How using assistive technology for cognitive impairments improves the participation and self-determination of young adults with intellectual developmental disabilities

2019 ◽  
pp. 174462951988258 ◽  
Author(s):  
Sylvia Söderström ◽  
May Østby ◽  
Hege Bakken ◽  
Karl Elling Ellingsen
Keyword(s):  
Young Adults ◽  
Developmental Disabilities ◽  
Home Care ◽  
Home Care Services ◽  
Support Staff ◽  
Assistive Device ◽  
Community Based ◽  
Daily Lives ◽  
Care Services ◽  
Group Interviews

In Norway, where all citizens are entitled to live in their own homes in their local communities, people with intellectual disabilities receive community-based home care services that aim to promote their ability to live on their own. In our study, we investigated how using an assistive device for cognitive impairment – namely, a memo planner (MP) – in community-based home care services affected the everyday lives of people with intellectual developmental disabilities (IDD). Our sample consisted of seven young adults with IDD and their support staff. Data were collected during field observations and group interviews and analysed via systematic text condensation. The findings illuminate how using an MP can structure the daily lives of young adults with IDD and afford them opportunities to participate in everyday activities. In this article, we discuss how using an MP shapes interactions between people with IDD and their support staff.

Manoeuvring challenging demands: care managers, the Free Choice System and older users of home care services with reduced decision-making capacity

2020 ◽  
Vol 4 (4) ◽  
pp. 479-495
Author(s):  
Anna Dunér ◽  
Gerd Gustafsson
Keyword(s):  
Decision Making ◽  
Home Care ◽  
Free Choice ◽  
Home Care Services ◽  
Focus Group Interviews ◽  
Care Services ◽  
Care Managers ◽  
Decision Making Capacity ◽  
Older Users ◽  
Group Interviews

The aim of this article is to describe and analyse how care managers experience and manage the Swedish Free Choice System in relation to older users of home care services with reduced decision-making capacity. The empirical data were generated by focus group interviews with care managers working in local eldercare authorities that had implemented the Free Choice System. The findings reveal that care managers used various strategies, and justifications for them, based on various coexisting logics: the market logic; the logic of public administration; and the logic of care.

scholarly journals Protocol for a non-randomised pilot and feasibility study evaluating a multicomponent intervention to simplify medication regimens for people receiving community-based home care services

BMJ Open ◽  
2019 ◽  
Vol 9 (7) ◽  
pp. e025345 ◽  
Author(s):  
Janet Kathleen Sluggett ◽  
Amy Theresa Page ◽  
Esa Y H Chen ◽  
Jenni Ilomäki ◽  
Megan Corlis ◽  
...  
Keyword(s):  
Home Care ◽  
Feasibility Study ◽  
Care Provider ◽  
Home Care Services ◽  
Medication Administration ◽  
Retention Rates ◽  
Ethical Review ◽  
Community Based ◽  
Care Services ◽  
Multicomponent Intervention

IntroductionManaging medication regimens is one of the most complex and burdensome tasks performed by older people, and can be prone to errors. People living with dementia may require medication administration assistance from formal and informal caregivers. Simplified medication regimens maintain the same therapeutic intent, but have less complex instructions and administration schedules. This protocol paper outlines a study to determine the feasibility of a multicomponent intervention to simplify medication regimens for people receiving community-based home care services.Methods and analysisThis is a non-randomised pilot and feasibility study. Research nurses will recruit 50 people receiving community-based home care services. All participants will receive the intervention from a clinical pharmacist, who will undertake medication reconciliation, assess each participant’s capacity to self-manage their medication regimen and apply a structured tool to identify opportunities for medication simplification. The pharmacist will communicate recommendations regarding medication simplification to registered nurses at the community-based home care provider organisation. The primary outcome will be a description of study feasibility (recruitment and retention rates, protocol adherence and stakeholder acceptability). Secondary outcomes include the change in number of medication administration times per day, medication adherence, quality of life, participant satisfaction, medication incidents, falls and healthcare utilisation at 4 months.Ethics and disseminationEthical approval was obtained from the Monash University Human Research Ethics Committee and the community-based home care provider organisation’s ethical review panel. Research findings will be disseminated to consumers and caregivers, health professionals, researchers and healthcare providers through the National Health and Medical Research Council Cognitive Decline Partnership Centre and through conference presentations, lay summaries and peer-reviewed publications. This study will enable an improved understanding of medication management and administration among people receiving community-based home care services. This study will inform the decision to proceed with a randomised controlled trial to assess the effect of this intervention.Trial registration numberACTRN12618001130257; Pre-results.

scholarly journals Simplifying Medication Regimens for People Receiving Community-Based Home Care Services: Outcomes of a Non-Randomized Pilot and Feasibility Study

