Prolonged Grief in Palliative Family Caregivers

2015 ◽  
Vol 72 (2) ◽  
pp. 151-164 ◽  
Author(s):  
Alexandra Coelho ◽  
Mayra Delalibera ◽  
António Barbosa ◽  
Peter Lawlor

Caregivers are particularly vulnerable to experience intense levels of distress following the loss. The aim of this prospective pilot study is to determine the incidence of prolonged grief disorder symptoms among caregivers. A total of 73 bereaved families responded to the Prolonged Grief Disorder Evaluation Instrument (PG-13) at 6 and 12 months following their loss. The incidence of prolonged grief disorder at the first assessment was 28.8%, and it decreased to 15.1% at the second assessment. The prevalence of prolonged grief disorder declined significantly over time ( p = .041). In the second evaluation, six bereaved individuals continued to meet criteria for a diagnosis of prolonged grief disorder, 15 remitted, and 4 new (incident) cases emerged. The important differences in values that occur after 12 months suggest time is important in distinguishing between those at risk for persistent distress and those whose grief symptomatology will decrease with time.

2017 ◽  
Vol 15 (5) ◽  
pp. 544-553 ◽  
Author(s):  
Alexandra Coelho ◽  
Cláudia Silva ◽  
António Barbosa

ABSTRACTObjective:This study aimed to contribute to the validation of the Portuguese version of the Prolonged Grief Disorder Questionnaire–Predeath (PG–12), examining its psychometric properties, including factorial, discriminant, and predictive validity. The prevalence of predeath prolonged grief disorder (PGD) and its psychosocial correlates were also analyzed.Method:The PG–12 was assessed in a sample of family caregivers (FCs) of oncological patients in palliative care. The factorial and discriminant validity of the PG–12 were evaluated by confirmatory factor analysis. The prevalence of predeath PGD was calculated and correlated with sociodemographic characteristics, perception of illness, intensity of care, coping, and caregiver burden. Prospective data were used to assess predictive validity.Results:The sample was composed of 94 FCs, mostly female (78.8%) and daughters (61.3%), with a mean age of 52.02 (SD = 12.87). The PG–12 has been shown to be reliable, to have high internal consistency, to be monofactorial in structure, and to be independent from depression, anxiety, and burden, although predeath grief influences these symptoms. In our sample, 33% met the criteria for predeath PGD. The circumstances and coping mechanisms are also correlated with predeath grief. The PG–12 has also been shown to be predictive of postdeath outcome.Significance of results:The PG–12 can be a useful screening tool for early identification of risk for maladjustment to loss among family caregivers.


2014 ◽  
Vol 44 (10) ◽  
pp. 1005-1012 ◽  
Author(s):  
M. Kaufman ◽  
B. Bebee ◽  
J. Bailey ◽  
R. Robbins ◽  
G. K. Hart ◽  
...  

2021 ◽  
Vol 12 (1) ◽  
pp. 1896126
Author(s):  
Gali Elinger ◽  
Ilanit Hasson-Ohayon ◽  
Eran Barkalifa ◽  
Paul A. Boelen ◽  
Tuvia Peri

2019 ◽  
Vol 2019 ◽  
pp. 1-7
Author(s):  
Achraf Laghmich ◽  
Fatima Zahra Alaoui Ismaili ◽  
Zeineb Zian ◽  
Amina Barakat ◽  
Naima Ghailani Nourouti ◽  
...  

Consanguinity is a social behavior characterized by the arrangement of marriages between relatives. It coincides generally with the geographic distribution of recessive genetic diseases as it increases the likelihood of homozygosis and, consequently, the incidence of their pathologies in the population. In this pilot study, we assess the effect of inbreeding on the burden of hemoglobinopathies in Northern Morocco. From January 2016 to December 2018, 197 children born in the studied region to three ancestral generations and diagnosed with hemoglobinopathies were subject to investigation. The rate of consanguinity in the parents’ generation of children with hemoglobinopathies was 50.25%, with first cousin marriages accounting for 68.69% of consanguineous unions (FI = 0.02). The corresponding rates in the general population, based on a sample of N = 900, were 29.67% and 82.02%, respectively. The marriages between first cousins are the most common among the other types of consanguineous unions. Our study propounds that consanguinity substantially contributes to the hemoglobinopathy burden in the studied region and has changed little over time. Refraining from consanguineous marriages and detecting couples at risk could contribute to the reduction of the incidence of genetic diseases in our country.


2014 ◽  
Author(s):  
A.H. Jordan ◽  
B.T. Litz

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