Quality of Life of College Students Living With Type 1 Diabetes

2016 ◽  
Vol 38 (12) ◽  
pp. 1595-1610 ◽  
Author(s):  
Judy Fredette ◽  
Barbara Mawn ◽  
Korey Hood ◽  
James Fain
Keyword(s):  
Quality Of Life ◽  
College Students ◽  
Type 1 Diabetes ◽  
Perceived Quality ◽  
Valuable Insight ◽  
Structured Interviews ◽  
Perceived Quality Of Life ◽  
The Impact

The purpose of this phenomenological qualitative study was to examine the quality of life among college students living with Type 1 diabetes (T1D). Inclusion criteria included age 18 to 24, current college student, and a diagnosis of T1D for at least 1 year. Semi-structured interviews were conducted, in-person and by phone. During these interviews, college students shared stories of living with T1D and its impact on their quality of life. Three major themes emerged, which included “planning ahead,” “thinking positive,” and “seeking support.” These findings provide a better understanding of the transitional experience of living with T1D and the impact on perceived quality of life while attending college. Techniques and strategies aimed at the enhancement of perceived quality of life for college students living with T1D were identified. These findings will provide valuable insight for professionals working with this population.

P–499 infertility impact on perceived quality of life and sexual satisfaction in Spanish women with primary and secondary infertility

2021 ◽  
Vol 36 (Supplement_1) ◽  
Author(s):  
N Uriart. Beitia ◽  
P Guerr. Mora ◽  
M Penad. Abilleira
Keyword(s):  
Quality Of Life ◽  
Sexual Satisfaction ◽  
Measurement Instrument ◽  
Perceived Quality ◽  
Secondary Infertility ◽  
Infertile Women ◽  
Fertility Treatments ◽  
Perceived Quality Of Life ◽  
The Impact

Abstract Study question Are there any differences relating to the perceived quality of life (QoL) and sexual satisfaction among infertile women? Summary answer There were no differences between women who already had a baby and those who did not relating to the perceived QoL and sexual satisfaction. What is known already Infertility is a medical disease with a high social component with a 16% prevalence. There have been many investigations regarding to the physical part of the infertility but the sexual and marital satisfaction has not been as intensively investigated. The importance of the psychological counseling in fertility treatments has already been proven, but the significance of sexual satisfaction on individual’s perception on QoL has not been as deeply studied. Study design, size, duration A transversal descriptive study was done. 313 heterosexual married women with fertility problems were recruited in collaboration with the Spanish patient association “Red Nacional de Infértiles”. The Fertility quality of life tool (FertiQoL) was selected to measure the perceived QoL and the Index of Sexual Satisfaction (ISS) was chosen to study the degree of sexual satisfaction. The data collection was made between January and February 2020 and all the information was gathered online. Participants/materials, setting, methods 313 women filled the questionnaire which had 4 different modules: A sociodemographic module (sex, age, studies, time trying to conceive, moment of treatment and offspring), two modules for each measurement instrument and a last module in which they could write their personal experiences regarding to the infertility journey. ANOVA and t-Student statistical analyses were done to compare the different independent variables. To see if FertiQoL could explain the sexual satisfaction a regression analysis was made. Main results and the role of chance To achieve 95% power (α = 0.05) and an effect size of 0.25, a minimum sample size of 210 was needed and a sample of 313 women was recruited. There were no statistical differences between women with previous offspring and those who did not in neither of the FertiQoL subscales (Emotional: 7,4 ± 3,884 vs. 7,34 ± 4,235; Mind/Body: 9,65 ± 5,098 vs. 8,66 ± 4,979; Relational: 16,88 ± 4,807 vs. 16,3 ± 4,956; Social: 10,52 ± 5,02 vs. 10,1 ± 4,801; Tolerability: 5,91 ± 4,114 vs. 6,65 ± 3,357; Environment: 12,71 ± 5,02 vs. 11,42 ± 4,963) nor in the ISS questionnaire (47,48 ± 6,488 vs. 47,22 ± 7,35). Regarding to the power of the FertiQoL instrument and the perceived QoL to predict the sexual satisfaction, the regression model showed that the sexual satisfaction could be explained in 26,3% of the cases by the relational and mind/body subscales of the FertiQol tool. This model showed the inherent relationship between marital and personal wellbeing in order to obtain a better sexual satisfaction. Limitations, reasons for caution As the study had a transversal design, no cause-effect relationships could be done. It would be desirable to establish a longitudinal study in order to determine a more accurate relationship between the studied variables. Wider implications of the findings: This study showed that the impact of infertility in women with secondary infertility diagnose could be at least as high as in women with primary infertility diagnose. FertiQoL would be a reasonable instrument to estimate the sexual satisfaction of infertile women. Sexology should be part of the infertility counselling programs. Trial registration number Not applicable

scholarly journals Poorer Quality of Life and Treatment Satisfaction is Associated with Diabetic Retinopathy in Patients with Type 1 Diabetes without Other Advanced Late Complications

