scholarly journals Routinely collected patient data in neurology research: a systematic mapping review

BMC Neurology ◽  
2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Fran Biggin ◽  
Hedley C. A. Emsley ◽  
Jo Knight

Abstract Background This review focuses on neurology research which uses routinely collected data. The number of such studies is growing alongside the expansion of data collection. We aim to gain a broad picture of the scope of how routine healthcare data have been utilised. Methods This study follows a systematic mapping review approach which does not make a judgement on the quality of the papers included in the review, thereby enabling a complete overview of the field. Results Of 4481 publications retrieved, 386 met the eligibility criteria for this study. These publications covered a wide range of conditions, but the majority were based on one or only a small number of neurological conditions. In particular, publications concerned with three discrete areas of neurological practice - multiple sclerosis (MS), epilepsy/seizure and Parkinson’s disease - accounted for 60% of the total. MS was the focus of the highest proportion of eligible studies (35%), yet in the recent Global Burden of Neurological Disease study it ranks only 14th out of 15 neurological disorders for DALY rates. In contrast, migraine is the neurological disorder with the highest ranking of DALYs globally (after stroke) and yet it was represented by only 4% of eligible studies. Conclusion This review shows that there is a disproportionately large body of literature pertaining to relatively rare disorders, and a correspondingly small body of literature describing more common conditions. Therefore, there is potential for future research to redress this balance.

2020 ◽  
Author(s):  
Frances Biggin ◽  
Hedley Emsley ◽  
Jo Knight

Abstract Background This review focuses on neurology research which uses routinely collected data. The number of such studies is growing alongside the expansion of data collection. We aim to gain a broad picture of the scope of how routine healthcare data have been utilised. Methods This study follows a systematic mapping review approach which does not make a judgement on the quality of the papers included in the review, thereby enabling a complete overview of the field. Results Of 4481 publications retrieved, 386 met the eligibility criteria for this study. These publications covered a wide range of conditions, but the majority were based on one or only a small number of neurological conditions. In particular, publications concerned with three discrete areas of neurological practice - multiple sclerosis (MS), epilepsy/seizure and Parkinson’s disease - accounted for 60% of the total. MS was the focus of the highest proportion of eligible studies (35%), yet in the recent Global Burden of Neurological Disease study it ranks only 14 th out of 15 neurological disorders for DALY rates. In contrast, migraine is the neurological disorder with the highest ranking of DALYs globally (after stroke) and yet it was represented by only 4% of eligible studies. Conclusion This review shows that there is a disproportionately large body of literature pertaining to relatively rare disorders, and a correspondingly small body of literature describing more common conditions. Therefore, there is potential for future research to redress this balance.


2020 ◽  
Author(s):  
Frances Biggin ◽  
Hedley Emsley ◽  
Jo Knight

Abstract Background This review focuses on neurology research which uses routinely collected data. The number of such studies is growing alongside the expansion of data collection. We aim to gain a broad picture of the scope of how routine healthcare data have been utilised. Methods This study follows a systematic mapping review approach which does not make a judgement on the quality of the papers included in the review, thereby enabling a complete overview of the field. Results Of 4481 publications retrieved, 386 met the eligibility criteria for this study. These publications covered a wide range of conditions, but the majority were based on one or only a small number of neurological conditions. In particular, publications concerned with three discrete areas of neurological practice - multiple sclerosis (MS), epilepsy/seizure and Parkinson’s disease - accounted for 60% of the total. MS was the focus of the highest proportion of eligible studies (35%), yet in the recent Global Burden of Neurological Disease study it ranks only 14th out of 15 neurological disorders for DALY rates. In contrast, migraine is the neurological disorder with the highest ranking of DALYs globally (after stroke) and yet it was represented by only 4% of eligible studies. Conclusion This review shows that there is a disproportionately large body of literature pertaining to relatively rare disorders, and a correspondingly small body of literature describing more common conditions. Therefore, there is potential for future research to redress this balance.


