scholarly journals Performance of Self-Report to Establish Cancer Diagnoses in Disaster Responders and Survivors, World Trade Center Health Registry, New York, 2001–2007

2016 ◽  
Vol 131 (3) ◽  
pp. 420-429 ◽  
Author(s):  
Jiehui Li ◽  
James E. Cone ◽  
Abigail K. Alt ◽  
David R. Wu ◽  
Jonathan M. Liff ◽  
...  
Keyword(s):  
New York ◽  
World Trade ◽  
World Trade Center ◽  
Self Report ◽  
Trade Center ◽  
Health Registry

scholarly journals Hurricane Sandy Evacuation Among World Trade Center Health Registry Enrollees in New York City

2016 ◽  
Vol 10 (3) ◽  
pp. 411-419 ◽  
Author(s):  
Shakara Brown ◽  
Lisa M. Gargano ◽  
Hilary Parton ◽  
Kimberly Caramanica ◽  
Mark R. Farfel ◽  
...  
Keyword(s):  
New York ◽  
Physical Health ◽  
World Trade ◽  
World Trade Center ◽  
Hurricane Sandy ◽  
Adverse Outcomes ◽  
Community Cohesion ◽  
Poor Physical Health ◽  
Trade Center ◽  
Health Registry

AbstractObjectiveTimely evacuation is vital for reducing adverse outcomes during disasters. This study examined factors associated with evacuation and evacuation timing during Hurricane Sandy among World Trade Center Health Registry (Registry) enrollees.MethodsThe study sample included 1162 adults who resided in New York City’s evacuation zone A during Hurricane Sandy who completed the Registry’s Hurricane Sandy substudy in 2013. Factors assessed included zone awareness, prior evacuation experience, community cohesion, emergency preparedness, and poor physical health. Prevalence estimates and multiple logistic regression models of evacuation at any time and evacuation before Hurricane Sandy were created.ResultsAmong respondents who evacuated for Hurricane Sandy (51%), 24% had evacuated before the storm. In adjusted analyses, those more likely to evacuate knew they resided in an evacuation zone, had evacuated during Hurricane Irene, or reported pre-Sandy community cohesion. Evacuation was less likely among those who reported being prepared for an emergency. For evacuation timing, evacuation before Hurricane Sandy was less likely among those with pets and those who reported 14 or more poor physical health days.ConclusionsHigher evacuation rates were observed for respondents seemingly more informed and who lived in neighborhoods with greater social capital. Improved disaster messaging that amplifies these factors may increase adherence with evacuation warnings. (Disaster Med Public Health Preparedness. 2016;10:411–419)

scholarly journals Hospitalizations among World Trade Center Health Registry Enrollees Who Were under 18 Years of Age on 9/11, 2001–2016

2021 ◽  
Vol 18 (14) ◽  
pp. 7527
Author(s):  
Lisa M. Gargano ◽  
Sean H. Locke ◽  
Howard E. Alper ◽  
Jennifer Brite
Keyword(s):  
Mental Health ◽  
New York ◽  
Physical Health ◽  
World Trade ◽  
World Trade Center ◽  
Dust Cloud ◽  
Health Condition ◽  
Ptsd Symptoms ◽  
Trade Center ◽  
Health Registry

Much of the literature on hospitalizations post-September 11, 2001 (9/11) focuses on adults but little is known about post-9/11 hospitalizations among children. Data for World Trade Center Health Registry enrollees who were under 18-years old on 9/11 were linked to New York State hospitalization data to identify hospitalizations from enrollment (2003–2004) to December 31, 2016. Logistic regression was used to analyze factors associated with hospitalization. Of the 3151 enrollees under age 18 on 9/11, 243 (7.7%) had at least one 9/11-related physical health hospitalization and 279 (8.9%) had at least one 9/11-related mental health hospitalization. Individuals of non-White race, those living in New York City Housing Authority housing, those exposed to the dust cloud on 9/11, and those with probable 9/11-related PTSD symptoms were more likely to be hospitalized for a 9/11-related physical health condition. Older age and having probable 9/11-related PTSD symptoms at baseline were associated with being hospitalized for a 9/11-related mental health condition. Dust cloud exposure on 9/11 and PTSD symptoms were associated with hospitalizations among those exposed to 9/11 as children. Racial minorities and children living in public housing were at greater risk of hospitalization. Continued monitoring of this population and understanding the interplay of socioeconomic factors and disaster exposure will be important to understanding the long-term effects of 9/11.

