scholarly journals Perspectives on Precision Health Among Racial/Ethnic Minority Communities and the Physicians That Serve Them

2020 ◽  
Vol 30 (Suppl 1) ◽  
pp. 137-148 ◽  
Author(s):  
Lisa G. Rosas ◽  
Catherine Nasrallah ◽  
Van Ta Park ◽  
Jan J. Vasquez ◽  
Ysabel Duron ◽  
...  

 Background: In order for precision health to address health disparities, engagement of diverse racial/ethnic minority communi­ties and the physicians that serve them is critical.Methods: A community-based participatory research approach with mixed methods was employed to gain a deeper understanding of precision health research and practice among American Indian, African American, Latino, Chinese, and Vietnamese groups and physicians that serve these communi­ties. A survey assessed demographics and opinions of precision health, genetic testing, and precision health research. Focus groups (n=12) with each racial/ethnic minority group and physicians further explored at­titudes about these topics.Results: One hundred community mem­bers (American Indian [n=17], African American [n=13], Chinese [n=17], Latino [n=27], and Vietnamese [n=26]) and 14 physicians completed the survey and participated in the focus groups. Familiarity with precision health was low among com­munity members and high among physi­cians. Most groups were enthusiastic about the approach, especially if it considered influences on health in addition to genes (eg, environmental, behavioral, social fac­tors). Significant concerns were expressed by African American and American Indian participants about precision health practice and research based on past abuses in bio­medical research. In addition, physician and community members shared concerns such as security and confidentiality of genetic information, cost and affordability of genetic tests and precision medicine, discrimina­tion and disparities, distrust of medical and research and pharmaceutical institutions, language barriers, and physician’s specialty.Conclusions: Engagement of racial/ethnic minority communities and the providers who serve them is important for advancing a precision health approach to addressing health disparities.Ethn Dis. 2020;30(Suppl 1):137-148; doi:10.18865/ed.30.S1.137

Author(s):  
Ruban Dhaliwal ◽  
Rocio I Pereira ◽  
Alicia M Diaz-Thomas ◽  
Camille E Powe ◽  
Licy L Yanes Cardozo ◽  
...  

Abstract The Endocrine Society recognizes racism as a root cause of the health disparities that affect racial/ethnic minority communities in the United States and throughout the world. In this policy perspective, we review the sources and impact of racism on endocrine health disparities and propose interventions aimed at promoting an equitable, diverse, and just healthcare system. Racism in the healthcare system perpetuates health disparities through unequal access and quality of health services, inadequate representation of health professionals from racial/ethnic minority groups, and the propagation of the erroneous belief that socially constructed racial/ethnic groups constitute genetically and biologically distinct populations. Unequal care, particularly for common endocrine diseases such as diabetes, obesity, osteoporosis, and thyroid disease, results in high morbidity and mortality for individuals from racial/ethnic minority groups, leading to a high socioeconomic burden on minority communities and all members of our society. As health professionals, researchers, educators, and leaders, we have a responsibility to take action to eradicate racism from the healthcare system. Achieving this goal would result in high-quality health care services that are accessible to all, diverse workforces that are representative of the communities we serve, inclusive and equitable workplaces and educational settings that foster collaborative teamwork, and research systems that ensure that scientific advancements benefit all members of our society. The Endocrine Society will continue to prioritize and invest resources in a multifaceted approach to eradicate racism, focused on educating and engaging current and future health professionals, teachers, researchers, policy makers, and leaders.


