Remote Care for Caregivers of People With Psychosis: Mixed Methods Pilot Study

Background A reduced availability of resources has hampered the implementation of family work in psychosis. Web-based support programs have the potential to increase access to high-quality, standardized resources. This pilot study tested the Norwegian version of the Relatives Education and Coping Toolkit (REACT), a web-based United Kingdom National Health Service program in combination with phone-based support by trained family therapists. Objective We investigated how the program was perceived by its users and identified the facilitators and barriers to its clinical implementation. Methods Relatives of people with psychosis were offered access to REACT and to weekly family therapist support (with 1 of 2 trained family therapists) for 26 weeks. Level of distress and level of expressed emotion data were collected at baseline and after 26 weeks using the Family Questionnaire and the Relatives Stress Scale. Both family therapists and a subset of the relatives were interviewed about their experiences after completing the program. Results During the program, relatives (n=19) had a median of 8 (range 4-11) consultations with the family therapists. Postintervention, there was a significant reduction in stress and in expressed emotions in the relatives of people with psychosis. Interviews with the relatives (n=7) and the family therapists (n=2) indicated the following themes as important—the intervention turned knowledge into action; the intervention strengthened the feeling of being involved and taken seriously by the health services; and management support and the ability for self-referral were important, while lack of reimbursement and clinician resistance to technology were barriers to implementation. Conclusions The service was found to offer a valued clinical benefit; however, strategies that aim to engage clinicians and increase organizational support toward new technology need to be developed.

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Remote Care for Caregivers of People With Psychosis: Mixed Methods Pilot Study (Preprint)

10.2196/preprints.19497 ◽

2020 ◽

Author(s):

Kristin Lie Romm ◽

Liv Nilsen ◽

Kristine Gjermundsen ◽

Marit Holter ◽

Anne Fjell ◽

...

Keyword(s):

Pilot Study ◽

Organizational Support ◽

Expressed Emotion ◽

New Technology ◽

Family Therapist ◽

Family Therapists ◽

Management Support ◽

Clinical Implementation ◽

Web Based ◽

The Family

BACKGROUND A reduced availability of resources has hampered the implementation of family work in psychosis. Web-based support programs have the potential to increase access to high-quality, standardized resources. This pilot study tested the Norwegian version of the Relatives Education and Coping Toolkit (REACT), a web-based United Kingdom National Health Service program in combination with phone-based support by trained family therapists. OBJECTIVE We investigated how the program was perceived by its users and identified the facilitators and barriers to its clinical implementation. METHODS Relatives of people with psychosis were offered access to REACT and to weekly family therapist support (with 1 of 2 trained family therapists) for 26 weeks. Level of distress and level of expressed emotion data were collected at baseline and after 26 weeks using the Family Questionnaire and the Relatives Stress Scale. Both family therapists and a subset of the relatives were interviewed about their experiences after completing the program. RESULTS During the program, relatives (n=19) had a median of 8 (range 4-11) consultations with the family therapists. Postintervention, there was a significant reduction in stress and in expressed emotions in the relatives of people with psychosis. Interviews with the relatives (n=7) and the family therapists (n=2) indicated the following themes as important—the intervention turned knowledge into action; the intervention strengthened the feeling of being involved and taken seriously by the health services; and management support and the ability for self-referral were important, while lack of reimbursement and clinician resistance to technology were barriers to implementation. CONCLUSIONS The service was found to offer a valued clinical benefit; however, strategies that aim to engage clinicians and increase organizational support toward new technology need to be developed.

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Web-based self-management support training for health professionals: A pilot study

Patient Education and Counseling ◽

10.1016/j.pec.2012.09.003 ◽

2013 ◽

Vol 90 (1) ◽

pp. 29-37 ◽

Cited By ~ 14

Author(s):

Veronica Yank ◽

Diana Laurent ◽

Kathryn Plant ◽

Kate Lorig

Keyword(s):

Pilot Study ◽

Health Professionals ◽

Self Management ◽

Management Support ◽

Web Based

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Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relatives: Acceptability, Feasibility, and Usability Study (Preprint)

10.2196/preprints.9210 ◽

2017 ◽

Author(s):

Maria C Katapodi ◽

Miyeon Jung ◽

Ann M Schafenacker ◽

Kara J Milliron ◽

Kari E Mendelsohn-Victor ◽

...

Keyword(s):