scholarly journals Comparison of prevalence and exposure-disease associations using self-report and hospitalization data among enrollees of the world trade center health registry

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Howard E. Alper ◽  
Jennifer Brite ◽  
James E. Cone ◽  
Robert M. Brackbill
Keyword(s):  
New York ◽  
Chronic Diseases ◽  
Administrative Data ◽  
World Trade Center ◽  
New York State ◽  
Disease Prevalence ◽  
Self Report ◽  
Disease Associations ◽  
Trade Center ◽  
Health Registry

Abstract Background Although many studies have investigated agreement between survey and hospitalization data for disease prevalence, it is unknown whether exposure-chronic disease associations vary based on data collection method. We investigated agreement between self-report and administrative data for the following: 1) disease prevalence, and 2) the accuracy of self-reported hospitalization in the last 12 months, and 3) the association of seven chronic diseases (rheumatoid arthritis, hypertension, heart attack, stroke, asthma, diabetes, hyperlipidemia) with four measures of 9/11 exposure. Methods Enrollees of the World Trade Center Health Registry who resided in New York State were included (N = 18,206). Hospitalization data for chronic diseases were obtained from the New York State Planning and Research Cooperative System (SPARCS). Prevalence for each disease and concordance measures (kappa, sensitivity, specificity, positive agreement, and negative agreement) were calculated. In addition, the associations of the seven chronic diseases with the four measures of exposure were evaluated using logistic regression. Results Self-report disease prevalence ranged from moderately high (40.5% for hyperlipidemia) to low (3.8% for heart attack). Self-report prevalence was at least twice that obtained from administrative data for all seven chronic diseases. Kappa ranged from 0.35 (stroke) to 0.04 (rheumatoid arthritis). Self-reported hospitalizations within the last 12 months showed little overlap with actual hospitalization data. Agreement for exposure-disease associations was good over the twenty-eight exposure-disease pairs studied. Conclusions Agreement was good for exposure-disease associations, modest for disease prevalence, and poor for self-reported hospitalizations. Neither self-report nor administrative data can be treated as the “gold standard.” Which source to use depends on the availability and context of data, and the disease under study.

Considerations for future disaster registries

2018 ◽  
Vol 27 (3) ◽  
pp. 321-333 ◽  
Author(s):  
Lysa Petrsoric ◽  
Sara A. Miller-Archie ◽  
Alice Welch ◽  
James Cone ◽  
Mark Farfel
Keyword(s):  
World Trade ◽  
Effective Means ◽  
World Trade Center ◽  
Phone Call ◽  
Outreach Program ◽  
Content Type ◽  
Trade Center ◽  
Health Registry ◽  
Post Disaster

Purpose The purpose of this paper is to evaluate the effectiveness of a targeted outreach program that referred World Trade Center Health Registry (Registry) enrollees, to specific post-disaster health care available through the World Trade Center Health Program (WTCHP) and evaluate differences in outreach effectiveness based on demographic and health characteristics. Design/methodology/approach The Registry’s Treatment Referral Program (TRP) targeted 22,981 enrollees based on symptoms and conditions known to be related to 9/11, reported on a 2011-2012 follow-up survey. A call vendor was utilized for the initial outreach phone call. Enrollees who requested a WTCHP application had follow-up from TRP staff, which typically included 4-6 interactions per enrollee until outreach was completed. Findings As of 12/31/2015, the vendor had reached 8,778 (38 percent) of the targeted sample. TRP staff spoke to 6,016 (68 percent) enrollees reached by the vendor, 5,554 (92 percent) of whom requested a WTCHP application, and 2,425 (43 percent) reported having submitted the WTCHP application. Application requests and submissions differed by survivor or responder status, race, income and health symptoms. Originality/value Registries created for surveillance and research among disaster-exposed populations provide a unique and effective outreach approach. A dedicated treatment referral unit within a disaster registry is an effective means for conducting post-disaster outreach to a large, diverse sample of exposed individuals.

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