UPHOLDING THE PATIENT NARRATIVE IN PALLIATIVE CARE: THE ROLE OF THE HEALTHCARE CHAPLAIN IN THE MULTIDISCIPLINARY TEAM

2013 ◽  
Vol 13 (1) ◽  
pp. 17-21
Author(s):  
Stuart M. Coates
Keyword(s):  
Palliative Care ◽  
Multidisciplinary Team ◽  
Patient Narrative

Palliative care nursing in the outpatient setting

2015 ◽  
pp. 761-776
Author(s):  
Pamela Stitzlein Davies
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Multidisciplinary Team ◽  
Outpatient Setting ◽  
Advanced Practice ◽  
Ambulatory Clinic ◽  
Practice Nurses ◽  
Adult Outpatient ◽  
Care Nursing

Nurses and advanced practice nurses (APNs), with their extensive psychosocial training, and in collaboration with a multidisciplinary team, play an important role in helping ambulatory clinic patients and caregivers navigate concerns that arise as the end of life approaches. This chapter addresses the provision of palliative care in the adult outpatient setting, with a focus on the role of nurses and APNs.

The Role of Radiation Therapy in Palliative Care

1995 ◽  
Vol 11 (1) ◽  
pp. 19-26 ◽  
Author(s):  
Peter Kirkbride
Keyword(s):  
Palliative Care ◽  
Radiation Therapy ◽  
Side Effects ◽  
Significant Role ◽  
Multidisciplinary Team ◽  
Malignant Disease ◽  
Palliative Radiotherapy ◽  
Radiation Oncologists

Radiation therapy plays a significant role in the palliation of symptoms of patients with malignant disease. This article looks at the scientific and clinical rationales for its use and discusses some of the current controversies in palliative radiotherapy. The utility of radiation therapy is discussed and potential side effects are described. Radiation oncologists are important members of the multidisciplinary team providing palliative care. Their involvement in the care of patients with advanced or metastatic malignant disease allows patients to benefit from a modality of treatment which can be both effective and minimally inconvenient when used appropriately.

THE ROLE OF THE PHARMACIST IN PAEDIATRIC PALLIATIVE CARE

2016 ◽  
Vol 101 (9) ◽  
pp. e2.15-e2
Author(s):  
Jumana Khan ◽  
Sian Gaze ◽  
Stephen Tomlin
Keyword(s):  
Palliative Care ◽  
Multidisciplinary Team ◽  
Community Setting ◽  
Community Pharmacists ◽  
Online Questionnaire ◽  
Microsoft Excel ◽  
Paediatric Palliative Care ◽  
Important Input ◽  
The Uk

AimTo explore what involvement pharmacists in the UK have in paediatric palliative careObjectives1. To determine the current roles and services provided by pharmacists to paediatric palliative care patients.2. To establish how other members of the multidisciplinary team perceive the pharmacist's role and the extent to which they value the pharmacist's contributions.3. To identify the references used by the multidisciplinary team to make clinical decisions about medication use in paediatric palliative care patients.MethodsAn online questionnaire was designed and emailed to members of the Neonatal and Paediatric Pharmacist's Group and the Association of Paediatric Palliative Medicine. The questionnaire was also sent by post to selected community pharmacists as palliative care is often provided to children in a community setting. Results were analysed using Microsoft Excel and SPSS version 22.ResultsA response rate of 27% (114/430) was achieved. Pharmacists reported supporting children receiving palliative care by supplying medicines, dealing with medication related enquiries and providing advice to nursing and medical staff on the compatibility and stability of drugs. The pharmacist's contributions were highly valued by other members of the paediatric palliative care team as a median rating of 9 (out of 10) was obtained. The results also showed that differences existed in the references used by pharmacists and other healthcare professionals–the Children's British National Formulary was the most commonly used reference across all disciplnes when caring for children requiring palliative care.ConclusionThis is one of the first studies to outline the roles of pharmacists working in paediatric palliative care and has highlighted that pharmacists have an important input in the care of these patients.

Much Ado About Fried Chicken: Abetting Aspiration or Respecting Autonomy?

2019 ◽  
Vol 28 (3) ◽  
pp. 1356-1362
Author(s):  
Laurence Tan Lean Chin ◽  
Yu Jun Lim ◽  
Wan Ling Choo
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Multidisciplinary Team ◽  
Biopsychosocial Model ◽  
Family Members ◽  
Clinical Decisions ◽  
Goals Of Care ◽  
Complex Needs ◽  
Aspiration Risk ◽  
Patient Centric

Purpose Palliative care is a philosophy of care that encompasses holistic, patient-centric care involving patients and their family members and loved ones. Palliative care patients often have complex needs. A common challenge in managing patients near their end of life is the complexity of navigating clinical decisions and finding achievable and realistic goals of care that are in line with the values and wishes of patients. This often results in differing opinions and conflicts within the multidisciplinary team. Conclusion This article describes a tool derived from the biopsychosocial model and the 4-quadrant ethical model. The authors describe the use of this tool in managing a patient who wishes to have fried chicken despite aspiration risk and how this tool was used to encourage discussions and reduce conflict and distress within the multidisciplinary team.

