scholarly journals Chronic patients’ satisfaction and priorities regarding medical care, information and services and quality of life: a French online patient community survey

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Apolline Adé ◽  
Frédérique Debroucker ◽  
Laura Delporte ◽  
Cécile De Monclin ◽  
Emmanuel Fayet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medical Care ◽  
Community Survey ◽  
Chronic Patients ◽  
Patients Satisfaction ◽  
Care Information

scholarly journals Chronic patients’ satisfaction and priorities regarding medical care, information and services and quality of life: a French online patient community survey

2020 ◽  
Author(s):  
Apolline Adé ◽  
Frédérique Debroucker ◽  
Laura Delporte ◽  
Cécile De Monclin ◽  
Emmanuel Fayet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medical Care ◽  
Healthcare System ◽  
New Technologies ◽  
Care Pathway ◽  
Active Listening ◽  
Chronic Patients ◽  
Patients Satisfaction ◽  
Care Information

Abstract Background: The French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease. The aim of this study is to assess the satisfaction and priorities of chronic patients regarding medical care, information and services and their quality of life.Methods: A cross-sectional study was conducted from February to March 2018 via the French Carenity platform. Adult patients enrolled in type 1 diabetes, heart failure or obesity communities were invited to answer an online questionnaire. A numeric scale from 0 (meaning not satisfied) to 5 was used to evaluate patients’ satisfaction. Patients’ priorities were assessed using a ranking question. Patients’ satisfaction and priorities have been combined in a matrix to identify patients’ expectations.Results: 67 respondents of each condition answered a questionnaire. The most important and least satisfactory items about medical care are availability and active listening from healthcare providers, as well as access to coordinated and multidisciplinary care. Regarding information and services, respondents mostly expect connected medical devices, in addition to lifestyle and dietary measures. As for the quality of life, respondents fear that their chronic condition will keep impacting their daily mood and ability to do physical activities.Conclusions: This study shows that chronic patients want to be more actively involved in their care pathway. Patient training and therapeutic patient education programs could help them manage their chronic conditions within a patient-centred healthcare system.

scholarly journals Chronic patients’ satisfaction and priorities regarding medical care, information and services and quality of life: a French online patient community survey

2020 ◽  
Author(s):  
Apolline Adé ◽  
Frédérique Debroucker ◽  
Laura Delporte ◽  
Cécile De Monclin ◽  
Emmanuel Fayet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medical Care ◽  
Healthcare System ◽  
New Technologies ◽  
Care Pathway ◽  
Active Listening ◽  
Chronic Patients ◽  
Patients Satisfaction ◽  
Care Information

Abstract Background: The French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease. The aim of this study is to assess the satisfaction and priorities of chronic patients regarding medical care, information and services and their quality of life.Methods: A cross-sectional study was conducted from February to March 2018 via the French Carenity platform. Adult patients enrolled in type 1 diabetes, heart failure or obesity communities were invited to answer an online questionnaire. A numeric scale from 0 (meaning not satisfied) to 5 was used to evaluate patients’ satisfaction. Patients’ priorities were assessed using a ranking question. Patients’ satisfaction and priorities have been combined in a matrix to identify patients’ expectations.Results: 67 respondents of each condition answered a questionnaire. The most important and least satisfactory items about medical care are availability and active listening from healthcare providers, as well as access to coordinated and multidisciplinary care. Regarding information and services, respondents mostly expect connected medical devices, in addition to lifestyle and dietary measures. As for the quality of life, respondents fear that their chronic condition will keep impacting their daily mood and ability to do physical activities.Conclusions: This study shows that chronic patients want to be more actively involved in their care pathway. Patient training and therapeutic patient education programs could help them manage their chronic conditions within a patient-centred healthcare system.

scholarly journals Chronic patients’ satisfaction and priorities regarding medical care, information and services and quality of life: a French online patient community survey

2019 ◽  
Author(s):  
Apolline Adé ◽  
Frédérique Debroucker ◽  
Laura Delporte ◽  
Cécile De Monclin ◽  
Emmanuel Fayet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medical Care ◽  
Healthcare System ◽  
New Technologies ◽  
Care Pathway ◽  
Active Listening ◽  
Chronic Patients ◽  
Patients Satisfaction ◽  
Care Information

Abstract Background: The French healthcare system is evolving to meet the challenges of an aging population, the growing prevalence of chronic diseases, the development of new technologies and the increasing involvement of patients in the management of their disease. The aim of this study is to assess the satisfaction and priorities of chronic patients regarding medical care, information and services and their quality of life. Methods: A cross-sectional study was conducted from February to March 2018 via the French Carenity platform. Adult patients enrolled in type 1 diabetes, heart failure or obesity communities were invited to answer an online questionnaire. A numeric scale from 0 (meaning not satisfied) to 5 was used to evaluate patients’ satisfaction. Patients’ priorities were assessed using a ranking question. Patients’ satisfaction and priorities have been combined in a matrix to identify patients’ expectations. Results: 67 respondents of each condition answered a questionnaire. The most important and least satisfactory items about medical care are availability and active listening from healthcare providers, as well as access to coordinated and multidisciplinary care. Regarding information and services, respondents mostly expect connected medical devices, in addition to lifestyle and dietary measures. As for the quality of life, respondents fear that their chronic condition will keep impacting their daily mood and ability to do physical activities. Conclusions: This study shows that chronic patients want to be more actively involved in their care pathway. Patient training and therapeutic patient education programs could help them manage their chronic conditions within a patient-centered healthcare system.

