scholarly journals Supported decision-making from the perspectives of mental health service users, family members supporting them and mental health practitioners

2018 ◽  
Vol 52 (9) ◽  
pp. 826-833 ◽  
Author(s):  
Renata Kokanović ◽  
Lisa Brophy ◽  
Bernadette McSherry ◽  
Jacinthe Flore ◽  
Kristen Moeller-Saxone ◽  
...  
Keyword(s):  
Mental Health ◽  
Decision Making ◽  
Mental Health Service ◽  
Health Service ◽  
Good Practice ◽  
Family Members ◽  
Mental Health Practitioners ◽  
Service Users ◽  
Moral Obligations ◽  
Health Practitioners

Background: Supporting the decision-making of mental health service users fulfils professional, ethical and moral obligations of mental health practitioners. It may also aid personal recovery. Previous research on the effectiveness of supported decision-making interventions is limited. Aims: The study aims to explore from several perspectives the barriers and facilitators to supported decision-making in an Australian context. Supported decision-making was considered in terms of interpersonal experiences and legal supported decision-making mechanisms. Methods: In all, 90 narrative interviews about experiences of supported decision-making were conducted and analysed. Participants were mental health service users who reported diagnoses of schizophrenia, psychosis, bipolar disorder and severe depression; family members supporting them and mental health practitioners, including psychiatrists. The data were analysed thematically across all participants. Results: Negative interpersonal experiences in the mental health care system undermined involvement in decision-making for people with psychiatric diagnoses and family carers. Mental health practitioners noted their own disempowerment in service systems as barriers to good supported decision-making practices. All groups noted the influence of prevailing attitudes towards mental health service users and the associated stigma and discrimination that exist in services and the broader community. They believed that legal supported decision-making mechanisms facilitate the participation of mental health service user and their family supporters in supported decision-making. Conclusions: Enabling supported decision-making in clinical practice and policy can be facilitated by (1) support for good communication skills and related attitudes and practices among mental health practitioners and removing barriers to their good practice in health and social services and (2) introducing legal supported decision-making mechanisms.

Mental health service users’ lived experiences of recovery-oriented services: a scoping review

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Rosalind Lau ◽  
Anastasia Hutchinson
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Decision Making ◽  
Mental Health Service ◽  
Health Service ◽  
Scoping Review ◽  
Service Provision ◽  
Lived Experiences ◽  
Service Users ◽  
Content Type

Purpose Over the past 15 years, mental health organisations have taken steps to move towards providing services that are more recovery-oriented. This review was undertaken to explore what is known about service users’ experience of services that have introduced a recovery-oriented approach to service provision. There is limited research evaluating consumers’ lived experiences of recovery-orientated care; a scoping review was chosen to provide an overview of the available research in this area (Munn et al., 2018). The purpose of this review was to summarize and synthesize current qualitative research exploring consumers’ experience of recovery orientated mental health care provision. Design/methodology/approach This scoping review was undertaken as outlined by Arksey and O'Malley (2005). The five steps consisted identifying the research question; searching for relevant studies; selecting the studies; charting the studies; and collating, summarising and reporting the findings. Findings Three key themes emerged from this review: translation of recovery policy to practice; ward environment; and recovery principles with five subthemes: engagement; not being listened to; shared decision-making; informational needs; and supportive and collaborative relationships. The themes and subthemes identified in each of the 18 studies are presented in Table 3. Research limitations/implications This review highlights the different degree to which service users have received recovery-oriented recovery care. In the majority of cases, most service users reported few opportunities for nursing engagement, poor communication, inadequate information provision, a lack of collaborative care and mostly negative experiences of the ward environment. Because of the limited studies on mental health service users’ lived experiences of a recovery-oriented service, more clinical studies are needed and in different cultural contexts. Practical implications On hindsight, the authors should have included service users in this review process as consumer inclusion is progressively emphasised in mental health educational and research activities. This review highlights that not all studies have involved service users or consumers in their research activity. Social implications Service users need relevant information in a timely manner to participate in decision-making regarding their treatment and care. This review found that either no information was provided to the service users or it was provided in a limited and fragmented manner. This review also found inpatients reported limited opportunities to have meaningful participation in decision-making about their care. These findings have important social implications, as greater consumer engagement in the design and delivery of mental health services will increase community trust in the care provided. This in turn has the potential to facilitate greater community engagement in preventative mental health care. Originality/value This is the first review to systematically synthesis consumers perspectives on the extent to which service providers are achieving the goal of implementing recovery-orientated practice into their service provision. Despite important policy changes, the findings of this review demonstrate that more work is needed to truly operationalise and translate these principles into practice.

