scholarly journals Lessons from my Elders on Recruitment and Retention into Health Research

2020 ◽  
Vol 30 (Suppl) ◽  
pp. 781-784
Author(s):  
Nina T. Harawa
Keyword(s):  
Ethnic Minority ◽  
Health Research ◽  
Cultural Humility ◽  
Community Members ◽  
Recruitment And Retention ◽  
Care Research ◽  
Successful Recruitment ◽  
Heath Care ◽  
Racial Ethnic

In this brief report, the author shares les­sons from Loretta Jones, MA and William Jenkins, PhD, two elders who shaped her research with communities that occupy intersecting marginalized categories. These lessons were echoed and amplified by the community panelists at the RCMAR workshop on recruitment and retention of diverse elders. They include centering the priorities of communities themselves, help­ing community members envision the types of positive transformations that research can help bring about, engaging and valuing the contributions of diverse sectors of the com­munity, and recognizing the desire of aging individuals and communities to leave a leg­acy. Because heath care, research, and gov­ernmental institutions have engendered so much mistrust in racial/ethnic minority com­munities, researchers must learn first the particular histories and experience of the populations they intend to study. Equipped with this knowledge, cultural humility, and a willingness to listen, researchers can then use these strategies to earn the trust neces­sary for successful recruitment and retention in research. Ethn Dis.2020;30(Suppl 2):781-784; doi:10.18865/ed.30.S2.781

scholarly journals Perspectives on Precision Health Among Racial/Ethnic Minority Communities and the Physicians That Serve Them

2020 ◽  
Vol 30 (Suppl 1) ◽  
pp. 137-148 ◽  
Author(s):  
Lisa G. Rosas ◽  
Catherine Nasrallah ◽  
Van Ta Park ◽  
Jan J. Vasquez ◽  
Ysabel Duron ◽  
...  
Keyword(s):  
African American ◽  
Focus Groups ◽  
American Indian ◽  
Ethnic Minority ◽  
Health Research ◽  
Minority Group ◽  
Research Approach ◽  
Minority Communities ◽  
Racial Ethnic ◽  
Precision Health

 Background: In order for precision health to address health disparities, engagement of diverse racial/ethnic minority communi­ties and the physicians that serve them is critical.Methods: A community-based participatory research approach with mixed methods was employed to gain a deeper understanding of precision health research and practice among American Indian, African American, Latino, Chinese, and Vietnamese groups and physicians that serve these communi­ties. A survey assessed demographics and opinions of precision health, genetic testing, and precision health research. Focus groups (n=12) with each racial/ethnic minority group and physicians further explored at­titudes about these topics.Results: One hundred community mem­bers (American Indian [n=17], African American [n=13], Chinese [n=17], Latino [n=27], and Vietnamese [n=26]) and 14 physicians completed the survey and participated in the focus groups. Familiarity with precision health was low among com­munity members and high among physi­cians. Most groups were enthusiastic about the approach, especially if it considered influences on health in addition to genes (eg, environmental, behavioral, social fac­tors). Significant concerns were expressed by African American and American Indian participants about precision health practice and research based on past abuses in bio­medical research. In addition, physician and community members shared concerns such as security and confidentiality of genetic information, cost and affordability of genetic tests and precision medicine, discrimina­tion and disparities, distrust of medical and research and pharmaceutical institutions, language barriers, and physician’s specialty.Conclusions: Engagement of racial/ethnic minority communities and the providers who serve them is important for advancing a precision health approach to addressing health disparities.Ethn Dis. 2020;30(Suppl 1):137-148; doi:10.18865/ed.30.S1.137

Cultural Humility for People of Color: Critique of Current Theory and Practice

2019 ◽  
Vol 47 (2) ◽  
pp. 76-86 ◽  
Author(s):  
Sarah H. Moon ◽  
Steven J. Sandage
Keyword(s):  
Ethnic Minority ◽  
Current Theory ◽  
Intergenerational Trauma ◽  
Theory And Practice ◽  
People Of Color ◽  
Cultural Humility ◽  
Minority Community ◽  
White Culture ◽  
Racial Ethnic ◽  
Ethnic Minority Community

Cultural humility and the broader multicultural orientation approach (MCO) is important for clinicians of color as it is for White clinicians; however, the MCO framework does not address how experiences of racism and oppression impact how therapists of color think about and practice cultural humility. This article attempts to address important ways that the dialogue around cultural humility must be nuanced for therapists of color, and will provide examples of ways in which the framework for racial/ethnic minority community is fundamentally unique, both conceptually and in application: perspectives will be provided through responding to concepts within MCO framework such as “other-oriented” stance, leaning into cultural opportunities, and cultural comfort from a person-of-color lens. We contend that the traumatic effects of racism, microaggression, intergenerational trauma, and the pressures to assimilate to White culture make it difficult for therapists to practice cultural humility in the way that it is currently discussed in the literature. The authors provide potential resources for therapists of color, and explore how it is essential to have institutional and communal resources provided in White spaces.

scholarly journals US hospices’ approach to racial/ethnic minority inclusion: a qualitative study

2021 ◽  
pp. bmjspcare-2020-002680
Author(s):  
M Courtney Hughes ◽  
Erin Vernon ◽  
Monica Kowalczyk ◽  
Marlon Basco-Rodillas
Keyword(s):  
Ethnic Minority ◽  
End Of Life Care ◽  
Hospice Care ◽  
Language Translation ◽  
Community Outreach ◽  
Primary Concern ◽  
Community Members ◽  
Semistructured Interviews ◽  
The Usa ◽  
Racial Ethnic