2020 ◽  
Vol Volume 15 ◽  
pp. 797-809
Author(s):  
Janet K Sluggett ◽  
Choon Ean Ooi ◽  
Stephanie Gibson ◽  
Manya T Angley ◽  
Megan Corlis ◽  
...  
Keyword(s):  
Home Care ◽  
Feasibility Study ◽  
Home Care Services ◽  
Community Based ◽  
Care Services

scholarly journals Community Nurses’ Preparations for and Challenges in Providing Palliative Home Care: A Qualitative Study

2021 ◽  
Vol 18 (22) ◽  
pp. 11838
Author(s):  
Chien-Yi Wu ◽  
Yu-Hsuan Wu ◽  
Yi-Hui Chang ◽  
Min-Shiow Tsay ◽  
Hung-Cheng Chen ◽  
...  
Keyword(s):  
Palliative Care ◽  
Home Care ◽  
Critical Role ◽  
Home Care Services ◽  
Structured Interviews ◽  
Community Based ◽  
Palliative Home Care ◽  
Care Services ◽  
Leading Role ◽  
Study Results

Hospitals have played a leading role in providing palliative care in Taiwan as its care model has developed over the past few decades. However, earlier local studies in Taiwan showed that terminal patients prefer to die at home, highlighting the need to promote community-based palliative care instead of hospital-based care. Along with this shift, how community nurses provide palliative home care merits further exploration. This qualitative descriptive study aims to understand (1) how community nurses implement community-based palliative care, (2) what preparations are needed, and (3) what challenges they may face. Purposive sampling was used for recruiting nurses. We conducted one-on-one, in-depth, semi-structured interviews. Interview recordings were transcribed verbatim and analyzed using thematic analysis. Eight community nurses with a range of experience in palliative home care were interviewed. Four major themes emerged: (1) Opportunities, (2) Qualifications, (3) Support, and (4) Commitments. Psychological preparedness, well-developed professional capabilities, external assistance, and peer support motivate community nurses to offer community-based palliative care. As the requests for palliative home care services increase, community nurses play a critical role in palliative home care. Although the sample size is small and the findings retrieved from a small number of experiences might not be generalized to every region, the study results could inform future experience-sharing and workshop sessions to train more nurses for community-based care, expanding service coverage, and providing optimal palliative care.

scholarly journals Designing and pilot testing of a leadership intervention to improve quality and safety in nursing homes and home care (the SAFE-LEAD intervention)

BMJ Open ◽  
2019 ◽  
Vol 9 (6) ◽  
pp. e027790 ◽  
Author(s):  
Terese Johannessen ◽  
Eline Ree ◽  
Torunn Strømme ◽  
Ingunn Aase ◽  
Roland Bal ◽  
...  
Keyword(s):  
Nursing Homes ◽  
Home Care ◽  
Home Care Services ◽  
Participatory Approach ◽  
Pilot Test ◽  
Quality And Safety ◽  
Focus Group Interviews ◽  
Care Services ◽  
Group Interviews ◽  
Leadership Intervention

ObjectiveTo describe the design of a leadership intervention for nursing home and home care, including a leadership guide for managers to use in their quality and safety improvement work. The paper reports results from the pilot test of the intervention and describes the final intervention programme.DesignQualitative design, using the participation of stakeholders.MethodsThe leadership guide and intervention were designed in collaboration with researchers, coresearchers and managers in nursing homes and home care organisations, through workshops and focus group interviews. The pilot test consisted of three workshops with managers working on the leadership guide, facilitated and observed by researchers, and evaluated by means of observation and focus group interviews with the participants. The analysis combined the integration of data from interviews and observations with directed content analysis.SettingNorwegian nursing homes and home care services.ParticipantsManagers at different levels in three nursing homes and two home care services, coresearchers, and patient and next-of-kin representatives.ResultsThe managers and coresearchers suggested some revisions to the leadership guide, such as making it shorter, and tailoring the terminology to their setting. Based on their suggestions, we modified the intervention and developed learning resources, such as videos demonstrating the practical use of the guide. Evaluation of the pilot test study showed that all managers supported the use of the guide. They adapted the guide to their organisational needs, but found it difficult to involve patients in the intervention.ConclusionsA participatory approach with stakeholders is useful in designing a leadership intervention to improve quality and safety in nursing homes and home care, although patient participation in its implementation remains difficult. The participatory approach made it easier for managers to adapt the intervention to their context and to everyday quality and safety work practice.

Confidence in Home Care Services Questionnaire

2006 ◽  
Author(s):  
Janice D. Crist ◽  
Humberto Velazquez ◽  
Ian Durnan ◽  
Diana Ramirez Figueroa
Keyword(s):  
Home Care ◽  
Home Care Services ◽  
Care Services
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