Predictors of Persistent Symptoms in People in Coordinated Specialty Care Services for Early Psychosis in New York State

2021 ◽  
pp. appi.ps.2020008
Author(s):  
Juliana Zambrano ◽  
Jennifer Scodes ◽  
Leslie A. Marino ◽  
Ilana Nossel ◽  
Iruma Bello ◽  
...  
2019 ◽  
Vol 13 (3) ◽  
pp. 715-719 ◽  
Author(s):  
Franco Mascayano ◽  
Ilana Nossel ◽  
Iruma Bello ◽  
Thomas Smith ◽  
Hong Ngo ◽  
...  

2021 ◽  
Author(s):  
Sapana Patel ◽  
Iruma Bello ◽  
Leopoldo J. Cabassa ◽  
Ilana R. Nossel ◽  
Melanie M. Wall ◽  
...  

Abstract Background: Coordinated Specialty Care (CSC) programs provide evidence-based services for young people with a recent onset of a psychotic disorder. OnTrackNY is a nationally recognized model of CSC treatment in New York state. In 2019, OnTrackNY was awarded a hub within the Early Psychosis Intervention Network (EPINET) to advance its learning health care system (LHS). The OnTrackNY network is comprised of 23 CSC teams across New York state. OnTrack Central, an intermediary organization, provides training and implementation support to OnTrackNY teams. OnTrack Central coordinates a centralized data collection protocol for quality improvement and evaluation of program fidelity and a mechanism to support practice based-research. OnTrackNY sites’ breadth coupled with OnTrack Central oversight provides an opportunity to examine the impacts of the COVID-19 crisis in New York State. Methods: This project will examine the implications of modifications to service delivery within the OnTrackNY LHS during and after the COVID-19 crisis. We will use the Framework for Reporting Adaptations and Modifications-Enhanced (FRAME) to classify systematically, code, and analyze modifications to CSC services and ascertain their impact. We will utilize integrative mixed methods. Qualitative interviews with multi-level stakeholders (program participants, families, providers, team leaders, agency leaders, trainers (OnTrack Central), and decision-makers at the state and local levels) will be used to understand the process making decisions, information about modifications to CSC services, and their impact. Analysis of OnTrackNY program data will facilitate examining trends in team staffing and functioning, and participant service utilization and outcomes. Study findings will be summarized in a CSC Model Adaptation Guide, which will identify modifications as fidelity consistent or not, and their impact on service utilization and care outcomes. Discussion: A CSC Model Adaptation Guide will inform CSC programs, and the state and local mental health authorities to which they are accountable, regarding modifications to CSC services and the impact of these changes on care process, and participant service utilization and outcomes. The guide will also inform the development of tailored technical assistance that CSC programs may need within OnTrackNY, the EPINET network, and CSC programs nationally. Trial Registration: NCT04021719, July 16th, 2019.


2019 ◽  
Vol 26 (3) ◽  
pp. 1631-1658
Author(s):  
Jerome Niyirora ◽  
Ossayne Aragones

Medical care services can be organized into a network. Understanding the structure of this network cannot only help analyze common clinical protocols but can also help reveal previously unknown patterns of care. The objective of this research is to introduce the concept and methods for constructing and analyzing the network of medical care services. We start by demonstrating how to build the network itself and then develop algorithms, based on principal component analysis and social network analysis, to detect communities of services. Finally, we propose novel graphical techniques for representing and assessing patterns of care. We demonstrate the application of our algorithms using data from an Emergency Department in New York State. One of the implications of our research is that clinical experts could use our algorithms to detect deviations from either existing protocols of care or administrative norms.


2012 ◽  
Vol 24 (3) ◽  
pp. 309-327 ◽  
Author(s):  
Toby Adelman ◽  
Martin Kitchener ◽  
Terence Ng ◽  
Charlene Harrington

2021 ◽  
Vol 2 (1) ◽  
Author(s):  
Sapana R. Patel ◽  
Iruma Bello ◽  
Leopoldo J. Cabassa ◽  
Ilana R. Nossel ◽  
Melanie M. Wall ◽  
...  

