Human Factors Considerations in Designing a Portable Dialysis Device: Understanding Patients’ and Care Partners’ Needs for Increased Mobility

Author(s):  
Auður Anna Jónsdóttir ◽  
Siena Firestone ◽  
Larry Kessler ◽  
Ji-Eun Kim

The objective of this study is to guide the designs of a portable dialysis device that allows patients with End-Stage Renal Disease (ESRD) greater mobility and flexibility to travel. We gathered patients’ and care partners’ motivations behind their travels along with the barriers they experience when planning an overnight trip. Using a quantitative analysis approach for the open-ended questions along with rank-order of response frequencies, our findings indicate that the majority of the motivations behind participants travel is to visit their family and friends but the participants find themselves either completely hindered or experience significant challenges when planning overnight trips where the designs of current dialysis devices and or the logistics of planning or scheduling treatments in an unfamiliar dialysis center outweigh the enjoyment of traveling. Our results give an estimate of parameters for the largest acceptable size and weight of a portable dialysis device that meets users’ needs. The results of this study help provide the designers of a portable dialysis device with better-targeted solutions to design a device that comfortably supports patients’ mobility and freedom of travel.

2021 ◽  
Vol 2021 ◽  
pp. 1-7
Author(s):  
Mehryar Mehrkash ◽  
Seyed-javad Golestaneh ◽  
Yahya Madihi ◽  
Fatemeh Paknazar ◽  
Mahdi Hadian ◽  
...  

Objective. Evaluation of the pruritus features in children with end-stage renal disease (ESRD) who underwent dialysis at an academic tertiary pediatric dialysis center. Methods. This cross-sectional study was conducted at an academic tertiary pediatric dialysis center, Isfahan, Iran. The reviewed medical records of the children included their characteristics, dialysis properties, and laboratory parameters. The 4-item itch questionnaire was utilized to assess distribution, severity, frequency, and associated sleeping disorders. Results. Thirty ESRD patients with pruritus, including 23 males (76.7%) with a mean age of 11.7 ± 3.64 years, were recruited. The most common cause of CKD was nephronophthisis (23.3%). The median total score of pruritus was 5 (range: 3-15). The distribution score of pruritus was directly correlated with the age (Spearman’s rho = 0 .42, P = 0.02 ) and serum level of parathyroid hormone (PTH) (Spearman’s rho = 0.42 , P = 0.04 ). In the reduced multiple logistic regression model, the increasing level of serum calcium was associated with increased odds of having total   pruritus   score ≥ 5 (OR (odds ratio): 4.5; 95% CI 1.12 to 18.05). In addition, an increase in age for one year was found to be associated with 50% higher odds of having total   pruritus   score ≥ 5 (OR: 1.5; 95% CI 1.03 to 2.18). Conclusion. Increased level of serum Ca and higher age were associated with increased odds of having more severe pruritus score in children.


2020 ◽  
Vol 1 (1) ◽  
Author(s):  
Hiba El Oury ◽  
Fatim-zahra Jabrane ◽  
Mohamed Amine Khalfaoui ◽  
M Sabah ◽  
G Medkouri

Introduction:  Coronavirus disease 2019: COVID 19, is a new communicable disease caused by the SARS-CoV-2 virus, which appeared in Wuhan, Hubei Province, China in December 2019, and declared a global pandemic on March 11, 2020, by the World Health Organization (WHO). This disease is generally manifested by damage to the airways, most often of a mild form, but can be complicated by acute respiratory distress syndrome. Patients with end-stage renal disease are at high risk of contracting the infection, due to their co-morbidities, the state of immunosuppression and the logistical aspect of the provision of care requiring physical movement of patients to the center dialysis.Objectives of this study: This study aims to assess the knowledge, attitude and perception, in terms of the 2019 coronavirus pandemic, of a sample of patients with chronic end-stage renal disease hemodialysis at the nephrology and dialysis center at the university hospital Cheikh Khalifa Ibn Zaid , in Casablanca, where positive COVID 19 patients were hospitalized and treated during the pandemic.Design: The investigation began after the decree of compulsory confinement and the state of health emergency by the Moroccan government. Awareness sessions, for patients and their family members, were led by nursing staff at the start of the period and during the COVID 19 pandemic. The measuring instrument used was a self-administered questionnaire, 1 month after the start of confinement, with 25 patients with chronic end-stage renal disease on hemodialysis at the rate of 3 sessions per week, at the nephrology and dialysis center at the university hospital. Sheikh Khalifa Ibn Zaid. This questionnaire was carried out after a review of the literature and included 4 headings: a) socio-demographic data b) general knowledge of COVID19 disease c) the attitude of hemodialysis patients outside and inside the dialysis center d) and their perception of this pandemic.Results : The majority of our patients were fairly well informed about the clinical presentation, the means of transmission and the prevention measures against coronavirus 2019. The means of protection were respected outside and in the university hospital center. There were no positive COVID 19 cases among our patients. Despite all the measures taken, the concern of contacting the virus was raised by most patients, especially in the hospital, during the dialysis session and in contact with medical personnel.Conclusion: Given the rapid spread and severe progression of COVID 19, it seems prudent that this profile of patients with end-stage chronic renal failure be included in high-risk populations with close medical and also psychological monitoring, tests screening and awareness and support sessions.


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