2019 ◽  
Vol 8 (3) ◽  
pp. 377 ◽  
Author(s):  
Minerva Granado-Casas ◽  
Esmeralda Castelblanco ◽  
Anna Ramírez-Morros ◽  
Mariona Martín ◽  
Nuria Alcubierre ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Diabetic Retinopathy ◽  
Treatment Satisfaction ◽  
Vision Loss ◽  
Multivariable Analysis ◽  
Work Life ◽  
The Impact

Diabetic retinopathy (DR) may potentially cause vision loss and affect the patient’s quality of life (QoL) and treatment satisfaction (TS). Using specific tools, we aimed to assess the impact of DR and clinical factors on the QoL and TS in patients with type 1 diabetes. This was a cross-sectional, two-centre study. A sample of 102 patients with DR and 140 non-DR patients were compared. The Audit of Diabetes-Dependent Quality of Life (ADDQoL-19) and Diabetes Treatment Satisfaction Questionnaire (DTSQ-s) were administered. Data analysis included bivariate and multivariable analysis. Patients with DR showed a poorer perception of present QoL (p = 0.039), work life (p = 0.037), dependence (p = 0.010), and had a lower average weighted impact (AWI) score (p = 0.045). The multivariable analysis showed that DR was associated with a lower present QoL (p = 0.040), work life (p = 0.036) and dependence (p = 0.016). With regards to TS, DR was associated with a higher perceived frequency of hypoglycaemia (p = 0.019). In patients with type 1 diabetes, the presence of DR is associated with a poorer perception of their QoL. With regard to TS, these subjects also show a higher perceived frequency of hypoglycaemia.

Family functioning and quality of life in adolescents with type 1 diabetes: The role of dissimilarity in illness representations and school support

2019 ◽  
Vol 25 (2) ◽  
pp. 494-506
Author(s):  
Ana C Almeida ◽  
M Engrácia Leandro ◽  
M Graça Pereira
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Family Functioning ◽  
Illness Perceptions ◽  
Illness Perception ◽  
Negative Relationship ◽  
School Support ◽  
The Impact

This study analyzed the impact of dissimilarities in illness perceptions between parents and adolescents, school support, and family functioning on quality of life of adolescents with type 1 diabetes (T1D). A total of 100 adolescents diagnosed with T1D for at least 1 year and a primary caregiver participated in the study (N=200). Adolescents answered the Diabetes Quality of Life and the School Support Questionnaire, and parents answered the general functioning subscale of the Family Assessment Device. Both answered the Brief-Illness Perception Questionnaire, regarding the adolescents’ diabetes. The interception effect of dissimilarities regarding identity and concerns perceptions toward diabetes, between parents and adolescents, and school support in the relationship between family functioning and quality of life was significant and explained 27% and 32% of the variance, respectively. The results showed a negative relationship between family functioning and quality of life when school support was low and dissimilarities in identity and concerns perceptions were high. Therefore, to increase quality of life of adolescents with T1D, intervention programs should include family, teachers, school staff, and peers to improve their knowledge of diabetes and support to adolescents.

scholarly journals The Effect of Sports on Perceived Quality of Life of People with Visual Disability

2018 ◽  
Vol 20 (4) ◽  
pp. 289
Author(s):  
Ronailde Braga Guerra ◽  
Jaqueline Freitas de Oliveira Neiva ◽  
Pedro Manoel dos Santos ◽  
Ericson Oliveira de Aragão ◽  
Leonardo Pimenta ◽  
...  
Keyword(s):  
Quality Of Life ◽  
General Health ◽  
Perceived Quality ◽  
Visual Disability ◽  
Visual Disorder ◽  
Perceived Quality Of Life ◽  
Different Characteristics ◽  
The Impact ◽  
Physically Inactive

