Considerations for future disaster registries

2018 ◽  
Vol 27 (3) ◽  
pp. 321-333 ◽  
Author(s):  
Lysa Petrsoric ◽  
Sara A. Miller-Archie ◽  
Alice Welch ◽  
James Cone ◽  
Mark Farfel
Keyword(s):  
World Trade ◽  
Effective Means ◽  
World Trade Center ◽  
Phone Call ◽  
Outreach Program ◽  
Content Type ◽  
Trade Center ◽  
Health Registry ◽  
Post Disaster

Purpose The purpose of this paper is to evaluate the effectiveness of a targeted outreach program that referred World Trade Center Health Registry (Registry) enrollees, to specific post-disaster health care available through the World Trade Center Health Program (WTCHP) and evaluate differences in outreach effectiveness based on demographic and health characteristics. Design/methodology/approach The Registry’s Treatment Referral Program (TRP) targeted 22,981 enrollees based on symptoms and conditions known to be related to 9/11, reported on a 2011-2012 follow-up survey. A call vendor was utilized for the initial outreach phone call. Enrollees who requested a WTCHP application had follow-up from TRP staff, which typically included 4-6 interactions per enrollee until outreach was completed. Findings As of 12/31/2015, the vendor had reached 8,778 (38 percent) of the targeted sample. TRP staff spoke to 6,016 (68 percent) enrollees reached by the vendor, 5,554 (92 percent) of whom requested a WTCHP application, and 2,425 (43 percent) reported having submitted the WTCHP application. Application requests and submissions differed by survivor or responder status, race, income and health symptoms. Originality/value Registries created for surveillance and research among disaster-exposed populations provide a unique and effective outreach approach. A dedicated treatment referral unit within a disaster registry is an effective means for conducting post-disaster outreach to a large, diverse sample of exposed individuals.

scholarly journals Respiratory Health of 985 Children Exposed to the World Trade Center Disaster: Report on World Trade Center Health Registry Wave 2 Follow-up, 2007–2008

2013 ◽  
Vol 50 (4) ◽  
pp. 354-363 ◽  
Author(s):  
Steven D. Stellman ◽  
Pauline A. Thomas ◽  
Sukhminder S. Osahan ◽  
Robert M. Brackbill ◽  
Mark R. Farfel
Keyword(s):  
World Trade ◽  
Respiratory Health ◽  
World Trade Center ◽  
World Trade Center Disaster ◽  
The World ◽  
Trade Center ◽  
Health Registry

scholarly journals Persistent Hearing Loss among World Trade Center Health Registry Residents, Passersby and Area Workers, 2006–2007

2019 ◽  
Vol 16 (20) ◽  
pp. 3864
Author(s):  
James E. Cone ◽  
Cheryl R. Stein ◽  
David J. Lee ◽  
Gregory A. Flamme ◽  
Jennifer Brite
Keyword(s):  
Hearing Loss ◽  
World Trade ◽  
World Trade Center ◽  
Dust Cloud ◽  
Potential Association ◽  
Disaster Survivors ◽  
Trade Center ◽  
Health Registry ◽  
Hearing Problems

Background: Prior studies have found that rescue and recovery workers exposed to the 9/11 World Trade Center (WTC) disaster have evidence of increased persistent hearing and other ear-related problems. The potential association between WTC disaster exposures and post-9/11 persistent self-reported hearing problems or loss among non-rescue and recovery survivors has not been well studied. Methods: We used responses to the World Trade Center Health Registry (Registry) enrollment survey (2003–2004) and first follow-up survey (2006–2007) to model the association between exposure to the dust cloud and persistent hearing loss (n = 22,741). Results: The prevalence of post-9/11 persistent hearing loss among survivors was 2.2%. The adjusted odds ratio (aOR) of hearing loss for those who were in the dust cloud and unable to hear was 3.0 (95% CI: 2.2, 4.0). Survivors with persistent sinus problems, headaches, PTSD and chronic disease histories had an increased prevalence of reported hearing problems compared to those without symptoms or chronic problems. Conclusions: In a longitudinal study, we observed an association between WTC-related exposures and post-9/11 self-reported hearing loss among disaster survivors.

scholarly journals Post-9/11 Mental Health Comorbidity Predicts Self-Reported Confusion or Memory Loss in World Trade Center Health Registry Enrollees

2020 ◽  
Vol 17 (19) ◽  
pp. 7330
Author(s):  
Howard E. Alper ◽  
Rifat A. Tuly ◽  
Kacie Seil ◽  
Jennifer Brite
Keyword(s):  
Mental Health ◽  
World Trade ◽  
World Trade Center ◽  
Memory Loss ◽  
Health Conditions ◽  
Mental Health Conditions ◽  
Binomial Regression ◽  
Trade Center ◽  
Health Registry ◽  
World Trade Center Attacks