2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Hamideh Nafar ◽  
Emir Tahmazi Aghdam ◽  
Naser Derakhshani ◽  
Nadia Sani’ee ◽  
Sakineh Sharifian ◽  
...  

Abstract Introduction An effective response to an emergency situation relies on health care workers’ preparedness. The main purpose of this study was to provide a comprehensive overview of relevant studies regarding the willingness to work in emergency and disaster situations, describe and classify the most important challenges and solutions, identifying knowledge gaps in the literature which could inform future research. Methods In this Systematic Mapping Review required information was searched from PubMed, Scopus, the web of science, Embase databases, and Google scholar search engine in the period 2000–2020. Data were analyzed using a content framework analysis. Results From 2902 article search results, 26 articles met the inclusion criteria. The studies varied in terms of aim, study design, and detail of reporting. The results showed that nearly three-quarters of studies were conducted in high and middle-income countries. Most of the studies were published in 2020 due to the COVID-19 pandemic. Also, the most common types of crises reported in the included studies were emerging and re-emerging infectious diseases. The results show that most of the problems were in the dimension of mental and psychological issues, personnel health concerns, and management relationship with personnel. Conclusion This mapping review illustrated a big picture of health workers' resilience in disaster conditions. This review presents an overview of different kinds of strategies that address the challenges. One of the most important challenges in health workforce retention is poor communication between managers and staff. Being away from family, which leads to mental fatigue, puts staff in moral dilemmas. Attracting adequate health professionals, especially volunteers and regulating the shifts of health personnel in crisis time will largely prevent burnout.


2017 ◽  
Vol 20 (12) ◽  
pp. 2104-2113 ◽  
Author(s):  
Stefanie C Gissing ◽  
Rebecca Pradeilles ◽  
Hibbah A Osei-Kwasi ◽  
Emmanuel Cohen ◽  
Michelle Holdsworth

AbstractObjectiveTo (i) systematically review the literature to determine the factors influencing diet and dietary behaviour in women living in urban Africa; (ii) present these in a visual map; and (iii) utilize this to identify potentially important areas for future research.DesignSystematic mapping review. The review protocol was registered at PROSPERO (http://www.crd.york.ac.uk/PROSPERO/; registration number CRD42015017749). Six databases were systematically searched, followed by reference and citation searching. Eligibility criteria included women aged 18–70 years living in urban Africa, any design/methodology, exploring any driver, using any measure of dietary behaviour. Quality appraisal occurred parallel with data extraction. Twelve predominantly cross-sectional quantitative studies were included; reported in seventeen publications. Determinants were synthesized narratively and compiled into a map adapted from an existing ecological model based on research in high-income countries.SettingUrban Africa.SubjectsAfrican women aged 18–70 years.ResultsDeterminants significantly associated with unhealthy dietary behaviour ranged from the individual to macro level, comprising negative body image perception, perceptions of insufficient food quantity and poorer quality, poorer food knowledge, skipping meals, snacking less, higher alcohol consumption, unhealthy overall lifestyle, older age, higher socio-economic status, having an education, lower household food expenditure, frequent eating outside the home and media influence. Marital status and strong cultural and religious beliefs were also identified as possible determinants.ConclusionsFew studies have investigated drivers of dietary behaviours in urban African settings. Predominantly individual-level factors were reported. Gaps in the literature identified a need for research into the neglected areas: social, physical and macro-level drivers of food choice.