A prática esportiva melhora a qualidade de vida de pessoas com diferentes características, mas ainda não há informações sobre o impacto do esporte na qualidade de vida de pessoas com deficiência visual. O objetivo deste estudo foi identificar a percepção da qualidade de vida de atletas cegos de futebol de cinco e de goalball e compará-la com a qualidade de vida percebida de pessoas com deficiência visual fisicamente inativas. Trinta e sete homens com deficiência visual, separados em três grupos: 12 atletas de futebol de cinco (idade: M = 27,3 anos, DP = 10,2), 13 atletas de goalball (idade: M = 30,3 anos, DP = 7,0) e 12 pessoas fisicamente inativas (idade: M = 25,3 anos, DP = 2,3), responderam ao questionário WHOQOL-Bref. Atletas com deficiência visual obtiveram maior pontuação na Qualidade de Vida Global e Saúde Geral e em todos os domínios do WHOQOL-Bref do que pessoas fisicamente inativas. Não houve diferença entre a qualidade de vida percebida dos atletas de futebol e de goalball. Portanto, a despeito do tipo de esporte, sua prática está relacionada a uma melhor qualidade de vida de pessoas com deficiência visual.Palavras-chave: Cego. Futebol de Cegos. Futebol de Cinco. Goalball. WHOQOL-Bref.AbstractSports practice improves quality of life of people with different characteristics, but there is still no information about the impact of sport on quality of life among people with visual disorder. The aim of this study was to identify the perceived quality of life of blind football and goalball athletes and to compare it to perceived quality of life of physically inactive people with visual disorder. Thirty seven men with visual disorder, separated into three groups: 12 blind football athletes (age: M = 27.3 years, SD = 10.2), 13 goalball athletes (age: M = 30.3 years, SD = 7.0) and 12 physically inactive people (age: M = 25.3 years, SD = 2.3), answered the WHOQOL-Bref questionnaire. Athletes with visual disorder obtained a higher score in the Overall Quality of Live and General Health and in all domains of the WHOQOL-Bref than physically inactive people. There was no difference between the perceived quality of life of football and goalball athletes. Therefore, despite the type of sport, its practice is related to a better quality of life of people with visual disorder.Keywords: Blind. Blind Football. Football Five-a-side. Goalball. WHOQOL-Bref.

scholarly journals The Relationship Between Responsible Tourism Practice, Destination Sustainability and Quality of Life: Perspective of Marine National Park Communities

2021 ◽  
Vol 16 (5) ◽  
pp. 895-901
Author(s):  
Thanin Sangkhaduang ◽  
Parichart Visuthismajarn ◽  
Noodchanath Kongchouy
Keyword(s):  
Quality Of Life ◽  
National Park ◽  
Structural Equation ◽  
Perceived Quality ◽  
Ethical Consumption ◽  
Equation Modeling ◽  
Perceived Quality Of Life ◽  
The Impact ◽  
Responsible Tourism

An ideal responsible tourism practice has become the most significant role and principle for modern sustainable tourism development concept. Responsible tourism practice promotes better for tourists visit and enhances the quality of life of host communities in the destination by encouraging ethical consumption and production in all stakeholders. This paper attempted to determine the impact of host communities’ perceived responsible tourism practice on perceived destination sustainability and their quality of life as well as the impact of host communities’ perceived destination sustainability on perceived quality of life. The study was conducted with 355 participants from host communities in Haad Chao Mai Marine National Park, Thailand. Self-administered questionnaires were used to collect the data. The collected data were analyzed by using structural equation modeling (SEM). The results revealed that perceived responsible tourism practice had a significant impact on perceived destination sustainability and perceived quality of life. Additionally, perceived destination sustainability influenced perceived quality of life. As such, embedding responsible tourism practice in destination development plan can enable destination sustainability and better quality of life of host communities and it might make the park successful ecotourism destination.

scholarly journals ‘Never again will I be carefree’: a qualitative study of the impact of hypoglycemia on quality of life among adults with type 1 diabetes

2021 ◽  
Vol 9 (1) ◽  
pp. e002322
Author(s):  
Hannah Chatwin ◽  
Melanie Broadley ◽  
Mette Valdersdorf Jensen ◽  
Christel Hendrieckx ◽  
Jill Carlton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Social Life ◽  
Limited Participation ◽  
Personal Impact ◽  
Fear Of Hypoglycemia ◽  
The Uk ◽  
The Impact