Chronic Patients’ Satisfaction with the Medical Aid

2020 ◽  
pp. 34-38
Author(s):  
Yekaterina Grigoryeva ◽  
Mariya Yeremina ◽  
Galina Bochkareva
Keyword(s):  
Medical Care ◽  
Chronic Diseases ◽  
Structural Component ◽  
Comprehensive Assessment ◽  
Chronic Patients ◽  
Medical Aid ◽  
Patients Satisfaction ◽  
Medical Institutions

Population’s satisfaction with medical care has recently become an important structural component of the comprehensive assessment of the healthcare activities. The satisfaction is subjectively determined which makes it possible to assess the level of the population’s satisfaction with medical care. The sociological survey is recognised as the most informative method of study. The article provides the results of study of satisfaction with medical care of the respondents suffering from chronic diseases and followed up at the medical institutions of Saratov that has been conducted by the authors.

scholarly journals The lifetime prevalence and impact of generalized anxiety disorders in an epidemiologic Italian National Survey carried out by clinicians by means of semi-structured interviews

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Antonio Preti ◽  
Roberto Demontis ◽  
Giulia Cossu ◽  
Goce Kalcev ◽  
Federico Cabras ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Tertiary Care ◽  
Community Survey ◽  
Lifetime Prevalence ◽  
Generalized Anxiety ◽  
Strong Impact ◽  
Co Morbidity ◽  
Specialized Care

Abstract Background Generalized anxiety disorder (GAD) is one of the most reported diagnoses in psychiatry, but there is some discrepancy between the cases identified in community studies and those identified in tertiary care. This study set out to evaluate whether the use of clinicians as interviewers may provide estimates in a community survey close to those observed in primary or specialized care. Methods This is a community survey on a randomly selected sample of 2338 adult subjects. The Advanced Neuropsychiatric Tools and Assessment Schedule (ANTAS) was administered by clinicians, providing lifetime diagnosis based on the DSM-IV-TR. Health-related quality of life (HR-QoL) was measured with the Short-Form Health Survey (SF-12). Results Overall, 55 (2.3%) subjects met the criteria for GAD, with greater prevalence in women (3.6%) than in men (0.9%): OR = 4.02; 95%CI: 1.96–8.26. Up to 40% of those with GAD had at least another diagnosis of mood, anxiety, or eating disorders. The mean score of SF-12 in people with GAD was 32.33 ± 6.8, with a higher attributable burden than in other conditions except for major depressive disorder. Conclusions We found a relatively lower lifetime prevalence of GAD than in community surveys based on lay interviewers and a structured interview. The identified cases of GAD showed a strong impact on the quality of life regardless of co-morbidity and high risk in women, suggesting a profile similar to the one identified from studies in primary and specialized care.

scholarly journals Beneficial Effects of Remote Medical Care for Patients with Hereditary Hemorrhagic Telangiectasia during the COVID-19 Pandemic

2021 ◽  
Vol 10 (11) ◽  
pp. 2311
Author(s):  
Eleonora Gaetani ◽  
Fabiana Agostini ◽  
Luigi Di Martino ◽  
Denis Occhipinti ◽  
Giulio Cesare Passali ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Emergency Room ◽  
Medical Care ◽  
Hereditary Hemorrhagic Telangiectasia ◽  
Iron Supplementation ◽  
Quality Care ◽  
Psychological Status ◽  
Blood Transfusions ◽  
Emergency Room Visits

Background: Hereditary hemorrhagic telangiectasia (HHT) needs high-quality care and multidisciplinary management. During the COVID-19 pandemic, most non-urgent clinical activities for HHT outpatients were suspended. We conducted an analytical observational cohort study to evaluate whether medical and psychological support, provided through remote consultation during the COVID-19 pandemic, could reduce the complications of HHT. Methods: A structured regimen of remote consultations, conducted by either video-calls, telephone calls, or e-mails, was provided by a multidisciplinary group of physicians to a set of patients of our HHT center. The outcomes considered were: number of emergency room visits/hospitalizations, need of blood transfusions, need of iron supplementation, worsening of epistaxis, and psychological status. Results: The study included 45 patients who received remote assistance for a total of eight months. During this period, 9 patients required emergency room visits, 6 needed blood transfusions, and 24 needed iron supplementation. This was not different from what was registered among the same 45 patients in the same period of the previous year. Remote care also resulted in better management of epistaxis and improved quality of life, with the mean epistaxis severity score and the Euro-Quality of Life-Visual Analogue Scale that were significantly better at the end than at the beginning of the study. Discussion: Remote medical care might be a valid support for HHT subjects during periods of suspended outpatient surveillance, like the COVID-19 pandemic.

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