Use of cancer support groups among Latina breast cancer survivors

2007 ◽  
Vol 1 (3) ◽  
pp. 193-204 ◽  
Author(s):  
Anna M. Nápoles-Springer ◽  
Carmen Ortíz ◽  
Helen O’Brien ◽  
Marynieves Díaz-Méndez ◽  
Eliseo J. Pérez-Stable
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Support Groups ◽  
Breast Cancer Survivors ◽  
Cancer Support ◽  
Cancer Support Groups

Exercise and Self-Esteem in Breast Cancer Survivors: An Application of the Exercise and Self-Esteem Model

1997 ◽  
Vol 19 (4) ◽  
pp. 347-358 ◽  
Author(s):  
M. Kjerstin Baldwin ◽  
Kerry S. Courneya
Keyword(s):  
Breast Cancer ◽  
Physical Exercise ◽  
Cancer Survivors ◽  
Support Groups ◽  
Breast Cancer Survivors ◽  
Pearson Correlation ◽  
Self Esteem ◽  
Physical Competence ◽  
Exercise Participation ◽  
Cancer Support

The purpose of this study was to examine the relationship between physical exercise and self-esteem in breast cancer survivors using Sonstroem and Morgan’s (1989) exercise and self-esteem model (EXSEM). Participants were 64 women from four breast cancer support groups. Each participant completed a battery of self-administered questionnaires that assessed exercise participation, physical competence, physical acceptance, and global self-esteem. Pearson correlation analyses demonstrated that physical acceptance, physical competence, and exercise participation each had significant zero-order relationships with global self-esteem. Multiple regression analysis determined that these three constructs together explained 46% of the variance in global self-esteem. Consistent with hypotheses, path analysis showed that the significant relationship between exercise participation and global self-esteem was mediated entirely by physical competence. It was concluded that the EXSEM may be a viable framework for examining the mechanisms by which physical exercise may influence self-esteem in breast cancer survivors.

scholarly journals A culturally tailored Internet cancer support group for Asian American breast cancer survivors: A randomized controlled pilot intervention study

2016 ◽  
Vol 23 (6) ◽  
pp. 618-626 ◽  
Author(s):  
Wonshik Chee ◽  
Yaelim Lee ◽  
Eun-Ok Im ◽  
Eunice Chee ◽  
Hsiu-Min Tsai ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Asian American ◽  
Breast Cancer Survivors ◽  
Intervention Study ◽  
Intervention Group ◽  
Control Group ◽  
Randomized Controlled ◽  
Cancer Support ◽  
Pilot Intervention

Introduction The necessity of culturally competent Internet Cancer Support Groups (ICSGs) for ethnic minorities has recently been highlighted in order to increase its attractiveness and usage. The purpose of this study was to determine the preliminary efficacy of a culturally tailored registered-nurse-moderated ICSG for Asian American breast cancer survivors in enhancing the women’s breast cancer survivorship experience. Methods The study included two phases: (a) a usability test and an expert review; and (b) a randomized controlled pilot intervention study. The usability test was conducted among five Asian American breast cancer survivors using a one-month online forum, and the expert review was conducted among five experts using the Cognitive Walkthrough method. The randomized controlled pilot intervention study (a pre-test and post-test design) was conducted among 65 Asian American breast cancer survivors. The data were analysed using content analysis and descriptive and inferential statistics including the repeated ANOVA. Results All users and experts positively evaluated the program and provided their suggestions for the display, educational contents, and user-friendly structure. There were significant positive changes in the support care needs and physical and psychological symptoms ( p < 0.05) of the control group. There were significant negative changes in the uncertainty level of the intervention group ( p < 0.10). Controlling for background and disease factors, the intervention group showed significantly greater improvements than the control group in physical and psychological symptoms and quality of life ( p < 0.10). Discussion The findings supported the positive effects of ICSGs on support care needs, psychological and physical symptoms, and quality of life.

scholarly journals Why Don’t Cancer Survivors Attend Cancer Support Groups in Toronto

2019 ◽  
pp. 1-8
Author(s):  
Tsorng-Yeh Lee ◽  
Beryl Pilkington ◽  
Grace Ho
Keyword(s):  
Cancer Survivors ◽  
Support Groups ◽  
Support Group ◽  
Health Care Providers ◽  
Normal Person ◽  
Care Providers ◽  
Cancer Support ◽  
Cancer Support Groups ◽  
Chinese Cancer Survivors ◽  
Depth Interviews

