scholarly journals Lived Experience of Disability Equality Training Facilitators: Narratives of Disabled People From Ulaanbaatar, Mongolia

SAGE Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. 215824402110326
Author(s):  
Masateru Higashida

This study explores the lived experiences of becoming and continuing as facilitators of Disability Equality Training (DET). This study was conducted in Ulaanbaatar, Mongolia, one of the countries where DET has been strategically implemented. Nine facilitators were selected by purposive sampling for semistructured interviews. Thematic analysis was applied to the narrative data for exploring themes with consideration to chronological sequence, namely, before, during, and after DET training of facilitators (DET–TOF). The narratives indicated that DET facilitators had varied personal backgrounds, including experiences of discrimination. Their stories also indicated that some interviewees not only obtained views on the social model of disability and facilitation skills but also reframed their past life experiences both during and after the DET–TOF. While this study considers the potential criticism of the social model, which is the foundation of the DET, these findings can provide helpful insights for future agents of change who engage in a society.

2015 ◽  
Vol 17 (3) ◽  
pp. 122-136
Author(s):  
Deborah Espiner ◽  
Frances Hartnett

This article applies the social model of disability (Oliver 1996) and the theory of social role valorisation (Wolfensberger 1998a) to the life experiences as told in the words of a man who experienced being institutionalised at 17 years of age. A focussed conversation (Stanfield 2000) was used to support the man to retell some of the challenges, achievements and satisfactions he wished to share. This story outlines how he utilised his experiences to transform his life and advocate for people with learning disabilities to be treated fairly. Today he is a member on a number of Boards, striving to ensure that people with learning disabilities receive the service and support they desire.


2018 ◽  
Vol 40 (3) ◽  
pp. 636-659 ◽  
Author(s):  
James Richards ◽  
Kate Sang

The 2007–2008 financial crisis has affected the prospects for workers in a range of ways. In-work poverty represents just one, yet key feature of how prospects for workers have changed in recent times. In-work poverty disproportionately impacts on marginalised groups, such as the disabled. Current research reveals little about how disability and poverty intersect in the context of employment. To address this oversight, life history interviews were conducted with disabled people in in-work poverty. The findings were analysed using the social model of disability and the lens of intersectionality. The results highlight how government policies, employer practices and household finances impact on disabled workers’ lived experience of in-work poverty. The findings suggest that governments and employers can do more to reduce barriers to escaping in-work poverty for disabled workers.


Author(s):  
Alisoun Milne

The way dementia is conceptualised influences the wellbeing and treatment of people living with the condition. The traditional neuro-degenerative model has increasingly been challenged. Significant contributions include the 1970’s concepts of malignant social psychologv and personhood, the 1990’s drive to engage with the social model of disability, and the recent development of the social citizenship approach. Not only has this new paradigm widened the conceptual lens through which dementia is viewed but it has incorporated issues, beyond the biomedical, that extend our understanding of dementia as a situated condition and lived experience. It is situated in relationships, a lifecourse and a socio-political context and is shaped by inequalities and limited engagement with rights and social justice. Dementia is a multi-dimensional phenomenon and requires a response that addresses its clinical, psychological, social and political dimensions. The new paradigm helps re-focus policy, care and research on the person rather than the condition; relocates the ‘problem’ from the individual to societal structures, attitudes, policy and services; demands new forms of critical practice; and engages with the perspectives of people living with dementia. Whilst there are dementia specific policies in the UK they have limited legal traction and are not integrated with other relevant policies.


2021 ◽  
Vol 27 (1) ◽  
pp. 48-63
Author(s):  
Angela Makris ◽  
Mahmooda Khaliq ◽  
Elizabeth Perkins

Background: One in four Americans have a disability but remain an overlooked minority population at risk for health care disparities. Adults with disabilities can be high users of primary care but often face unmet needs and poor-quality care. Providers lack training, knowledge and have biased practices and behaviors toward people with disabilities (PWD); which ultimately undermines their quality of care. Focus of the Article: The aim is to identify behavior change interventions for decreasing health care disparities for people with disabilities in a healthcare setting, determine whether those interventions used key features of social marketing and identify gaps in research and practice. Research Question: To what extent has the social marketing framework been used to improve health care for PWD by influencing the behavior of health care providers in a primary health care setting? Program Design/Approach: Scoping Review. Importance to the Social Marketing Field: Social marketing has a long and robust history in health education and public health promotion, yet limited work has been done in the disabilities sector. The social marketing framework encompasses the appropriate features to aligned with the core principles of the social model of disability, which espouses that the barriers for PWD lie within society and not within the individual. Incorporating elements of the social model of disability into the social marketing framework could foster a better understanding of the separation of impairment and disability in the healthcare sector and open a new area of research for the field. Results: Four articles were found that target primary care providers. Overall, the studies aimed to increase knowledge, mostly for clinically practices and processes, not clinical behavior change. None were designed to capture if initial knowledge gains led to changes in behavior toward PWD. Recommendations: The lack of published research provides an opportunity to investigate both the applicability and efficacy of social marketing in reducing health care disparities for PWD in a primary care setting. Integrating the social model of disability into the social marketing framework may be an avenue to inform future interventions aimed to increase health equity and inclusiveness through behavior change interventions at a systems level.


Medicne pravo ◽  
2021 ◽  
pp. 86-94
Author(s):  
R. B. Hobor

In spite of all the short-comings, the level of protection of rights and capabilities of people with disabilities has become a good indicator of nation’s development, and such a trend is nothing but hopeful. At the same time, one can hardly imagine that this high attitude would be attainable without the influence of left liberal ideologies, that among omnibus achievements granted the shift from medical to social disabilities model.This situation cannot stand but to resemble in a certain state of rights and capabilities exercise, and even the availability of access to the key resources is impossible to bring to the point of marginalization of the mental and physical health problems. As the analyzed material shows, left liberal ideologists,being responsible for shaping the current International Law on Persons with Disabilities, finally succeeded in promoting their principle ideas in the nation case-law. The right to water, lay down on the ship’s practice, as you will look lower, you can use the clever illustration of that relief flow, as the national judiciary can fix the development of the rights and capabilities of individuals from the same basis.The article further develops the idea, that national courts sometimes tend to use realistic approach (as invented by R. Pound, J. Llewellyn, O.W. Holmes) for the sake of implementing the social model of disability. It has been concluded that legal realism is a transmitter for left liberal values in the modern western societies.


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