scholarly journals Using reflexive tools for coping and bringing closure in pediatric palliative care: A music therapist’s story of working with a terminally ill child.

2011 ◽  
Vol 11 (3) ◽  
Author(s):  
Maeve Rigney
Keyword(s):  
Palliative Care ◽  
Music Therapy ◽  
Coping Skills ◽  
Terminally Ill ◽  
Young Girl ◽  
Pediatric Palliative Care ◽  
Terminal Cancer ◽  
Music Therapist ◽  
Her Family ◽  
Personal Reflections

 This paper outlines the therapeutic journey of a newly qualified music therapist and a young girl with terminal cancer. As well as describing the clinical sessions with this young girl and her family, it includes personal reflections from the journal of the therapist, used as a method of self-review and clarification of thoughts and feelings following each session. The aim of this paper is to narrate the music therapy journey with Tina * from the music therapist's perspective, and to share my thoughts and feelings on coping while working with terminally ill children. In addition to outlining the significance of using reflexive tools for this type of work as a way to improve coping skills and to work more effectively when the future with your client is uncertain, I hope to encourage further others to share their work in pediatric palliative care. 

Methods of Hydration in Palliative Care Patients

1998 ◽  
Vol 14 (2) ◽  
pp. 6-13 ◽  
Author(s):  
Nathalie Steiner ◽  
Eduardo Bruera
Keyword(s):  
Palliative Care ◽  
Terminally Ill ◽  
Oral Intake ◽  
Fluid Replacement ◽  
Hydration Status ◽  
Terminal Cancer ◽  
Risks And Benefits ◽  
Intravenous Hydration ◽  
Potential Risks ◽  
Careful Assessment

A strong and often polarized debate has taken place during recent years concerning the consequences of dehydration in the terminally ill patient. When a patient has a severely restricted oral intake or is found to be dehydrated, the decision to administer fluids should be individualized and made on the basis of a careful assessment that considers problems related to dehydration, potential risks and benefits of fluid replacement, and patients’ and families’ wishes. This review discusses the assessment of hydration status in the terminal cancer patient and the options for fluid administration in the cases where evaluation of the patients’ condition has led to this indication. These include different modes of hypodermoclysis, intravenous hydration, use of the nasogastric route, and proctoclysis. Arguments for and against rehydration have been previously addressed by other authors and fall outside the scope of this review.

Distress, Stress and Solidarity in Palliative Care

1993 ◽  
Vol 27 (1) ◽  
pp. 5-15 ◽  
Author(s):  
Johanne De Montigny
Keyword(s):  
Palliative Care ◽  
Clinical Observation ◽  
Terminally Ill ◽  
The Other ◽  
Terminal Cancer ◽  
Physical Energy ◽  
Number Of Patients ◽  
The Family ◽  
Good Number

What does the stoic, silent expression of the terminal cancer patient signify? Clinical observation suggests that this emotional silence is often a physical energy-saving device, essential for survival to the very last breath. Caregivers and survivors may also experience a variety of contradictory and inexpressible emotions in silence. The role of the psychologist on the palliative care unit is to be there for the terminally-ill, as well as for the family/friends, both during the dying and bereavement, and for the caregiver team. This article focuses on the work of decoding ordinary words which for a good number of patients hide a painful past. It also stresses the necessity to remain open to the unexpected and to allow and trust the other to live what happens since there is a constant and unconscious effort to fill the void.

Music Therapy in Pediatric Palliative Care

2011 ◽  
Vol 29 (3) ◽  
pp. 219-226 ◽  
Author(s):  
Kathryn J. Lindenfelser ◽  
Cherry Hense ◽  
Katrina McFerran
Keyword(s):  
Palliative Care ◽  
Music Therapy ◽  
Pediatric Palliative Care

scholarly journals Child Life Specialists in Pediatric Hospital Care

2020 ◽  
Vol 05 (03) ◽  
pp. 1-1
Author(s):  
Kokila Jeyamurugan ◽  
◽  
Ratna B Basak ◽  
Keyword(s):  
Palliative Care ◽  
Music Therapy ◽  
Hospital Care ◽  
Palliative Care Team ◽  
Child Life ◽  
Pediatric Palliative Care ◽  
Pet Therapy ◽  
Pediatric Hospital ◽  
Child Life Specialists ◽  
Form Part