2020 ◽  
Vol 21 (1) ◽  
pp. 96-102
Author(s):  
Theodora K. Tsouloufi ◽  
Louise M. Donnison ◽  
Karen L. Smyth ◽  
Andrew R. Peters

AbstractAlmost 19% of the GDP of Ethiopia results from livestock production. Ruminants, in particular, form the majority of the national herd and are a critical source of income for smallholder farmers. Infectious diseases have been identified as a major cause of reduced livestock productivity in low- and middle-income countries (LMICs); therefore, a sound and comprehensive understanding of the relevant evidence would be beneficial in order to enable decision making on disease control policies. However, livestock disease data from sub-Saharan Africa is variable and disparate, which poses a challenge for evidence synthesis. This paper describes a protocol for a systematic mapping review of the recent available evidence on ruminant disease prevalence and associated mortality in Ethiopia. Literature sources will be identified using database search strategies. The titles, abstracts and, subsequently, full texts will be screened for inclusion based on predefined eligibility criteria. Specific data will be extracted and a preliminary qualitative assessment of the evidence will be performed using predefined indicators. The planned systematic map will be the first to provide a large-scale overview of the available ruminant disease evidence in Ethiopia; the final output will be an interactive dashboard tool to inform critical stakeholders in policy and research.


2021 ◽  
Author(s):  
Antony M. J. Stadnyk ◽  
Franco M. Impellizzeri ◽  
Jamie Stanley ◽  
Paolo Menaspà ◽  
Katie M. Slattery

Abstract Background Track cyclists must develop mental, physical, tactical and technical capabilities to achieve success at an elite level. Given the importance of these components in determining performance, it is of interest to understand the volume of evidence to support implementation in practice by coaches, practitioners, and athletes. Objective The aim of this study was to conduct a systematic mapping review to describe the current scale and density of research for testing, training and optimising performance in track cycling. Methods All publications involving track cyclist participants were reviewed from four databases (PubMed, SPORTDiscus, Academic Search Complete, Cochrane Library) plus additional sources. Search results returned 4019 records, of which 71 met the inclusion criteria for the review. Results The review revealed most published track cycling research investigated athlete testing followed by performance optimisation, with training being the least addressed domain. Research on the physical components of track cycling has been published far more frequently than for tactical or technical components, and only one study was published on the mental components of track cycling. No true experimental research using track cyclists has been published, with 51 non-experimental and 20 quasi-experimental study designs. Conclusions Research in track cycling has been growing steadily. However, it is evident there is a clear preference toward understanding the physical—rather than mental, tactical, or technical—demands of track cycling. Future research should investigate how this aligns with coach, practitioner, and athlete needs for achieving track cycling success. Registration This systematic mapping review was registered on the Open Science Framework (osf.io/wt7eq).


2021 ◽  
Author(s):  
Tasnim M. A. Zayet ◽  
Maizatul Akmar Ismail ◽  
Kasturi Dewi Varathan ◽  
Rafidah M. D. Noor ◽  
Hui Na Chua ◽  
...  

2019 ◽  
Vol 46 (4) ◽  
pp. 592-601 ◽  
Author(s):  
Susanna Geidne ◽  
Sami Kokko ◽  
Aoife Lane ◽  
Linda Ooms ◽  
Anne Vuillemin ◽  
...  

Many researchers and authorities have recognized the important role that sports clubs can play in public health. In spite of attempts to create a theoretical framework in the early 2000s, a thorough understanding of sports clubs as a setting for health promotion (HP) is lacking. Despite calls for more effective, sustainable, and theoretically grounded interventions, previous literature reviews have identified no controlled studies assessing HP interventions in sports clubs. This systematic mapping review details how the settings-based approach is applied through HP interventions in sports clubs and highlights facilitators and barriers for sports clubs to become health-promoting settings. In addition, the mapped facilitators and barriers have been used to reformulate previous guidelines of HP in sports clubs. Seven databases were searched for empirical research published between 1986 and 2017. Fifty-eight studies were included, principally coming from Australia and Europe, describing 33 unique interventions, which targeted mostly male participants in team sports. The settings-based approach was not yet applied in sports clubs, as more than half of the interventions implemented in sports club targeted only one level of the socio-ecological model, as well as focused only on study participants rather than the club overall. Based on empirical data, the analysis of facilitators and barriers helped develop revised guidelines for sports clubs to implement settings-based HP. This will be particularly useful when implementing HP initiatives to aid in the development of sports clubs working with a whole setting approach.


Sign in / Sign up

Export Citation Format

Share Document