2019 ◽  
Vol 17 (2) ◽  
pp. 148
Author(s):  
DeeDee M. Bennett, PhD

Women and racial/ethnic minorities have long been underrepresented in the field of emergency management. This is true for both practice and research. The lack of women and racial/ethnic minorities in the profession and their perceived absence in research or scholarly study may have impacts on the effectiveness of response and recovery efforts as well as the broader scientific knowledge within the field. Historically, women and racial/ethnic minority communities have disproportionately experienced negative impacts following disasters. Earlier related studies have pointed to the underrepresentation as a contributing factor in community vulnerability. The scarcity of women in practice and as students in this field has been particularly evident in the United States. Using data from a recent survey of emergency management programs nationwide, this article reviews the concerns in research with regards to women and ethnic minority communities during disasters, efforts to increase representation of these groups in the field, and discusses the implications for practice, policy, and future research. The findings show that women have a strong presence in emergency management programs nationwide, and while specific data on racial and ethnic minorities are lacking, the observed increases reported in this article encourages further study.


2002 ◽  
Vol 39 (3) ◽  
pp. 238-244 ◽  
Author(s):  
Lesley Davis

As part of a consultation exercise conducted by LTSN Engineering, three focus groups have been facilitated to provide a snapshot of student opinion on learning and teaching in engineering subjects. The three institutions visited were a campus university and two city universities, one postand one pre-1992. The pre-1992 institution had a high proportion of local students from an ethnic minority group. Although there were some local differences, there were some comments that were repeated during all three sessions. This paper will report the results of the focus groups, identifying the common themes that were of importance to the students within their own learning experiences, including methods that helped them to learn. It is interesting to note that the students had fairly low expectations and identified easy to implement activities.


2002 ◽  
Vol 16 (3) ◽  
pp. 296-315 ◽  
Author(s):  
Anthony P. Kontos ◽  
Alfiee M. Breland-Noble

This article examines from a theoretical perspective the most pertinent issues related to providing sport psychology consulting to athletes of color. A review of multicultural concepts including identity, acculturation/enculturation, generalizations, and stereotyping is presented. These concepts provide a framework within which to address issues and examples pertinent to African American, Latino, Asian American, and American Indian athletes. A multicultural sport psychology approach incorporating worldview and integrative theory is examined. Finally, future issues in multicultural sport psychology including changes in the population, female athletes of color, and the need for sport psychologists of color are discussed.


Author(s):  
Antronette (Toni) Yancey ◽  
Beth A. Glenn ◽  
Chandra L. Ford ◽  
LaShawnta Bell-Lewis

The evidence base on dissemination and implementation of interventions for racial/ethnic minority communities is expanding rapidly. Although the strength of the evidence varies depending on the health outcome, some general trends are apparent. Key lessons include that cultural appropriateness enhances community “buy-in” of interventions. Interventions that reflect a community’s cultural values and that are implemented in ubiquitous settings are also associated with success. Efforts that account for place characteristics (e.g., neighborhood geography, intervention setting) can also improve the uptake of interventions. In conclusion, the importance of inclusivity and equity in public health efforts to prevent and control disease is paramount. The best way to achieve social justice and improve the health of the entire population is to ensure that the strategies most effective in preventing disease are disseminated within the populations at greatest risk.


2021 ◽  
pp. 003435522110482
Author(s):  
Michelle Yin ◽  
Aditi Pathak ◽  
Dajun Lin ◽  
Nevin Dizdari

The literature on racial differences in vocational rehabilitation (VR) services has not been updated for over a decade. Using the 2017 individual-level national RSA-911 data, supplemented with the 2017 American Community Survey and publicly available information from Kaiser Family Foundation, we investigate racial differences at each step of the VR process—application, eligibility, service provision, and employment outcomes at closure. At the first step, application, White individuals with disabilities are less likely to apply than their African American, American Indian/Alaska Native, and Hispanic counterparts, and more likely to apply than their Asian counterparts. For the remaining three steps, the results are inverted: the White subgroup has higher eligibility rates, service rates, and employment rates than the African American, American Indian/Alaska Native, and Hispanic subgroups, and lower rates than the Asian subgroup. These findings suggest that racial and ethnic differences continue to exist in the VR process despite several legislative acts and policy efforts. Within each racial and ethnic minority group, we also find large variation in application rates and employment rates across states, which indicates a need for developing performance measures and standardized guidelines for state VR agencies to better serve individuals with disabilities from racial and ethnic minorities.


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