Numerous studies report elevated levels of chronic mental health conditions in those exposed to the World Trade Center attacks of 11 September 2001 (9/11), but few studies have examined the incidence of confusion or memory loss (CML) or its association with mental health in 9/11 attack survivors. We investigated the incidence of CML and its association with the number of post-9/11 mental health conditions (PTSD, depression, and anxiety) in 10,766 World Trade Center Health Registry (Registry) enrollees aged 35–64 at the time of the wave 4 survey (2015–2016) that completed all four-wave surveys and met the study inclusion criteria. We employed log-binomial regression to evaluate the associations between CML and the number of mental health conditions. A total of 20.2% of enrollees in the sample reported CML, and there was a dose-response relationship between CML and the number of mental health conditions (one condition: RR = 1.85, 95% CI (1.65, 2.09); two conditions: RR = 2.13, 95% CI (1.85, 2.45); three conditions: RR = 2.51, 95% CI (2.17, 2.91)). Survivors may be experiencing confusion or memory loss partly due to the mental health consequences of the 9/11 attacks. Clinicians treating patients with mental health conditions should be aware of potential cognitive impairment.

scholarly journals An Overview of 9/11 Experiences and Respiratory and Mental Health Conditions among World Trade Center Health Registry Enrollees

2008 ◽  
Vol 85 (6) ◽  
pp. 880-909 ◽  
Author(s):  
Mark Farfel ◽  
Laura DiGrande ◽  
Robert Brackbill ◽  
Angela Prann ◽  
James Cone ◽  
...  
Keyword(s):  
Mental Health ◽  
World Trade ◽  
World Trade Center ◽  
Health Conditions ◽  
Mental Health Conditions ◽  
Trade Center ◽  
Health Registry

scholarly journals Hurricane Sandy Evacuation Among World Trade Center Health Registry Enrollees in New York City

2016 ◽  
Vol 10 (3) ◽  
pp. 411-419 ◽  
Author(s):  
Shakara Brown ◽  
Lisa M. Gargano ◽  
Hilary Parton ◽  
Kimberly Caramanica ◽  
Mark R. Farfel ◽  
...  
Keyword(s):  
New York ◽  
Physical Health ◽  
World Trade ◽  
World Trade Center ◽  
Hurricane Sandy ◽  
Adverse Outcomes ◽  
Community Cohesion ◽  
Poor Physical Health ◽  
Trade Center ◽  
Health Registry

AbstractObjectiveTimely evacuation is vital for reducing adverse outcomes during disasters. This study examined factors associated with evacuation and evacuation timing during Hurricane Sandy among World Trade Center Health Registry (Registry) enrollees.MethodsThe study sample included 1162 adults who resided in New York City’s evacuation zone A during Hurricane Sandy who completed the Registry’s Hurricane Sandy substudy in 2013. Factors assessed included zone awareness, prior evacuation experience, community cohesion, emergency preparedness, and poor physical health. Prevalence estimates and multiple logistic regression models of evacuation at any time and evacuation before Hurricane Sandy were created.ResultsAmong respondents who evacuated for Hurricane Sandy (51%), 24% had evacuated before the storm. In adjusted analyses, those more likely to evacuate knew they resided in an evacuation zone, had evacuated during Hurricane Irene, or reported pre-Sandy community cohesion. Evacuation was less likely among those who reported being prepared for an emergency. For evacuation timing, evacuation before Hurricane Sandy was less likely among those with pets and those who reported 14 or more poor physical health days.ConclusionsHigher evacuation rates were observed for respondents seemingly more informed and who lived in neighborhoods with greater social capital. Improved disaster messaging that amplifies these factors may increase adherence with evacuation warnings. (Disaster Med Public Health Preparedness. 2016;10:411–419)

scholarly journals Characterizing Mental Health Treatment Utilization among Individuals Exposed to the 2001 World Trade Center Terrorist Attacks 14–15 Years Post-Disaster

2019 ◽  
Vol 16 (4) ◽  
pp. 626 ◽  
Author(s):  
Melanie H. Jacobson ◽  
Christina Norman ◽  
Pablo Sadler ◽  
Lysa J. Petrsoric ◽  
Robert M. Brackbill
Keyword(s):  
Mental Health ◽  
Mental Health Treatment ◽  
World Trade ◽  
World Trade Center ◽  
Traumatic Experiences ◽  
Treatment Utilization ◽  
Health Treatment ◽  
Trade Center ◽  
Post Disaster ◽  
Wtc Attacks

