Social support needs of breast cancer patients without partners

2017 ◽  
Vol 36 (1) ◽  
pp. 43-62 ◽  
Author(s):  
Amanda C. Ginter ◽  
Bonnie Braun

This qualitative study investigated how women without partners navigate social support challenges following their breast cancer diagnoses. In-depth interviews were used for collection. Twenty women without partners discussed the supportive and unsupportive roles their relatives, peers, and colleagues played during diagnoses and treatment. Family systems theory guided the construction of interview questions. Thematic analysis uncovered the following themes: reactions to diagnosis, managing social networks, negotiating appropriate forms of social support with loved ones, and expanding social networks postdiagnosis. Participants discussed the personal challenge of unexpectedly unsupportive friends and family and how they established boundaries with these individuals. Participants also discussed needing age-relevant and cancer stage-specific breast cancer support groups. These findings are relevant to oncology care providers and therapists. Additional implications of these findings for patients, practice, and research are discussed.

2005 ◽  
Vol 13 (2) ◽  
pp. 169-185 ◽  
Author(s):  
Jacqueline Clark

The present study looks at women who joined breast cancer support groups to cope with the emotional fallout of the disease. Three support groups were studied, two composed of middle-class women, and one composed of working-class women. Data derive from 24 months of field observation and 35 in-depth interviews. Analysis shows how class-based inequalities led the women to seek therapeutic information about breast cancer in different ways. Women in the middle-class groups had the resources to gather and interpret information on their own, in effect becoming lay experts on the disease. Women in the working-class group lacked these resources, and thus collaborated in constructing their doctors as experts. These divergent strategies affected the women's illness experiences. Middle-class women interacted more assertively with their care providers and were more satisfied with treatment decisions. Working-class women, who were invested in trusting the expertise of their doctors, were subject to medical paternalism and pressured into making decisions that they later questioned.


Author(s):  
Tsorng-Yeh Lee ◽  
Beryl Pilkington ◽  
Grace Ho

Background: Cancer is the leading cause of death for both men and women in Canada. Professionally or nonprofessionally led support groups have been recognized as a significant source of psychosocial support for cancer survivors. However, the participation rate was low and reasons for leaving a support group were not explored fully. Purpose: To explore the reasons why Chinese cancer survivors left or did not attend a cancer support group in Toronto. Methods: In-depth individual qualitative interviews were conducted. Five Chinese cancer survivors participated in in-depth interviews. Colaizzi’s phenomenological method was used to analyze the interview data. Results: Four themes were extracted from the in-depth interviews: “not fit in”, “not satisfied with the information provided”, “tried to be a normal person”, and “lack reliable transportation and convenient scheduling”. Conclusion: Cancer support groups can improve cancer survivors’ physical and psychosocial outcomes. The services can also help cancer survivors to obtain health related information and connect with professionals and peers. In recognizing the reasons why cancer survivors left support groups, health-care providers need to evaluate and be aware of the needs and difficulties for cancer survivors to attend support groups. They should match cancer survivors with appropriate groups. More language-friendly groups need to be launched, so cancer patients can easily find a suitable one from their neighborhood. 


2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e23129-e23129
Author(s):  
L. Leigh Leibel ◽  
Kashinath G. Metri ◽  
Rajendra Prasad ◽  
J. Gregory Mears

e23129 Background: AI therapy causes joint pain in up to half of women, and up to 20% become non-compliant with treatment due to pain and discomfort. This pilot study investigated the efficacy of sukshma vyayama in improving AI-induced joint pain and evaluated the feasibility of delivering the intervention on Facebook. Methods: Breast cancer patients undergoing treatment with AI's with self-reported arthralgia were recruited via an IRB-approved announcement posted in two closed breast cancer support groups on Facebook to participate in a yoga study delivered on Facebook. Participants completed BPI, DASH, PRAI and WOMAC questionnaires before and after the study. Intervention consisted of 12 joint loosening exercises performed in a chair, once daily for 12 minutes, Monday-Friday for 4 weeks. Asynchronous video demonstrations were available in a secret Facebook group and viewing confirmed by typing "done" (time-stamped) in comments. Results: 200 women responded. 38 met the inclusion criteria/consent, 26 completed the online consent, interventions and pre/post questionnaires. Paired simple t tests results showed significant (P < 0.05) improvement in all the pain measures and quality of life parameters after yoga intervention compared to baseline. Conclusions: This study provides the first evidence that it is feasible to teach sukshma vyayama to patients on Facebook and that the intervention significantly improves AI-induced arthralgia. Teaching yoga via social media may provide better access to this therapeutic modality to patients at all points in the cancer care continuum globally. [Table: see text]


2007 ◽  
Vol 1 (3) ◽  
pp. 193-204 ◽  
Author(s):  
Anna M. Nápoles-Springer ◽  
Carmen Ortíz ◽  
Helen O’Brien ◽  
Marynieves Díaz-Méndez ◽  
Eliseo J. Pérez-Stable

2004 ◽  
Vol 14 (7) ◽  
pp. 905-923 ◽  
Author(s):  
Jeannine Coreil ◽  
Jaime Wilke ◽  
Irene Pintado

2011 ◽  
Vol 21 (5) ◽  
pp. 531-540 ◽  
Author(s):  
Eunkyung Kim ◽  
Jeong Yeob Han ◽  
Tae Joon Moon ◽  
Bret Shaw ◽  
Dhavan V. Shah ◽  
...  

2013 ◽  
Vol 7 (2) ◽  
pp. 193-215 ◽  
Author(s):  
Jaime Corvin ◽  
Jeannine Coreil ◽  
Rebecca Nupp ◽  
Karen Dyer

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