Renaming schizophrenia? A survey among psychiatrists, mental health service users and family members in Italy

2020 ◽  
Author(s):  
Antonio Lasalvia ◽  
Antonio Vita ◽  
Antonello Bellomo ◽  
Massimo Tusconi ◽  
Gerardo Favaretto ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Family Members ◽  
Service Users

scholarly journals The VOICES Typology of Curatorial Decisions in Narrative Collections of the Lived Experiences of Mental Health Service Use, Recovery, or Madness: Qualitative Study (Preprint)

2019 ◽  
Author(s):  
Caroline Yeo ◽  
Laurie Hare-Duke ◽  
Stefan Rennick-Egglestone ◽  
Simon Bradstreet ◽  
Felicity Callard ◽  
...  
Keyword(s):  
Mental Health ◽  
Decision Making ◽  
Mental Health Service ◽  
Health Service ◽  
Lived Experiences ◽  
Service Use ◽  
Good Practice ◽  
Well Being ◽  
Mental Health Service Use ◽  
Health Service Use

BACKGROUND Collections of lived experience narratives are increasingly used in health research and medical practice. However, there is limited research with respect to the decision-making processes involved in curating narrative collections and the work that curators do as they build and publish collections. OBJECTIVE This study aims to develop a typology of curatorial decisions involved in curating narrative collections presenting lived experiences of mental health service use, recovery, or madness and to document approaches selected by curators in relation to identified curatorial decisions. METHODS A preliminary typology was developed by synthesizing the results of a systematic review with insights gained through an iterative consultation with an experienced curator of multiple recovery narrative collections. The preliminary typology informed the topic guide for semistructured interviews with a maximum variation sample of 30 curators from 7 different countries. All participants had the experience of curating narrative collections of the lived experiences of mental health service use, recovery, or madness. A multidisciplinary team conducted thematic analysis through constant comparison. RESULTS The final typology identified 6 themes, collectively referred to as VOICES, which stands for values and motivations, organization, inclusion and exclusion, control and collaboration, ethics and legal, and safety and well-being. A total of 26 subthemes related to curation decisions were identified. CONCLUSIONS The VOICES typology identifies the key decisions to consider when curating narrative collections about the lived experiences of mental health service use, recovery, or madness. It might be used as a theoretical basis for a good practice resource to support curators in their efforts to balance the challenges and sometimes conflicting imperatives involved in collecting, organizing, and sharing narratives. Future research might seek to document the use of such a tool by curators and hence examine how best to use VOICES to support decision making.

scholarly journals The VOICES Typology of Curatorial Decisions in Narrative Collections of the Lived Experiences of Mental Health Service Use, Recovery, or Madness: Qualitative Study

10.2196/16290 ◽  
2020 ◽  
Vol 7 (9) ◽  
pp. e16290 ◽  
Author(s):  
Caroline Yeo ◽  
Laurie Hare-Duke ◽  
Stefan Rennick-Egglestone ◽  
Simon Bradstreet ◽  
Felicity Callard ◽  
...  
Keyword(s):  
Mental Health ◽  
Decision Making ◽  
Mental Health Service ◽  
Health Service ◽  
Lived Experiences ◽  
Service Use ◽  
Good Practice ◽  
Well Being ◽  
Mental Health Service Use ◽  
Health Service Use

Background Collections of lived experience narratives are increasingly used in health research and medical practice. However, there is limited research with respect to the decision-making processes involved in curating narrative collections and the work that curators do as they build and publish collections. Objective This study aims to develop a typology of curatorial decisions involved in curating narrative collections presenting lived experiences of mental health service use, recovery, or madness and to document approaches selected by curators in relation to identified curatorial decisions. Methods A preliminary typology was developed by synthesizing the results of a systematic review with insights gained through an iterative consultation with an experienced curator of multiple recovery narrative collections. The preliminary typology informed the topic guide for semistructured interviews with a maximum variation sample of 30 curators from 7 different countries. All participants had the experience of curating narrative collections of the lived experiences of mental health service use, recovery, or madness. A multidisciplinary team conducted thematic analysis through constant comparison. Results The final typology identified 6 themes, collectively referred to as VOICES, which stands for values and motivations, organization, inclusion and exclusion, control and collaboration, ethics and legal, and safety and well-being. A total of 26 subthemes related to curation decisions were identified. Conclusions The VOICES typology identifies the key decisions to consider when curating narrative collections about the lived experiences of mental health service use, recovery, or madness. It might be used as a theoretical basis for a good practice resource to support curators in their efforts to balance the challenges and sometimes conflicting imperatives involved in collecting, organizing, and sharing narratives. Future research might seek to document the use of such a tool by curators and hence examine how best to use VOICES to support decision making.

The Protection of Mental Health Service Users' Human Rights in Andalusia (Spain) as part of 1 in 4 Anti-stigma Strategy

2012 ◽  
Author(s):  
Pablo Garcia-Cubillana de la Cruz ◽  
Aguila bono del Trigo ◽  
Vicente Ibanez Rojo ◽  
Evelyn Huizing
Keyword(s):  
Mental Health ◽  
Human Rights ◽  
Mental Health Service ◽  
Health Service ◽  
Service Users

scholarly journals Co-creating visual representations of safe spaces with mental health service users using photovoice and zoom

2021 ◽  
pp. 100059
Author(s):  
Julie Dare ◽  
Helen Seiver ◽  
Lesley Andrew ◽  
David Coall ◽  
Shantha Karthigesu ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Visual Representations ◽  
Service Users ◽  
Safe Spaces

Engagement of mental health service users and carers in care planning – Is it meaningful and adding value?

2021 ◽  
pp. 103985622110286
Author(s):  
Russ Scott ◽  
Andrew Aboud
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Service Users ◽  
Care Planning ◽  
Positive Outcomes ◽  
Engagement In Care ◽  
Health Care Planning ◽  
Meaningful Engagement ◽  
Meta Analyses

Objective: Consider whether mental health service users and carers meaningfully engage in care planning and whether care planning adds value to patient care. Conclusion: A review of the meta-analyses and systematic reviews of service users and carers identified many barriers to their meaningful engagement in care planning. No research has demonstrated any measurable benefits or positive outcomes linked to mental health care planning.

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