IntroductionAchieving glycemic targets and optimizing quality of life (QoL) are important goals of type 1 diabetes care. Hypoglycemia is a common barrier to achieving targets and can be associated with significant distress. However, the impact of hypoglycemia on QoL is not fully understood. The aim of this study was to explore how adults with type 1 diabetes are impacted by hypoglycemia in areas of life that are important to their overall QoL.Research design and methodsParticipants responded to a web-based qualitative survey involving a novel ‘Wheel of Life’ activity. Responses were analyzed using reflexive thematic analysis.ResultsThe final sample included 219 adults with type 1 diabetes from Denmark, Germany, the Netherlands, and the UK. They had a mean±SD age of 39±13 years and diabetes duration of 20±14 years. Participants identified eight areas of life important to their overall QoL, including relationships and social life, work and studies, leisure and physical activity, everyday life, sleep, sex life, physical health, and mental health. Participants reported emotional, behavioral, cognitive, and social impacts of hypoglycemia within domains. Across domains, participants described interruptions, limited participation in activities, exhaustion, fear of hypoglycemia, compensatory strategies to prevent hypoglycemia, and reduced spontaneity.ConclusionsThe findings emphasize the profound impact of hypoglycemia on QoL and diabetes self-care behaviors. Diabetes services should be aware of and address the burden of hypoglycemia to provide person-centered care. Clinicians could ask individuals how hypoglycemia affects important areas of their lives to better understand the personal impact and develop tailored management plans.

Assessment quality of life as a factor for the improvement of patient-focused therapy of the preschool children with type 1 diabetes

2021 ◽  
Author(s):  
И.Л. Никитина ◽  
А.О. Плаксина ◽  
А.В. Павлов ◽  
И.А. Кельмансон
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Preschool Children ◽  
Well Being ◽  
Self Report ◽  
Total Quality ◽  
Everyday Functioning ◽  
The Impact

Оценка качества жизни с точки зрения ребенка, больного сахарным диабетом 1 типа, и его родителей имеет важность для планирования терапии, но может существенно различаться. Целью работы было оценить качество жизни детей дошкольного возраста и их матерей для оптимизации пациент-ориентированных схем лечения и улучшения метаболического контроля диабета. Обследованы 35 детей в возрасте 4-6 лет (19 мальчиков и 16 девочек), больных сахарным диабетом 1 типа, находящихся на лечении в клинике Центра. Для оценки качества жизни использовали русифицированную версию опросника KINDL для детей дошкольного возраста и их матерей. Оценка проводилась по шкалам физического и эмоционального благополучия, самооценки, семейных отношений, взаимоотношения с друзьями, ежедневного функционирования, влияния заболевания, а также суммарных показателей качества жизни по 100-балльной шкале. Статистическая обработка данных проведена с использованием прикладной программы JAMOVI 1.6. Статистически значимые различия были выявлены по шкале суммарной оценки качества жизни, а также по шкалам влияния заболевания и эмоционального благополучия на качество жизни. Установлены более низкие оценки суммарного качества жизни, а также влияния на него заболевания, по мнению матерей по сравнению с детьми с сахарным диабетом 1 типа. Напротив, оценка влияния эмоционального благополучия на качество жизни при сахарном диабете 1 типа была более высокой со стороны матерей по сравнению с их детьми. Наиболее значимое модифицирующее влияние на исследуемые показатели было установлено по факторам образования матери, семейного положения, способа введения инсулина и улучшения контроля диабета. Оценка качества жизни может различаться по мнению детей с сахарным диабетом 1 типа и их матерей. Выявленные особенности рекомендуется использовать в планировании пациент-ориентированных программ лечения диабета и в работе школ сахарного диабета. Assessment of Health Related Quality of Life (HRQoL) features frequently assesses both the child and their mothers perspectives in preschool children with diabetes mellitus type 1 (T1DM), but parent-proxy and child self-reports may differ, and knowledge of these differences are not enough. The aim was to investigate HRQoL assessed by preschool children with T1DM and by their mothers, potential differences in the children-maternal estimates and the factors influencing these discrepancies. 35 preschool children (16 girls from 4-to-6-year-old ) with T1DM underwent the self-report KINDL questionnaire for children aged 4-6 years (Kiddy-KINDL for children). Their mothers underwent the parental version (Kiddy-KINDL for parents). Both versions enable measuring child HRQoL in physical, emotional wellbeing, self-esteem, family, friends, everyday functioning, and the disease dimensions, as well as KINDL total on a 0-100 scale. Statistically significant differences were found on the scale of the total assessment of the quality of life, as well as on the scales of the impact of disease and emotional well-being on the quality of life. Lower estimates of the total quality of life, as well as the effect of the disease on it, in the opinion of mothers, compared with children with type 1 diabetes, were established. In contrast, the assessment of the impact of emotional well-being on the quality of life in type 1 diabetes was higher on the part of mothers compared to their children. The most significant modifying effect on the studied parameters was found for the factors of mother's education, marital status, method of insulin administration, and improved diabetes control. The assessment of the quality of life may differ according to the opinion of children with type 1 diabetes and their mothers. The identified features are recommended for use in planning patient-oriented diabetes treatment programs and in the work of «diabetes schools».

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