Following the World Trade Center (WTC) attacks in New York City (NYC) on 11 September 2001 (9/11), thousands in NYC experienced significant stress reactions and disorders, presenting an immediate need for counseling and treatment. While other studies documented post-9/11 mental health treatment utilization, none have data more than two years post-disaster. We used data from 35,629 enrollees of the WTC Health Registry, a longitudinal cohort study of those exposed to the WTC attacks, to examine predictors of counseling after 9/11, the types of practitioners seen, and the perceived helpfulness of therapy up to 15 years post-disaster. Among enrollees, 37.7% reported receiving counseling at some time after 9/11. Predictors of seeking counseling included race/ethnicity, age at 9/11, education level, exposure to the WTC attacks, other traumatic experiences, mental health symptomology, and pre-9/11 counseling. Whites and Hispanics, those who were children on 9/11, and those with high levels of exposure to the WTC attacks sought counseling soonest after 9/11. Among those who sought counseling, Blacks, Asians, and those with lower education and income were less likely to see mental health specialists and more likely to see general practitioners or religious advisors. Finally, among those who sought recent counseling, women, Blacks, those aged ≥65 years, and those with very high WTC exposures were more likely to rate their recent counseling as very helpful. This study used data up to 15 years post-disaster to document mental health treatment utilization patterns, trends, and disparities that have implications for future preparedness plans and needs assessments.

scholarly journals A Cognitive Reserve and Social Support-Focused Latent Class Analysis to Predict Self-Reported Confusion or Memory Loss among Middle-Aged World Trade Center Health Registry Enrollees

2019 ◽  
Vol 16 (8) ◽  
pp. 1401 ◽  
Author(s):  
Kacie Seil ◽  
Shengchao Yu ◽  
Howard Alper
Keyword(s):  
Social Support ◽  
Latent Class Analysis ◽  
World Trade ◽  
Cognitive Reserve ◽  
Latent Class ◽  
World Trade Center ◽  
Memory Loss ◽  
Trade Center ◽  
Health Registry ◽  
Ptsd Group

The World Trade Center Health Registry includes 9/11 survivors who have been surveyed about their health conditions over time. The prevalence of posttraumatic stress disorder (PTSD) remains high among the cohort and is a risk factor for cognitive impairment or dementia. We thus sought to examine the degree to which confusion or memory loss (CML)—potential symptoms of cognitive decline—are occurring among enrollees aged 35–64 years. Cognitive reserve theory suggests that higher levels of education and engaging in cognitively challenging activities can create stronger neural connections, offering protection against cognitive decline. We hypothesized that enrollees with less cognitive reserve would be more likely to report CML. In this study, we: (1) estimated the incidence of CML in our study sample; (2) identified indicators of cognitive reserve (e.g., indicators of educational attainment, social support); and (3) determined whether CML is associated with cognitive reserve level, stratified by PSTD status. First, we described demographics of the study sample (n = 14,574) and probable PTSD status, also stratifying by CML. Next, we conducted a latent class analysis on two groups: those with probable PTSD and those without probable PTSD, creating classes with varying cognitive reserve levels. Finally, using adjusted log binomial models, we predicted risk of CML based on cognitive reserve level. The probable PTSD group (n = 1213) and not probable PTSD group (n = 13,252) each had four latent classes: low, medium-low, medium-high, and high cognitive reserve. In the probable PTSD model, compared to the high cognitive reserve class, those with medium-low cognitive reserve were 35% more likely to report CML (relative risk (RR) = 1.4, 95% confidence interval (CI): 1.1, 1.7). Among the not probable PTSD group, those with low and medium levels of cognitive reserve were significantly more likely to report CML (RR = 1.8 and 1.4, respectively). Overall, those with less cognitive reserve were more likely to report CML regardless of PTSD status.

Flashbulb Memories of Personal Events of 9/11 and the Day after for a Sample of New York City Residents

2004 ◽  
Vol 95 (1) ◽  
pp. 304-310 ◽  
Author(s):  
Cheryl M. Paradis ◽  
Faith Florer ◽  
Linda Zener Solomon ◽  
Theresa Thompson
Keyword(s):  
New York ◽  
New York City ◽  
York City ◽  
World Trade ◽  
World Trade Center ◽  
Time Of Day ◽  
Stressful Events ◽  
World Trade Center Attack ◽  
Trade Center

The present study assessed consistency of recollections of personal circumstances of the 9/11 World Trade Center attack and events of the day before (9/10), and the day after (9/12), in a sample of 100 New York City college students. The day before 9/11 represented an ordinary event. A questionnaire was administered twice, 1 wk. and 1 yr. after the 9/11 attack. Students were asked to describe their personal circumstances when hearing about the news of the World Trade Center attack and for the same time of day for 9/10 and 9/12. 18 students returned the follow-up questionnaire. Consistency of initial and follow-up responses for the central categories for both 9/11 and 9/12 of where, who, and activity was very high (9/11: “Where”-100%, “Who”-100%, “What”-94%; 9/12: “Where”-100%, “Who”-100%, “What”-80%). Recollections of 9/10 were significantly less consistent (“Where”-79%, “Who”-71%, “What”-71%). Analysis indicated that students formed vivid, consistent recollections during the events of both 9/11 and 9/12. It is likely that the events of 9/12 also became flashbulb memories, vivid recollections of traumatic events, because the emotional impact of the stressful events, i.e., police and military presence, disrupted schedules, relating to the 9/11 attack endured beyond the day of the attack.

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