A prospective examination of neuropsychological functioning in preschool-age children with sickle cell disease and its association with psychosocial factors

2021 ◽  
Author(s):  
Ericka Lisle Anderson
Keyword(s):  
Sickle Cell Disease ◽  
Psychosocial Factors ◽  
Sickle Cell ◽  
Neuropsychological Functioning ◽  
Preschool Age ◽  
Cell Disease ◽  
Preschool Age Children

Children's Perceptions of Psychosocial Factors Related to Sickle Cell Disease

1997 ◽  
Vol 85 (3_suppl) ◽  
pp. 1409-1410 ◽  
Author(s):  
Betholyn F. Gentry ◽  
Lesley Varlik ◽  
Jess Dancery
Keyword(s):  
Sickle Cell Disease ◽  
Psychosocial Factors ◽  
Sickle Cell ◽  
Family Relationships ◽  
Self Esteem ◽  
Psychosocial Issues ◽  
Cell Disease ◽  
Children's Perceptions ◽  
Children’S Perceptions ◽  
Anxiety Depression

Few studies have examined psychosocial issues from the perspective of children who have sickle cell disease. In the present study psychosocial issues of self-esteem, social and family relationships, anxiety, depression, anger, denial, and knowledge were examined using a researcher-developed survey and 12 children with sickle cell disease as informants.

scholarly journals The Relationship of Transcranial Doppler Ultrasonography with Attention, Motor, and Social-Emotional Functioning in Pediatric Sickle Cell Disease

2019 ◽  
Vol 34 (6) ◽  
pp. 842-842
Author(s):  
M Balderrama ◽  
C Merrill ◽  
A Whitaker ◽  
K Kayser
Keyword(s):  
Sickle Cell Disease ◽  
Sickle Cell ◽  
Transcranial Doppler ◽  
Emotional Functioning ◽  
Neuropsychological Functioning ◽  
Cell Disease ◽  
Social Emotional ◽  
Social Emotional Functioning ◽  
Relationship Of ◽  
The Relationship

Abstract Objective Children with sickle cell disease (SCD) are at greater risk for certain neuropsychological deficits due to their medical condition and associated complications. Previous studies have explored the relationship between Transcranial Doppler (TCD) ultrasonography and various domains of neuropsychological functioning in pediatric SCD populations; however, these studies are dated, present variable and inconsistent findings, and are somewhat limited in scope. The goal of this study was to update and expand upon previous research by examining the predictive relationship of TCD results with measures of attention, motor, and social-emotional functioning. Methods Thirty-six patients ages 3-19 with SCD with no known history of stroke, with TCD completed within the past 12 months, underwent a brief neuropsychological exam. Attention, motor, and social-emotional functioning were assessed as appropriate for age using the Conners Continuous Performance Test (K-CPT2/CPT3), Purdue Pegboard, and PROMIS, respectively. TCD values were gathered via medical record review, using the highest value of most recent TCD. Results TCD significantly predicted certain aspects of attention and motor ability, but not social-emotional functioning. Specifically, TCD significantly predicted Detectability (p = .005), Omissions (p = .001), Commissions (p = .012), Perseverations (p = .035), and HRT SD (p = .046) on K-CPT2/CPT-3 and the non-dominant (p = .009) and bilateral (p = .024) trial scores on the Purdue Pegboard. Conclusion This study provides new evidence that TCD may be predictive of motor functioning in pediatric SCD. Results confirm that TCD is predictive of attentional function, though subdomains impacted varied from previous research. While no significant relationship between psychosocial symptoms and TCD were identified, further studies utilizing more comprehensive measurement within this domain is warranted.

scholarly journals Parent Perspectives on Pain Management in Preschool-Age Children With Sickle Cell Disease

2017 ◽  
Vol 35 (1) ◽  
pp. 16-24 ◽  
Author(s):  
Kelsey Smith ◽  
Laura Reinman ◽  
Jeffrey Schatz ◽  
Carla W. Roberts
Keyword(s):  
Pain Management ◽  
Sickle Cell Disease ◽  
Young Children ◽  
Sickle Cell ◽  
Management Strategies ◽  
Preschool Age ◽  
Cell Disease ◽  
Health Maintenance ◽  
The Past ◽  
Additional Education

Pain episodes occur for many preschoolers with sickle cell disease (SCD), but little is known about parent perceptions of managing pain episodes in young children. We surveyed parents of young children with SCD who had managed pain episodes in the past year to assess their management and satisfaction with their strategies, challenges of pain management, and interest in additional education. Parents were recruited from health maintenance visits at a SCD specialty clinic. Forty-two of 51 parents (82%) of 2- to-6-year-olds reported managing pain over the past year. Parents who had managed pain primarily reported using medications. These parents reported at least moderate satisfaction with current management strategies and resources. At least one-third of parents found each facet of pain management queried as at least somewhat challenging. Identifying when their child was in pain, encouraging functional activities, and managing irritable behavior were reported as most challenging. Parents of young children with SCD reported interest in additional pain management education, which could promote better parent and child coping skills.

Adolescents' Perceptions of Psychosocial Factors Related to Sickle Cell Disease

1998 ◽  
Vol 86 (2) ◽  
pp. 626-626 ◽  
Author(s):  
Betholyn F. Gentry ◽  
Lesley Varlik ◽  
Jess Dancer
Keyword(s):  
Sickle Cell Disease ◽  
Psychosocial Factors ◽  
Sickle Cell ◽  
Family Relationships ◽  
Cell Disease ◽  
Self Confidence ◽  
Body Development

12 adolescents with sickle cell disease raced psychosocial reactions to their disease. They had positive social and family relationships but had concerns about body development, self-confidence, being a burden on their families, and death.

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