scholarly journals Behavioural Concerns of Children on the Autism Spectrum and the Impact on Parental Quality of Life

2021 ◽  
Author(s):  
Raisa Islam ◽  
Syeda Ishra Azim ◽  
Anne Masi ◽  
Louis Klein ◽  
Valsamma Eapen
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum ◽  
Adaptive Behaviour ◽  
Autism Severity ◽  
Cognitive Level ◽  
Parental Quality ◽  
Vineland Adaptive Behaviour Scales ◽  
Behavioural Profile ◽  
The Impact

Abstract PurposeThis study aimed to determine the association between parental quality of life (QoL) and autism severity, child’s cognitive level, adaptive behaviour and behavioural profile, and sociodemographic factors utilising the Quality of Life in Autism Questionnaire (QoLA).MethodsParents of children attending an autism specific preschool centre completed a sociodemographic questionnaire, the Quality of Life in Autism Questionnaire (QoLA), Vineland Adaptive Behaviour Scales 2nd edition (VABS) and Child Behaviour Checklist (CBCL). Trained researchers assessed autism severity with the Autism Diagnostic Observation Schedule-2 (ADOS-2) and the cognitive level with the Mullen Scales of Early Learning (MSEL).ResultsFor parents of children on the autism spectrum, having other children without the condition buffered the potential negative effects on parental QoL. Lower levels of autism severity and internalising behaviours, and higher levels of daily living scores predicted greater perceived parental QoL. Parents perceived their child’s autism-specific behaviour as less problematic when the child had higher socialisation scores. While lower levels of Attention Problems, Withdrawn Behaviour and lower scores on the Dysregulation Profile (Externalising Behaviours, Aggressive Behaviour and Anxious/Depressed) predicted greater perceived parental QoL, higher levels of Withdrawn Behaviour, Aggression and Externalising Behaviour predicted poorer perceived parental QoL. There were no significant findings for the relationship between parental QoL and cognitive level.ConclusionThe present research establishes the complex effects of raising a child on the autism spectrum on parental QoL. Findings indicate a child’s autism symptom severity, adaptive functioning and behavioural profile has greater impact on parental QoL than cognitive level.

scholarly journals Validation of the English Version of the Scale for Psychosocial Factors in Food Allergy and the Relationship with Mental Health, Quality of Life, and Self-Efficacy

2016 ◽  
Vol 2016 ◽  
pp. 1-7 ◽  
Author(s):  
Rebecca C. Knibb ◽  
Aaron Cortes ◽  
Christopher Barnes ◽  
Carol Stalker
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Food Allergy ◽  
Psychosocial Factors ◽  
Self Efficacy ◽  
Holistic View ◽  
Parental Quality ◽  
The Uk ◽  
The Impact

Background. The Scale for Psychosocial Factors in Food Allergy (SPS-FA) is based on the biopsychosocial model of health and was developed and validated in Chile to measure the interaction between psychological variables and allergy symptoms in the child. We sought to validate this scale in an English speaking population and explore its relationship with parental quality of life, self-efficacy, and mental health. Methods. Parents (n=434) from the general population in the UK, who had a child with a clinical diagnosis of food allergy, completed the SPS-FA and validated scales on food allergy specific parental quality of life (QoL), parental self-efficacy, and general mental health. Findings. The SPS-FA had good internal consistency (alphas = .61–.86). Higher scores on the SPS-FA significantly correlated with poorer parental QoL, self-efficacy, and mental health. All predictors explained 57% of the variance in SPS-FA scores with QoL as the biggest predictor (β=.52). Discussion. The SPS-FA is a valid scale for use in the UK and provides a holistic view of the impact of food allergy on the family. In conjunction with health-related QoL measures, it can be used by health care practitioners to target care for patients and evaluate psychological interventions for improvement of food allergy management.

