. Approximately two-thirds of the participants thought lifestyle modification (9/14, 64%) and sleep restriction (9/14, 64%) would be feasible and were interested in this feature of the program (10/14, 71% and 9/14, 64%, respectively). Relaxation exercises were rated as interesting and feasible using the virtual assistant by 71% (10/14) of the participants. Usability was rated as better than average, and all women reported that they would recommend the program to friends and family. Conclusions This virtual assistant prototype delivering CBT-I components by using a smart speaker was rated as feasible and acceptable, suggesting that this prototype should be fully developed and tested for efficacy in the BCS population. If efficacy is shown in this population, the prototype should also be adapted for other high-risk populations.


2017 ◽  
Vol 26 (12) ◽  
pp. 2253-2260 ◽  
Author(s):  
Kimlin Tam Ashing ◽  
Dalnim Cho ◽  
Lily Lai ◽  
Sophia Yeung ◽  
Lucy Young ◽  
...  

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