Abstract Background Coordinated Specialty Care (CSC) programs provide evidence-based services for young people with a recent onset of a psychotic disorder. OnTrackNY is a nationally recognized model of CSC treatment in New York state. In 2019, OnTrackNY was awarded a hub within the Early Psychosis Intervention Network (EPINET) to advance its learning health care system (LHS). The OnTrackNY network is comprised of 23 CSC teams across New York state. OnTrack Central, an intermediary organization, provides training and implementation support to OnTrackNY teams. OnTrack Central coordinates a centralized data collection protocol for quality improvement and evaluation of program fidelity and a mechanism to support practice based-research. OnTrackNY sites’ breadth coupled with OnTrack Central oversight provides an opportunity to examine the impacts of the COVID-19 crisis in New York State, and supplementary funding was awarded to the OnTrackNY EPINET hub in 2021 for that purpose. Methods This project will examine the implications of modifications to service delivery within the OnTrackNY LHS during and after the COVID-19 crisis. We will use the Framework for Reporting Adaptations and Modification-Enhanced (FRAME) to classify systematically, code, and analyze modifications to CSC services and ascertain their impact. We will utilize integrative mixed methods. Qualitative interviews with multi-level stakeholders (program participants, families, providers, team leaders, agency leaders, trainers (OnTrack Central), and decision-makers at the state and local levels) will be used to understand the process of making decisions, information about modifications to CSC services, and their impact. Analysis of OnTrackNY program data will facilitate examining trends in team staffing and functioning, and participant service utilization and outcomes. Study findings will be summarized in a CSC Model Adaptation Guide, which will identify modifications as fidelity consistent or not, and their impact on service utilization and care outcomes. Discussion A CSC Model Adaptation Guide will inform CSC programs, and the state and local mental health authorities to which they are accountable, regarding modifications to CSC services and the impact of these changes on care process, and participant service utilization and outcomes. The guide will also inform the development of tailored technical assistance that CSC programs may need within OnTrackNY, the EPINET network, and CSC programs nationally. Trial registration NCT04021719, July 16th, 2019.


2008 ◽  
Vol 26 (10) ◽  
pp. 614-622
Author(s):  
Angela G. Brega ◽  
Kathryn S. Crisler ◽  
Nancy R. Barhydt

2003 ◽  
Vol 4 (3) ◽  
pp. 153-160 ◽  
Author(s):  
Harvey A. Farberman ◽  
Stephen J. Finch ◽  
Beverly P. Horowitz ◽  
Abraham Lurie ◽  
Richard Morgan ◽  
...  

It is estimated that there are 734,400 care giver households in New York State (9.6% [±] 0.8% of all households). Categorization of all care givers on a 5 level “intensity of care” measure reveals that, on average, care givers provide 22.1 hours of care per week. Highest intensity level 5 care givers (9.2% of all care givers), provide, on average, 88 hours of care per week and account for 36.3% of all care giving. The annualized market contribution of all care givers to the NYS health care system is estimated at between $7.5 and $11.2 billion dollars. The combination of care levels 4 and 5 contributed 70% of all care giving and account for about $5.2 billion in market value. Level 4 and 5 care givers are more likely than other care givers to report difficulties including the recent death of the care-receiver (p < 0.001), financial and employment setbacks (p < 0.001), emotional stress from worrying about the patient’s future condition, dealing with cognitively impaired, physically unmanageable, opinionated, virtually immobile patient’s, and insufficient support from family members (p < 0.05). Nevertheless, they also report such rewards as feeling grateful for improving the quality of the care receiver’s life (43.5%) as well as love (17.2%). Of the nearly 15% of NYS care givers who used adult day care services, all reported that these services met their needs fully or partly. However, of the 85% who did not use the service, 33.5% were negative about it. And while use of adult day care services increases with intensity of care level, there is resistance to adult day care particularly among level 3 care givers, with negative statements from 46.8% of them.


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