Update regarding anemia in heart failure

Medic ro ◽  
2020 ◽  
Vol 6 (1) ◽  
pp. 8-13
Author(s):  
Roxana Marcela Sânpălean ◽  
Dorina Nastasia Petra
Keyword(s):  
Heart Failure ◽  
Iron Deficiency ◽  
Multidisciplinary Team ◽  
Significant Proportion ◽  
Life Quality ◽  
Lower Number ◽  
Nutritional Deficiencies ◽  
Cardiac Morbidity ◽  
Appropriate Treatment

Heart failure (HF) is a burden for the healthcare system. The incidence will increase significantly due to the aging of po­pu­la­tion, which is associated with multiple comorbidities. Ane­mia and iron deficiency are common in patients with HF, their etiology being often multifactorial. The screening for anemia and iron deficiency is recommended as soon as pos­si­ble. There are often no targeted investigations, therefore a significant proportion of cases are underdiagnosed. The ma­nagement of patients may focus on identifying and correcting the cause. Anemia can occur due to nutritional deficiencies, infla­m­mation, renal failure, bone marrow dysfunction, neuro­hor­mo­nal activity, treatment and hemodilution. The appropriate the­ra­py for the patients with anemia and HF will contribute to the improvement of life quality. The only recommended iron product is ferric carboxymalose administered by in­tra­venous infusion. Under the appropriate treatment, the pa­tients showed an increase in effort tolerance, with an im­prove­ment in symptomatology and a lower number of hos­pi­ta­li­za­tion days. The management of these cases is handled by a multidisciplinary team consisting of a general prac­ti­tio­ner, a cardiologist and other specialists if the patient has other comorbidities. The role of the general practitioner is essential, as he can perform proper screening, prevention and management, developed by a multidisciplinary team, in order to reduce the cardiac morbidity and mortality.  

The role of nutritional support in the provision of palliative care

2020 ◽  
pp. 55-64
Author(s):  
N. Zarechnov ◽  
A. Kuznetsov ◽  
N. Seliverstova
Keyword(s):  
Palliative Care ◽  
Nutritional Support

The article is devoted to the problem of nutrition of patients receiving palliative care. The authors emphasize the importance of nutritional support for this group of patients and describe the experience of enteral and paraenteral nutrition.

Role of the multidisciplinary team in the diagnosis and treatment of hepatocellular carcinoma

2012 ◽  
Vol 6 (2) ◽  
pp. 173-185 ◽  
Author(s):  
Robert G Gish ◽  
Riccardo Lencioni ◽  
Adrian M Di Bisceglie ◽  
Jean-Luc Raoul ◽  
Vincenzo Mazzaferro
Keyword(s):  
Hepatocellular Carcinoma ◽  
Multidisciplinary Team ◽  
Diagnosis And Treatment

scholarly journals Palliative care in paediatric oncology: perceptions, expertise and practices from the perspective of the multidisciplinary team

2015 ◽  
Vol 36 (2) ◽  
pp. 56-62 ◽  
Author(s):  
Adriana Ferreira da Silva ◽  
Helena Becker Issi ◽  
Maria da Graça Corso da Motta ◽  
Daisy Zanchi de Abreu Botene
Keyword(s):  
Palliative Care ◽  
Multidisciplinary Team ◽  
Structured Interview ◽  
Paediatric Oncology ◽  
Lessons Learned ◽  
Team Members ◽  
Descriptive Research ◽  
The Family ◽  
Research Questions ◽  
Oncology Unit

OBJECTIVE: To reveal the perceptions, expertise and practices of multi-professional teams providing palliative care to children in a paediatric oncology unit. The research questions were based on everyday care, facilitations and difficulties, essential aspects of professional approaches, and the inter-disciplinary focus of care for children in palliative care and their families. METHOD: Qualitative, exploratory and descriptive research. Data were collected from June to October 2013 from nine professional multidisciplinary team members by means of a semi-structured interview submitted to thematic analysis. RESULTS: The following four themes emerged from analysis: palliative care: conceptions of the multi-professional team; the construction of singular care; the facilitations and difficulties experienced by the team and significant lessons learned. CONCLUSIONS: The subjects revealed that the team also suffers with the death of a child and, like the family, moves toward the construction of coping mechanisms for the elaboration of mourning. Paradoxically, the team shares knowledge to determine the foundations of a singular therapeutic project and inserts the family in this process so that it can be the protagonist of the child's care.

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