A feasibility study using solution-focused coaching for health promotion in children and young people with Duchenne muscular dystrophy

2017 ◽  
Vol 21 (2) ◽  
pp. 121-130 ◽  
Author(s):  
Amy C. McPherson ◽  
Laura McAdam ◽  
Sarah Keenan ◽  
Heidi Schwellnus ◽  
Elaine Biddiss ◽  
...  
Keyword(s):  
Health Promotion ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Young People ◽  
Feasibility Study ◽  
Children And Young People ◽  
Solution Focused

scholarly journals Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability

Childhood ◽  
2018 ◽  
Vol 25 (3) ◽  
pp. 355-368 ◽  
Author(s):  
Sarah Louise Skyrme ◽  
Simon Woods
Keyword(s):  
Decision Making ◽  
Qualitative Research ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Young People ◽  
Medical Research ◽  
Disabled Children ◽  
Structured Interviews ◽  
Children And Young People ◽  
Research Assumptions

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

Health promotion and health care for school-age children and young people

2006 ◽  
pp. 106-126
Author(s):  
David M. B. Hall ◽  
David Elliman
Keyword(s):  
Health Care ◽  
Health Promotion ◽  
Young People ◽  
Unwanted Pregnancy ◽  
School Age Children ◽  
School Age ◽  
Children And Young People ◽  
Medical Needs ◽  
Healthy Schools ◽  
School Preparation

Chapter 5 reviews the changing needs of health care for school-age children, a needs-based approach, the views of children and young people about their concerns and the service they want, starting school—preparation for school and reception into school, special medical needs of children in school, emotional and behavioural problems, bullying, the need for confidential advice and support, the National Healthy Schools Standard and other Government initiatives—health promotion in school, profiles, and prevention of unwanted pregnancy and support for young mothers.

scholarly journals SP8 Creating acceptable tablets 3D (CAT 3D): a feasibility study to evaluate the mouthfeel of 3D printed tablets in children and young people

2020 ◽  
Vol 105 (9) ◽  
pp. e5.1-e5
Author(s):  
Louise Bracken ◽  
Emma McDonough ◽  
Joanne Shakeshaft ◽  
Fiona Wilson ◽  
Udeme Ohia ◽  
...  
Keyword(s):  
Young People ◽  
Facial Expressions ◽  
Feasibility Study ◽  
Controlled Trial ◽  
List Type ◽  
Children And Young People ◽  
Solid Dosage ◽  
Short Video ◽  
3D Printed ◽  
Hedonic Scale

AimTo evaluate the feasibility of a study investigating the mouthfeel of different sized 3D printed placebo solid dosage forms (SDFs) in children and young people (CYP) aged 4–12 years.MethodAll participants in the CAT 3D Study had previously participated in the Creating Acceptable Tablets (CAT) Study, a feasibility study which assessed the swallowability and acceptability of different sized placebo tablets, and therefore only attempted to swallow one 3D printed tablet. If the participant had successfully swallowed all three tablet sizes in the CAT Study (6 mm, 8 mm, 10 mm) they were then randomised to receive any of the 3D printed tablets – 6 mm, 8 mm or 10 mm diameter. If a participant had not successfully swallowed all tablet sizes, they were allocated a 3D printed tablet of equal size to the largest tablet they had successfully swallowed in the CAT Study. Following informed consent, participants were shown a short video demonstrating how to swallow a tablet. Participants were then provided with the sample 3D tablet and 150 mL of still water in a cup. The volume of water required to swallow the tablet was measured, and further water was provided, where requested. The researcher observed and recorded the child’s facial expressions as they swallowed the tablet1, and an internal inspection of the mouth was conducted by the researcher to identify any residue or non-swallowed tablet.2 The participants assessed the swallowability, acceptability, mouthfeel and taste of the sample using a 5-point hedonic facial scale on a participant questionnaire. Faces 1–3 on the hedonic scale were deemed acceptable to the participant. The participants were also asked if the 3D printed tablet was a medicine, would they be willing to take it every day. In addition, they were asked which tablet felt better in the mouth as a comparison of mouthfeel between the GMP manufactured coated tablets (CAT study tablets) and the 3D printed tablets.ResultsA total of 30 participants were recruited to the CAT 3D Study, 87% of whom successfully swallowed the 3D printed tablet that they attempted to take. Attributes of the 3D printed tablets were scored as acceptable by the following percentage of participants – swallowability (80%), mouthfeel/texture (87%), volume (80%), acceptability (83%) and taste (93%). 77% of children advised they would be happy to take the tablet every day if it were a medicine. Participants were also asked which tablets felt better in the mouth – the CAT tablets or the 3D printed CAT 3D tablets, and the most popular response was that both felt ok (43%).ConclusionsThe data from this study shows that 3D printed SDFs may be a suitable dosage form for children aged 4–12 years. The results from this feasibility study will be used to inform a larger, definitive study looking at the mouthfeel of 3D printed tablets in children.ReferencesZeinstra GG, Koelen MA, Colindres D, et al. Facial expressions in school-aged children are a good indicator of ‘dislikes’, but not of ‘likes’. Food Quality and Preference 2009 December 2009; 20:620–624.Klingmann V, Spomer N, Lerch C, et al. Favorable acceptance of mini-tablets compared with syrup: a randomized controlled trial in infants and preschool children. The Journal of Pediatrics 2013 December 2013;163:1728–1732.e1.

