scholarly journals End of life care in chronic obstructive pulmonary disease: in search of a good death

2008 ◽  
Vol Volume 3 ◽  
pp. 11-29 ◽  
Author(s):  
Sara Booth
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
End Of Life ◽  
Pulmonary Disease ◽  
End Of Life Care ◽  
Good Death ◽  
Chronic Obstructive ◽  
Life Care ◽  
Obstructive Pulmonary Disease

Recommendations for End-of-Life Care in Patients With Chronic Obstructive Pulmonary Disease

2009 ◽  
Vol 45 (6) ◽  
pp. 297-303
Author(s):  
Joan Escarrabill ◽  
Juan José Soler Cataluña ◽  
Carme Hernández ◽  
Emilio Servera
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
End Of Life ◽  
Pulmonary Disease ◽  
End Of Life Care ◽  
Chronic Obstructive ◽  
Life Care ◽  
Obstructive Pulmonary Disease

scholarly journals End-Of-Life Care for Persons with Advanced Chronic Obstructive Pulmonary Disease: Report of a National Interdisciplinary Consensus Meeting

2009 ◽  
Vol 16 (5) ◽  
pp. e51-e53 ◽  
Author(s):  
DM Goodridge ◽  
DD Marciniuk ◽  
D Brooks ◽  
A van Dam ◽  
S Hutchinson ◽  
...  
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
End Of Life ◽  
Pulmonary Disease ◽  
End Of Life Care ◽  
Present Report ◽  
Consensus Meeting ◽  
Chronic Obstructive ◽  
Life Care ◽  
Obstructive Pulmonary Disease

While systemic shortcomings in meeting the needs of individuals with progressive chronic illnesses at the end of life have been well documented, there is growing interest in improving both care and quality of life for persons with advanced chronic obstructive pulmonary disease (COPD). For instance, the American Thoracic Society has issued an official statement on palliative care for patients with respiratory diseases, affirming that the prevention, relief, reduction and soothing of symptoms “without affecting a cure” must become an integral component of standard care. A recent Medline search located 1015 articles related to palliative or end-of-life care for people with COPD published between 2001 and 2008, compared with only 336 articles published before 2001. To address the needs of Canadian patients, an interdisciplinary consensus meeting, funded by the Canadian Institutes of Health Research and supported by the Canadian Thoracic Society, the Canadian Respiratory Health Professionals and the Canadian Lung Association was convened in Toronto, Ontario, on November 22, 2008, to begin examining the quality of end-of-life care for individuals with COPD in Canada. The present report summarizes the background to and outcomes of this consensus meeting.

Developing indicators of appropriate and inappropriate end-of-life care in people with Alzheimer’s disease, cancer or chronic obstructive pulmonary disease for population-level administrative databases: A RAND/UCLA appropriateness study

2017 ◽  
Vol 31 (10) ◽  
pp. 932-945 ◽  
Author(s):  
Robrecht De Schreye ◽  
Dirk Houttekier ◽  
Luc Deliens ◽  
Joachim Cohen
Keyword(s):  
Alzheimer’S Disease ◽  
Chronic Obstructive Pulmonary Disease ◽  
Alzheimer's Disease ◽  
End Of Life ◽  
Pulmonary Disease ◽  
Quality Indicators ◽  
End Of Life Care ◽  
Chronic Obstructive ◽  
Life Care ◽  
Obstructive Pulmonary Disease

Background: A substantial amount of aggressive life-prolonging treatments in the final stages of life has been reported for people with progressive life-shortening conditions. Monitoring appropriate and inappropriate end-of-life care is an important public health challenge and requires validated quality indicators. Aim: To develop indicators of appropriate and inappropriate end-of-life care for people with cancer, chronic obstructive pulmonary disease or Alzheimer’s disease, measurable with population-level administrative data. Design: modified RAND/UCLA appropriateness method. Setting/participants: Potential indicators were identified by literature review and expert interviews and scored in a survey among three panels of experts (one for each disease group). Indicators for which no consensus was reached were taken into group discussions. Indicators with consensus among the experts were retained for the final quality indicator sets. Results: The final sets consist of 28 quality indicators for Alzheimer’s disease, 26 quality indicators for cancer and 27 quality indicators for chronic obstructive pulmonary disease. The indicator sets measure aspects of aggressiveness of care, pain and symptom treatment, specialist palliative care, place of care and place of death and coordination and continuity of care. Conclusion: We developed a comprehensive set of quality indicators of appropriate and inappropriate end-of-life care in people with Alzheimer’s disease, cancer or chronic obstructive pulmonary disease, to be used in population-level research. Our focus on administrative healthcare databases limits us to treatment and medication, excluding other important quality aspects such as communication, which can be monitored using complementary approaches. Nevertheless, our sets will enable an efficient comparison of healthcare providers, regions and countries in terms of their performance on appropriateness of end-of-life care.

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