The impact of cleft lip and/or palate on parental quality of life: A pilot study

2019 ◽  
Vol 126 ◽  
pp. 109598 ◽  
Author(s):  
Elise De Cuyper ◽  
Frederick Dochy ◽  
Els De Leenheer ◽  
Helen Van Hoecke
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Cleft Lip ◽  
Parental Quality ◽  
The Impact

scholarly journals The Impact of Schizotypy on Quality of Life Among Adults with Autism Spectrum Disorder

2021 ◽  
Author(s):  
Albin Klang ◽  
Britta Westerberg ◽  
Mats B. Humble ◽  
Susanne Bejerot
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autistic Traits ◽  
Poor Quality ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Anxiety And Depression ◽  
Schizotypal Personality ◽  
The Impact

Abstract Background: Autism spectrum disorder (ASD) and schizotypal personality disorder can be difficult to distinguish. Deficits in social relationships and social interaction, present in both conditions, are known to impair quality of life. The aim of the present study was to investigate if schizotypal symptoms affect quality of life among adults diagnosed with autism spectrum disorder and to study the association between schizotypy and autistic traits among them. Methods: Participants diagnosed with autism spectrum disorder (n=110) completed questionnaires exploring schizotypy (Schizotypal Personality Questionnaire – Brief Revised (SPQ-BR)), autistic traits (The Ritvo Autism, Asperger Diagnostic Scale-Revised Screen 14 items), anxiety and depression (The Hospital Anxiety and Depression scale) and quality of life (Brunnsviken Brief Quality of Life Scale and the European quality of life index version 5D). Results: Schizotypy was found to be associated with anxiety, depressive and autistic symptoms, and poor quality of life. Although schizotypy was a predictor for impaired quality of life, this relationship was mediated by symptoms of anxiety and depression, plausibly inherent to autism. Autistic traits were positively associated with all higher order constructs of the SPQ-BR, i.e. positive and negative schizotypy, disorganization and social anxiety, as well as with poor quality of life. Conclusions: There is considerable overlap between schizotypy and autism that needs to be considered in research. Prominent schizotypal traits in people with ASD may constitute an endophenotype coinciding with a particularly poor quality of life.

PO-1039 The Impact Of Asthma On Child And Parental Quality Of Life In Lithuania

2014 ◽  
Vol 99 (Suppl 2) ◽  
pp. A589.3-A589
Author(s):  
E Vaitkaitiene ◽  
V Taminskiene ◽  
A Valiulis
Keyword(s):  
Quality Of Life ◽  
Parental Quality ◽  
The Impact

scholarly journals Quality of Life among Parents of Children with Autism Spectrum Disorder in Riyadh

2016 ◽  
Vol 4 (2) ◽  
pp. 76 ◽  
Author(s):  
Khaled Yousef Asi
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autistic Child ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Autistic Children ◽  
The Impact ◽  
The Relationship

<p>The current study aimed to identify the level of quality of life among parents of children with autism spectrum disorder and the differences according to the relationship with the autistic child, gender, severity of disability. The sample consisted of (100) parents of children with autism spectrum disorder, enrolled in the program of autism, intentionally selected in Riyadh, Saudi Arabia. Quality of life scale prepared and utilized by the author after verification of validity and reliability. The results showed that the level of quality of life among the participants was medium, and the results showed statistically significant differences in the level of quality of life among the participants due to the impact of the relationship with autistic children, where differences were in favor of the parents, and the variable of gender of the autistic child, where differences were in favor of the males, and severity of the disability, where the differences were in favor of the mild group. The study recommended the need to draw the attention of officials in the care and service centers for children with autism spectrum to provide training programs and activities for parents of autistic children to raise the level of quality of life, especially mothers.</p>

The Impact of Childhood Asthma on Parental Quality of Life

2004 ◽  
Vol 41 (6) ◽  
pp. 645-653 ◽  
Author(s):  
Jill S. Halterman ◽  
H. Lorrie Yoos ◽  
Kelly M. Conn ◽  
Patrick M. Callahan ◽  
Guillermo Montes ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Childhood Asthma ◽  
Parental Quality ◽  
The Impact
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