scholarly journals O23 Can children swallow tablets? outcome data from a feasibility study to assess the swallowability and acceptability of different sized placebo tablets in children and young people (creating acceptable tablets – cat)

2019 ◽  
Vol 104 (6) ◽  
pp. e10.2-e10
Author(s):  
L Bracken ◽  
E McDonough ◽  
S Ashleigh ◽  
F Wilson ◽  
U Ohia ◽  
...  
Keyword(s):  
Young People ◽  
Facial Expressions ◽  
Feasibility Study ◽  
Controlled Trial ◽  
Outcome Data ◽  
European Medicines Agency ◽  
List Type ◽  
Healthy Children ◽  
Older Children ◽  
Children And Young People

BackgroundIt can be challenging to administer medicines to children and young people (CYP); due to the lack of available age-appropriate formulations. Developing medicines that are acceptable to CYP has the potential to improve treatment outcomes.1 Acceptability has been defined as ‘an overall ability of the patient and caregiver (defined as ‘user’) to use a medicinal product as intended’.2 There is limited evidence for the acceptability of tablets in CYP. This feasibility study aimed to investigate the swallowability and acceptability of different sized placebo tablets in CYP aged 4–12.MethodParticipants were asked to swallow three different sized placebo tablets; 6 mm, 8 mm and 10 mm, smallest to largest. Both healthy children and NHS patients were recruited. The researcher observed and recorded children’s facial expressions as they swallowed each tablet.3 Following administration, an internal inspection of the mouth was conducted to identify any residue or non-swallowed tablet.4 Participants completed a questionnaire about the acceptability of each tablet. For analysis participants were stratified by age: 4–8 and 9–12 years.Results55 participants were recruited to the study. 30 children were in the younger group, of which 23% had taken a tablet before. 84% of the 25 older children had previously taken a tablet. 100% of participants attempted to swallow the 6mm tablet, with 67% of younger children and all older children successfully swallowing the tablet. All participants in the older group attempted to swallow the 8 mm and 10 mm tablet with 100% successfully swallowing the 8 mm and 96% successfully swallowing the 10 mm tablet. 77% of younger children attempted to swallow the 8 mm tablet, with 91% succeeding. 70% of younger children attempted the 10mm tablet, with 95% succeeding.ConclusionThis study demonstrates that tablets of 6mm, 8mm and 10mm are potentially an acceptable formulation for children aged 4–12 years.ReferencesVenables R, Batchelor HK, Hodson J, Stirling H, Marriott J. Determination of formulation factors that affect oral medicines acceptability in a domiciliary paediatric population. Int J Pharm 2015;480(1–2):55–62.Kozarewicz P. Regulatory perspectives on acceptability testing of dosage forms in children. Int J Pharm 2014;469:245–8. doi:10.1016/j.ijpharm.2014.03.057. European Medicines Agency. Guideline on pharmaceutical development of medicines for paediatric use. 2013;44:1–24.Zeinstra GG, Koelen MA, Colindres D, et al. Facial expressions in school-aged children are a good indicator of ‘dislikes’but not of ‘likes’. Food Quality and Preference 2009 December 2009;20(8):620–624.Klingmann V, Spomer N, Lerch C, et al. Favorable Acceptance of Mini-Tablets Compared with Syrup: A Randomized Controlled Trial in Infants and Preschool Children. The Journal of Pediatrics 2013 December 2013;163(6):1728–1732.e1.Disclosure(s)Nothing to disclose

Siblings of young people with Duchenne muscular dystrophy – A qualitative study of impact and coping

2011 ◽  
Vol 15 (1) ◽  
pp. 21-28 ◽  
Author(s):  
Joy Read ◽  
Maria Kinali ◽  
Francesco Muntoni ◽  
Timothy Weaver ◽  
M. Elena Garralda
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Young People ◽  
Qualitative Study ◽  
And Coping

Psychosocial adjustment in siblings of young people with Duchenne muscular dystrophy

2010 ◽  
Vol 14 (4) ◽  
pp. 340-348 ◽  
Author(s):  
Joy Read ◽  
Maria Kinali ◽  
Francesco Muntoni ◽  
M. Elena Garralda
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Young People ◽  
Psychosocial Adjustment

scholarly journals Applying Salutogenesis in Schools

2022 ◽  
pp. 295-305
Author(s):  
Bjarne Bruun Jensen ◽  
Wolfgang Dür ◽  
Goof Buijs
Keyword(s):  
Health Promotion ◽  
Young People ◽  
School Setting ◽  
Special Focus ◽  
Children And Young People ◽  
Literature Overview ◽  
Health Promoting Schools ◽  
Key Concepts ◽  
Health Promoting School ◽  
Health Promoting

AbstractThe chapter addresses the health of children and young people in the school setting with a special focus on experiences from Health Promoting Schools (HPS) and selected health promotion projects in schools. On the basis of brief definitions of the salutogenic orientation and the health promoting school model, comparisons will be conducted with regard to key concepts and principles of the two approaches to children’s health. A brief literature overview on the use of salutogenic concepts in relation to schools and health-promoting schools also is presented and discussed.

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