Background: Cancer is the leading cause of death for both men and women in Canada. Professionally or nonprofessionally led support groups have been recognized as a significant source of psychosocial support for cancer survivors. However, the participation rate was low and reasons for leaving a support group were not explored fully. Purpose: To explore the reasons why Chinese cancer survivors left or did not attend a cancer support group in Toronto. Methods: In-depth individual qualitative interviews were conducted. Five Chinese cancer survivors participated in in-depth interviews. Colaizzi’s phenomenological method was used to analyze the interview data. Results: Four themes were extracted from the in-depth interviews: “not fit in”, “not satisfied with the information provided”, “tried to be a normal person”, and “lack reliable transportation and convenient scheduling”. Conclusion: Cancer support groups can improve cancer survivors’ physical and psychosocial outcomes. The services can also help cancer survivors to obtain health related information and connect with professionals and peers. In recognizing the reasons why cancer survivors left support groups, health-care providers need to evaluate and be aware of the needs and difficulties for cancer survivors to attend support groups. They should match cancer survivors with appropriate groups. More language-friendly groups need to be launched, so cancer patients can easily find a suitable one from their neighborhood. 

scholarly journals Breast Cancer Support Group at Ocean Road Cancer Institute in Dar es Salaam

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 178s-178s
Author(s):  
S. Nyagabona ◽  
F. Rubagumya ◽  
A. Longombe ◽  
A. Manirakiza ◽  
T. Maniragaba ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Cancer Patients ◽  
Support Group ◽  
Breast Cancer Survivors ◽  
Psychosocial Support ◽  
Cancer Education ◽  
Developed Countries ◽  
Breast Cancer Patients ◽  
Cancer Support

Background and context: Breast cancer is a common type of cancer among women worldwide, with about 2 million new cases diagnosed in the yearly. It is the second common cancer and leading cause of cancer mortality among women in Tanzania, after cervical cancer. More than 70% of breast cancer patients in developed countries are diagnosed at early stages, whereas in low and middle-income countries, only 20%–60% of patients are diagnosed early. Physician in developed countries consults on average 15-20 breast cancer patients daily, while in developing countries the number triples. This high load does not allow a treating physician to spend ample time with patients explaining hence leaving patients not informed about their diagnosis, side effects of treatments and even living with the physical, emotional and psychological challenges of their disease. Residents at the Ocean Road Cancer Institute (ORCI), initiated a patient support group targeting breast cancer patients for feasibility. Aim: Provide forum for patients with same diagnosis to share common challenges Provide peer emotional, psychosocial support and cancer education Organize activities that will help to spread awareness to the community Initiate projects to improve socioeconomic status of breast cancer survivors in Tanzania Strategy/Tactics: Involved the ORCI administration from the beginning Involved the academic and research unit of ORCI Residents prepared session curriculum and teaching materials Sessions took place once a month Sessions were two hours long divided into three components, where the first is introduction of participants, then survivors led discussions or lectures prepared by an expert in the topic and lastly closing remarks by a physician Breakfast was provided Program/Policy process: Open membership for all breast cancer patients Physician lead face to face peer discussions Institutional acknowledgment of the support group Provision of primary registry of patients for follow-up Provision of a link to other social organizations Outcomes: Increase knowledge of cancer in general and breast cancer in particular A total of seven sessions were held to date For each session, participation ranged from 30-50 breast cancer survivors, and on average attendance was 4 sessions out of 7 Topics covered over a period of seven months included Coping with a cancer diagnosis and treatment Living with cancer and its changes to daily life Exercise Nutrition Breast cancer general knowledge Collaboration with other stake holders including IST secondary school students who initiated breast prosthesis knitting club What was learned: A need to reach out and give psycho-social support to ORCI patients Through education we can improve treatment adherence Possible partners are available if we reach out Exist a need to address misconceptions in the community so as to avoid stigma to patients.

scholarly journals The Forms and Uses of Acquired Prostate Cancer Expertise Among Prostate Cancer Survivors

2020 ◽  
pp. 136078042090584
Author(s):  
Richard Green
Keyword(s):  
Prostate Cancer ◽  
Cancer Survivors ◽  
Support Groups ◽  
Qualitative Interviews ◽  
The South ◽  
Prostate Cancer Survivors ◽  
Cancer Support ◽  
Cancer Support Groups ◽  
Patient Expertise ◽  
Moral Discourses

This article examines men’s prostate cancer experiences through the lens of patient expertise. Qualitative interviews were conducted with 29 men treated for prostate cancer, recruited from two prostate cancer support groups (PCSGs) in the South-East of England. Different forms of expertise, as classified by Collins, were found to be possessed by these men. How these different forms of expertise were acquired, used, and shared with others are explored, and a concept of communal licensing is posited to better understand these activities. The acquisition and usage of these different forms of expertise, through the employment of moral discourses that emphasise responsibility for one’s own health, are found to serve to blur the boundaries between lay person and expert.

scholarly journals Unmet Supportive Care Needs among Breast Cancer Survivors of Community-Based Support Group in Kuching, Sarawak

2016 ◽  
Vol 2016 ◽  
pp. 1-9 ◽  
Author(s):  
Emmanuel Joseph Fong ◽  
Whye Lian Cheah
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Support Groups ◽  
Support Group ◽  
Breast Cancer Survivors ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Community Based