Pilot Study ◽

Family Communication ◽

Genetic Test ◽

Test Results ◽

Brca Mutations ◽

Web Based ◽

Genetic Test Results ◽

The Family ◽

Family Gene ◽

Brca Carriers

BACKGROUND Carriers of breast cancer gene (BRCA) mutations are asked to communicate genetic test results to their biological relatives to increase awareness of cancer risk and promote use of genetic services. This process is highly variable from family to family. Interventions that support communication of genetic test results, coping, and offer decision support in families harboring a pathogenic variant may contribute to effective management of hereditary cancer. OBJECTIVE The aim of this paper was to describe the development of the Family Gene Toolkit, a Web-based intervention targeting BRCA carriers and untested blood relatives, designed to enhance coping, family communication, and decision making. METHODS We present findings from focus groups regarding intervention acceptability and participant satisfaction and from a pre-post pilot study with random allocation to a wait-listed control group regarding intervention feasibility and usability. RESULTS The Family Gene Toolkit was developed by a multidisciplinary team as a psycho-educational and skills-building intervention. It includes two live webinar sessions and a follow-up phone call guided by a certified genetic counselor and a master’s prepared oncology nurse. Each live webinar includes two modules (total four modules) presenting information about BRCA mutations, a decision aid for genetic testing, and two skill-building modules for effective coping and family communication. Participants in focus groups (n=11) were highly satisfied with the intervention, reporting it to be useful and describing clearly the important issues. From the 12 dyads recruited in the pre-post pilot study (response rate 12/52, 23%), completion rate was 71% (10/14) for intervention and 40% (4/10) for wait-listed control groups. CONCLUSIONS Acceptability and satisfaction with the Family Gene Toolkit is high. On the basis of the findings from usability and feasibility testing, modifications on timing, delivery mode, and recruitment methods have been implemented. CLINICALTRIAL ClinicalTrials.gov NCT02154633; https://clinicaltrials.gov/ct2/show/NCT02154633 (Archived by WebCite at http://www.webcitation.org/6yYNvLPjv)

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Supervising the Family Therapist

Social Casework ◽

10.1177/104438948006100301 ◽

1980 ◽

Vol 61 (3) ◽

pp. 131-137 ◽

Cited By ~ 3

Author(s):

Carlton E. Munson

Keyword(s):

Family Therapist ◽

Treatment Evaluation ◽

Family Therapists ◽

Theory Formulation ◽

The Family ◽

Supervisory Practices

Because of a renewed emphasis on supervision due to changes in licensure law, supervisors of family therapists are in need of guidelines for the development of good supervisory practices. The use of theory, formulation of diagnosis, structure for supervisory sessions, and guidelines for treatment evaluation are presented.

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Book Review and Notice: The Family Therapist: What Pastors and Counselors are Learning from Family Therapists

Journal of Pastoral Care ◽

10.1177/002234098804200112 ◽

1988 ◽

Vol 42 (1) ◽

pp. 92-93

Author(s):

W. Paul Carlson ◽

Susan Schuessler Quinn

Keyword(s):

Family Therapist ◽

Family Therapists ◽

The Family

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Why outcome research fails the family therapist.

PsycEXTRA Dataset ◽

10.1037/e440162004-001 ◽

1985 ◽

Author(s):

Lucille L. Andreozzi

Keyword(s):

Outcome Research ◽

Family Therapist ◽

The Family

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The Role of the Family Therapist in Collaborative Law

PsycEXTRA Dataset ◽

10.1037/e579162012-074 ◽

2011 ◽

Author(s):

Leanne Poffenberger

Keyword(s):

Family Therapist ◽

The Family ◽

Collaborative Law

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Role of Pilot Study in Assessing Viability of New Technology Projects: The Case of RFID in Parking Operations

Communications of the Association for Information Systems ◽

10.17705/1cais.02315 ◽

2008 ◽

Vol 23 ◽

Cited By ~ 2

Author(s):

Raktim Pal ◽

Arijit Sengupta ◽

Indranil Bose

Keyword(s):

Pilot Study ◽

New Technology

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Process evaluation of the ACTION programme: a strategy for implementing person‐centred communication in home care

BMC Nursing ◽

10.1186/s12912-021-00565-8 ◽

2021 ◽

Vol 20 (1) ◽

Author(s):

Tanja Gustafsson ◽

Annelie J Sundler ◽

Elisabeth Lindberg ◽

Pernilla Karlsson ◽

Hanna Maurin Söderholm

Keyword(s):

Home Care ◽

Process Evaluation ◽

Organizational Support ◽

Qualitative Data ◽

Education Programme ◽

Multiple Sources ◽

Web Based ◽

Action Programme ◽

Web Based Education ◽

The Web

Abstract Background There is currently a strong emphasis on person-centred care (PCC) and communication; however, little research has been conducted on how to implement person-centred communication in home care settings. Therefore, the ACTION (A person-centred CommunicaTION) programme, which is a web-based education programme focusing on person-centred communication developed for nurse assistants (NAs) providing home care for older persons, was implemented. This paper reports on the process evaluation conducted with the aim to describe and evaluate the implementation of the ACTION programme. Methods A descriptive design with a mixed method approach was used. Twenty-seven NAs from two units in Sweden were recruited, and 23 of them were offered the educational intervention. Quantitative and qualitative data were collected from multiple sources before, during and after the implementation. Quantitative data were used to analyse demographics, attendance and participation, while qualitative data were used to evaluate experiences of the implementation and contextual factors influencing the implementation. Results The evaluation showed a high degree of NA participation in the first five education modules, and a decrease in the three remaining modules. Overall, the NAs perceived the web format to be easy to use and appreciated the flexibility and accessibility. The content was described as important. Challenges included time constraints; the heavy workload; and a lack of interaction, space and equipment to complete the programme. Conclusions The results suggest that web-based education seems to be an appropriate strategy in home care settings; however, areas for improvement were identified. Our findings show that participants appreciated the web-based learning format in terms of accessibility and flexibility, as well as the face-to-face group discussions. The critical importance of organizational support and available resources are highlighted, such as management involvement and local facilitation. In addition, the findings report on the implementation challenges specific to the dynamic home care context. Trial registration This intervention was implemented with nursing assistants, and the evaluation only involved nursing staff. Patients were not part of this study. According to the ICMJE, registration was not necessary ().

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