ObjectiveTo examine hospices’ approaches to improving the current racial/ethnic hospice utilisation disparity.MethodsDuring June and July 2020, we conducted in-depth, semistructured interviews with 22 hospice leaders from across the USA. The interviews focused on inclusive strategy approaches. We analysed the data using qualitative methods.ResultsMultiple themes emerged about racial/ethnic minority inclusion strategies: (1) hospices tailor strategies to the local communities they serve; (2) improvement involves addressing social determinants of health that extend beyond end-of-life care; (3) costs of strategies are not a primary concern and the benefits are worth the costs; and (4) hospices want to do more to improve their efforts.ConclusionsHospices want to improve racial/ethnic minority inclusion and can take specific action steps to educate community members about hospice and provide an environment within hospice care that is welcoming to all. Hospice-targeted programmes and policies that facilitate language translation, diversity in staffing, enhanced community outreach, and leadership and staff collaboration regarding inclusion may help hospices achieve success in their efforts toward racial/ethnic minority inclusion.

scholarly journals Recruitment and retention of racial/ethnic minorities for web-based intervention trials (Preprint)

2020 ◽  
Author(s):  
DaSol Amy Hwang ◽  
Alex Lee ◽  
Jae Min Song ◽  
Hae-Ra Han
Keyword(s):  
Ethnic Minority ◽  
Ethnic Minorities ◽  
Minority Groups ◽  
The Internet ◽  
Retention Strategies ◽  
Web Based ◽  
Recruitment And Retention ◽  
Intervention Trials ◽  
Racial Ethnic ◽  
Human Support

BACKGROUND Racial/ethnic minority groups are underrepresented in health research, contributing to persistent health disparities in the nation. Identifying effective recruitment and retention strategies among minority groups and their subpopulations is an important research agenda. With the ubiquitous use of the Internet now, web-based intervention approaches are increasingly popular. It is not completely clear which recruitment and retention strategies have been successful in web-based intervention trials targeting racial/ethnic minorities. OBJECTIVE 1) To describe lessons learned in recruiting and retaining one of the understudied ethnic minority women—Korean American—enrolled in a web-based intervention trial and 2) to compare our findings to the strategies reported in relevant published web-based intervention trials. METHODS Multiple sources of data were used to address the objectives of this study including study team’s meeting minutes, participant tracking and contact log, survey reports, and post-intervention interviews. Additionally, an electronic search involving two databases (PubMed and Cumulative Index of Nursing and Allied Health Literature) was done to identify published studies using web-based interventions. Qualitative analysis was then performed to identify common themes addressing recruitment and retention strategies across the trials using web-based intervention modalities. RESULTS A total of nine categories of recruitment and retention strategies emerged: authentic care; accommodation of time, place, and transportation; financial incentives; diversity among study team; multiple, yet standardized modes of communication; mobilizing existing community relationships with efforts to build trust; prioritizing features of web-based intervention; combined use of online and direct recruitment; and self-directed online intervention with human support. While all of the studies included in the analysis combined multiple strategies, prioritizing features of web-based intervention or use of human support were particularly relevant to promoting recruitment and retention of racial/ethnic minorities for web-based intervention trials. CONCLUSIONS Growing prevalence of Internet usage among racial/ethnic minority populations represents an excellent opportunity to design and deliver intervention programs via the Internet. Future research should explore and compare successful recruitment and retention methods between race or ethnic groups for web-based intervention. CLINICALTRIAL e-CHEC-uP: Scaling up an Efficacious Cancer Screening Intervention for Women With Limited English (NCT03726619); https://clinicaltrials.gov/ct2/show/NCT03726619

scholarly journals Asian Americans are less willing than other racial groups to participate in health research

2019 ◽  
Vol 3 (2-3) ◽  
pp. 90-96
Author(s):  
Yiyang Liu ◽  
Amy Elliott ◽  
Hal Strelnick ◽  
Sergio Aguilar-Gaxiola ◽  
Linda B. Cottler
Keyword(s):  
Ethnic Groups ◽  
Asian Americans ◽  
Health Research ◽  
Research Participation ◽  
Lower Amount ◽  
Racial Groups ◽  
Willingness To Participate ◽  
Community Members ◽  
Study Results ◽  
Racial Ethnic

AbstractBackground:Asian Americans constitute 5% of the U.S. population. Their willingness to participate in research is important to examine because it influences participation rates and the representativeness of study results.Methods:A total of 17,339 community members participated from six diverse Clinical and Translational Award (CTSA) sites. Community members were asked about their willingness to volunteer for eight different types of health research, their expectation of monetary compensation for research participation, their trust in research and researchers, their preferred language to receive health information, and their socio-demographic background. We examined Asian Americans’ willingness to participate in various types of health research studies and compared their perceptions with other racial/ethnic groups (i.e., Asian n = 485; African-American n = 9516; Hispanic/Latino n = 1889; Caucasian n = 4760; and other minority n = 689).Results:Compared to all other racial/ethnic groups, Asian Americans were less willing to participate in all eight types of health research. However, Asian Americans reported a lower amount of fair compensation for research participation than African-Americans and Hispanics/Latinos but were as likely to trust researchers as all other racial/ethnic groups.Conclusion:Asian Americans are less willing to participate in health research than other racial/ethnic groups, and this difference is not due to dissatisfaction with research compensation or lower trust in researchers. Lack of trust in research and language barriers should be addressed to improve representativeness and generalizability of all populations in research.

Racial--Ethnic Minority and Nonminority LGB Persons' Perceptions of Stigma, Internalized Homophobia, and Outness

2006 ◽  
Author(s):  
Bonnie Moradi ◽  
Cirleen Deblaere ◽  
Marcie Wiseman ◽  
Melinda B. Goodman ◽  
Melanie E. Brewster ◽  
...  
Keyword(s):  
Ethnic Minority ◽  
Internalized Homophobia ◽  
Racial Ethnic
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