Exploring the Quality of Life of Jordanian Children and Adolescents with End Stage Renal Disease Receiving Hemodialysis

Background: Depression is a common psychosocial problem that negatively affects the lives and relationships of school-age children, adolescents, and adults both in private and public. Purpose: To explore the psychosocial well-being among Jordanian schoolage children and adolescents who are complaining of end stage renal disease (ESRD) undergoing hemodialysis. Method and Design: The study was carried out using a descriptive crosssectional correlation design. A convenient sample of 121 school-age children and adolescent were recruited from seven major dialysis units in Jordan . The children's psychosocial well-being was measured by using a self-report questionnaire. This, however, includes demographic data, adherence to treatment, Dialysis Patient-Perceived Exercise Benefits, and Barriers Scale. Also, Pediatrics Quality of Life PedsQL 3.0 ESRD and Depression Scale for Children were used for data collection

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Quality of Life in Children with End-Stage Renal Disease: Does Treatment Modality Matter?

Peritoneal Dialysis International ◽

10.1177/089686080902902s38 ◽

2009 ◽

Vol 29 (2_suppl) ◽

pp. 190-191 ◽

Cited By ~ 3

Author(s):

Wai-Ming Lai

Keyword(s):

Quality Of Life ◽

Renal Disease ◽

End Stage Renal Disease ◽

Well Being ◽

Kidney Graft ◽

Healthy Children ◽

Specific Instrument ◽

Stage Renal Disease ◽

End Stage

In children with end-stage renal disease (ESRD), health-related quality of life (HRQOL) is a useful and important clinical measure for monitoring the child's well-being and functional status. One of the commonly used generic HRQOL instruments in children is the Pediatric Quality of Life Inventory, because an ESRD-specific instrument for children is still lacking. In the limited studies of HRQOL in children with ESRD, a significant effect of ESRD is seen, with significantly lower HRQOL scores than are seen in healthy children. In future, a pediatric ESRD-specific instrument is needed to address differences in HRQOL between children on hemodialysis, on peritoneal dialysis, and with a kidney graft.

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The scope of homoeopathy in improving the quality of life in patients with end-stage renal disease: A case series

Journal of Integrated Standardized Homoeopathy ◽

10.25259/jish_24_2020 ◽

2021 ◽

Vol 4 ◽

pp. 4-11 ◽

Cited By ~ 1

Author(s):

Mehvish Haris Dandoti ◽

Anand Ramchandra Kapse

Keyword(s):

Quality Of Life ◽

Renal Failure ◽

Renal Disease ◽

End Stage Renal Disease ◽

Short Form ◽

Case Series ◽

Well Being ◽

Stage Renal Disease ◽

End Stage

Objectives: Lifestyle disorders such as diabetes mellitus, hypertension and cardiovascular diseases eventually affect the kidneys, often causing renal failure. The current gold standard methods for managing renal failure are renal replacement therapy and haemodialysis. Unfortunately, dialysis deteriorates the patient’s quality of life (QOL). Homoeopaths rarely treat cases with such advanced irreversible pathology; the scope of homoeopathy in such cases is, therefore, unclear. We observed the effect of homoeopathy as an adjuvant on the QOL in patients with end-stage renal disease (ESRD). The QOL was assessed using the Marathi version of the Kidney Disease QOL Short Form 1.3 (KDQOL SF version 1.3). Materials and Methods: Three Indian patients with ESRD (two men and one woman, individualized ages 38, 50 and 54 years) consented to have their data published. The cases were managed with constitutional homoeopathic remedies in the 50 millesimal (LM) potency as an adjuvant to their current allopathic medications and were observed for 6 months. They were assessed with the Marathi version of the KDQOL SF 1.3 before and after homoeopathic management along with regular haemodialysis. Results: The patients showed significant improvements in the QOL, especially in the areas of sleep, pain, symptoms and problems, cognitive functioning, emotional well-being and social functioning, as assessed based on the increase in scores in their respective domains. Conclusion: The results of the observations are promising and in concurrence with homoeopathic philosophy; the benefits of constitutional medicines were seen. All three patients showed an improvement in their QOL. However, studies with larger sample size and randomised controlled trial study design are suggested. Homoeopathic constitutional treatment has a significant impact on the QOL in patients with ESRD.

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Quality of Life Is Correlated to Anemia in Children and Adolescent Undergoing Hemodialysis

Global Journal of Health Science ◽

10.5539/gjhs.v10n10p103 ◽

2018 ◽

Vol 10 (10) ◽

pp. 103

Author(s):

Raghad Hussein Abdelkader

Keyword(s):

Quality Of Life ◽

Renal Disease ◽

Children And Adolescents ◽

End Stage Renal Disease ◽

Hemoglobin Level ◽

Common Symptom ◽

Children And Adolescent ◽

Stage Renal Disease ◽

End Stage

INTRODUCTION: Anemia is a common symptom of end stage renal disease in children and adolescents. Anemia is one factor for patients with end stage renal disease that have an effect on quality of life. Therefore, the purpose of this study was to examine the correlation between the hemoglobin level and quality of life and fatigue level for children and adolescent in Jordan. MATERIALS & METHODS: A cross-sectional correlational design was used. A total of 121 children and adolescences were recruited from hemodialysis units at seven hospitals of three cities in Jordan. Data collected through the 34-item Pediatric Quality of Life Inventory 3.0 End-Stage Renal Disease (PedsQL 3.0 ESRD questionnaire. RESULTS: The results of this study demonstrated that 38 (31.4%) school-age children their age ranged from 6 to 12 years old, while adolescents (13-20) years old 83 (68.6%), and 67 (55.4) of them were female. Children and adolescents with ESRD reported low mean hemoglobin level over 7 months below 11.1g/dlSD (1.9). A significantly negative correlation between the PedsQL total scores with mean hemoglobin levels p<0.05 was reported, and positive correlation with fatigue sub-score p<0.05. CONCLUSIONS: It is essential for nurses and patients to recognize the relationship between anemia and low quality of life and high fatigue level for end stage renal disease children and adolescent patients. Finding of current study are facilitating to design especial program for improve the nutritional and health status for those ESRD patients.

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