Background.Recognizing the needs of cancer survivors is one of the important aspects in healthcare delivery. This study aimed to determine the prevalence of unmet supportive care needs and its associated factors among the breast cancer survivors of community-based support group in Kuching, Sarawak.Materials and Methods.This was a cross-sectional study using Supportive Care Needs Survey (SCNS-SF34). All the members of community-based breast cancer support groups in Kuching were invited. A total of 101 respondents were face-to-face interviewed after the consent was obtained. Data was entered and analyzed using SPSS version 20.Results.The respondents endorsedhealth system and informationdomain with the highest mean score (2.48; 95% CI: 2.32–2.64). Top 10 items with “moderate to high” level unmet needs had a prevalence of 14.9% to 34.7% of respondents indicating need. Significantly higher level of unmet needs was associated with survivors who were younger (less than 60 years old), had higher education attainment, were unemployed, had survival duration of up to 5 years, and were undergoing active treatment.Conclusion. Systematic delivery of health information which is targeted, culturally sensitive, and linguistically appropriate for addressing younger age, education level, employment status, length of survivorship, and treatment stage should be considered not only at hospital-based setting but also at the community-based support groups.

Attitudes toward Technology-Based Cancer Support Programs Among Korean American Breast Cancer Survivors

2020 ◽  
pp. 019394592097402
Author(s):  
Eun-Ok Im ◽  
Sangmi Kim ◽  
Mia Jang ◽  
Wonshik Chee
Keyword(s):  
Cancer Survivors ◽  
Support Groups ◽  
Breast Cancer Survivors ◽  
Korean American ◽  
Support Programs ◽  
Attitudes Toward Technology ◽  
Specific Information ◽  
Future Technology ◽  
Cancer Support ◽  
Group Interviews

Despite the increasing usages of technology-based programs, few technology-based support programs are currently available for racial/ethnic minority cancer survivors including Korean-American cancer survivors. The purpose of this study was to explore the attitudes toward technology-based cancer support programs among Korean-American cancer survivors from a feminist perspective. In-person focus group interviews were held with 17 Korean-American cancer survivors. All the interviews were recorded by writing memos. Then, the written memos were analyzed using a content analysis. Four major themes reflecting their attitudes toward technology-based cancer-support programs were identified: (a) “easy to access”; (b) “good for peer and family support,” (c) “overcoming language barriers,” and (d) “providing Korean-specific and personalized trustable information.” Future technology-based cancer support groups for this specific population need to incorporate peer support, support for family members, Korean language, and Korea-specific information and intervention components.

scholarly journals Review of the Nutrition Guidance Irish Healthcare and Charitable Organisations and Cancer Centres provide for Cancer Patients and Cancer Survivors.

2020 ◽  
Vol 79 (OCE2) ◽  
Author(s):  
Laura Keaver ◽  
Leah Walsh ◽  
Helen Callaghan ◽  
Christine Houlihan
Keyword(s):  
Cancer Survivors ◽  
Cancer Patients ◽  
Support Groups ◽  
Health Care Professionals ◽  
Nutrition Information ◽  
Sources Of Information ◽  
Cancer Support ◽  
Nutritional Guidance ◽  
Cancer Support Groups

AbstractBackground: A cancer diagnosis presents a potential teachable moment however, evidence-based information, guidance and support all need to be available in order to capitalise on this. Health care professionals report providing little advice in this area. Previous work has shown that cancer survivors tend to prefer statutory and recognised charitable centres and groups. It is therefore important to determine what nutrition information is available on these websites as otherwise this group may turn to less reliable sources of informationObjective: To determine the availability, quality and readability of nutrition information for cancer patients and survivors from Irish healthcare organisations, cancer charity and support groupsMethods: Organisations were located using three search strategies: 1) We first sought to identify any nutrition information for cancer patients or survivors provided by the Irish Health Service Executive (HSE), 2) To identify suitable organisations the word “cancer” was searched for in the search engine of the Benefacts (official register of charitable organisations) website. The ten largest organisations were included and 3) an additional internet search was conducted using the terms ‘cancer charities Ireland’ and ‘cancer support groups Ireland’. The first two pages of results were assessed. The quality of the nutrition information was determined using the adapted IPDAS tool. Readability testing was carried out on the websites where nutrition information was available usingResults: A total of 32 websites were assessed. Of these only five provided any form of nutrition guidance for cancer patients with three of these five also providing some guidance for cancer survivors. The guidance provided centred on guidelines and lacked practical strategies for their implementation. The quality of the information provided ranged from 19.5–29 out of a maximum of 40. The readability level required to understand the information ranged from 11–17 years of age.Conclusion: There is a need for nutritional guidance to be provided by national health and cancer related organisations and for this information to be specific to the cohort e.g. patient vs survivor. There is also a need for practical strategies to make the translation of guidelines into practice easy for patients and survivors.

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