Child life specialists (CLS) are trained providers who form part of a pediatric multidisciplinary and pediatric palliative care team. Their role is invaluable to mitigate the stress and anxiety of children during hospitalization. They may use various strategies in children like play, art and music therapy and pet therapy, to help self-express and cope with painful procedures.We present a brief narrative on CLS with a case of a 10- year- old Hispanic boy who had metastatic osteosarcoma.The case illustration is from a prior institute that one of the coauthors was associated with.

scholarly journals The Role of Physiotherapy in Pediatric Palliative Care: A Systematic Review

Children ◽  
2021 ◽  
Vol 8 (11) ◽  
pp. 1043
Author(s):  
Silvia Ortiz-Campoy ◽  
Cristina Lirio-Romero ◽  
Helena Romay-Barrero ◽  
David Martín-Caro Álvarez ◽  
Purificación López-Muñoz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Palliative Care ◽  
Scientific Evidence ◽  
Pediatric Palliative Care ◽  
Cochrane Library ◽  
Her Family ◽  
Life Threatening ◽  
Respiratory Physiotherapy

Pediatric palliative care (PPC) is a set of actions aimed at children who suffer from a severe or life-threatening disease to alleviate the symptoms of the disease and improve the quality of life of both the child and his/her family. One of the tools used to control symptoms is physiotherapy; however, its application in the child population has not been thoroughly studied. The main objective of this study was to gather, analyze, and critically evaluate the available scientific evidence on physiotherapy in children who require palliative care through a systematic review of the studies published in the last 10 years in the following databases: PubMed, Cochrane Library, PEDro, CINAHL, and Scopus. Of a total of 622 studies, the inclusion criteria were only met by seven articles, which were focused on the relationship between physiotherapy and PPC. This study analyzed: (1) the main pathologies treated, with a predominance of cerebral palsy and cancer; (2) the interventions applied, such as respiratory physiotherapy, neurological physiotherapy, therapeutic massage, and virtual reality; (3) the effects achieved in the child and his/her family, highlighting the control of symptoms and the improvement of the quality of life; and (4) the knowledge of the physiotherapists on PPC, observing that most of the professionals had not received training in this scope. The findings of this review indicate a lack of an adequate evidence foundation for physiotherapy in PPC.

Music and Emotion in Palliative Care

1993 ◽  
Vol 9 (4) ◽  
pp. 48-52 ◽  
Author(s):  
Deborah Salmon
Keyword(s):  
Palliative Care ◽  
Music Therapy ◽  
Care Setting ◽  
Emotional Experience ◽  
Terminally Ill ◽  
Working Through ◽  
Palliative Care Setting ◽  
Music And Emotion

Music and emotion may share certain essential characteristics allowing the depth and breadth of music to resonate with that of emotional experience. It is perhaps this resonance which facilitates the experience, expression and working-through of feelings in music therapy work with the the terminally ill. The author explores five characteristics common to both music and emotion using clinical examples to illustrate how these might be at play in music therapy work in the palliative care setting.

Music Therapy: Variations on a Theme

1993 ◽  
Vol 9 (4) ◽  
pp. 37-39 ◽  
Author(s):  
Susan E. Mandel
Keyword(s):  
Quality Of Life ◽  
Music Therapy ◽  
Terminally Ill ◽  
Music Therapists ◽  
Music Therapist ◽  
Service Training ◽  
Variations On A Theme ◽  
Therapy Service

Music therapists make significant contributions to the multidisciplinary hospice team in its efforts to provide holistic palliative care to terminally ill patients and family members and to promote quality of life. The role of a hospice music therapist is described, including providing direct patient music therapy service, training the hospice team in music therapy, developing and maintaining a music therapy resource centre, and offering bereavement services. A review of patient charts Provides information about patient age, sex, diagnosis, and source and reasons for referral.

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