scholarly journals Designing a personalized health dashboard: an interdisciplinary and participatory approach. (Preprint)

2020 ◽  
Author(s):  
Miriam Weijers ◽  
Caroline Bastiaenen ◽  
Frans Feron ◽  
Kay Schröder

BACKGROUND Within Dutch Child Health Care (CHC), a 360⁰CHILD-profile is designed to enhance prevention and transformation towards Personalized Health Care. From a personalized preventive perspective, it is of fundamental importance to timely identify children with emerging health problems interrelated to multiple health determinants. While digitalization of children’s health data is now realized, the accessibility of data is a major challenge for CHC-professionals, let alone for parents/youth. Therefore, the idea was initiated from CHC-practice to develop a novel approach to make relevant information accessible at a glance. OBJECTIVE This paper describes the stepwise development of a dashboard, as an example of using a design model to achieve visualization of a comprehensive overview of theoretically structured health data. METHODS Developmental process is based on the nested design model with involvement of relevant stakeholders in a real-life context. This model considers immediate upstream validation within four cascading design levels: Domain Problem and Data Characterization, Operation and Data Type Abstraction, Visual Encoding and Interaction Design, Algorithm Design. This model also includes impact oriented downstream validation, which can be initiated after delivering the prototype. RESULTS A comprehensible 360°CHILD-profile is developed: an online accessible visualization of CHC-data based on the theoretical concept of the International Classification of Functioning, Disability and Health. This dashboard provides caregivers and parents/youth with a holistic view on children’s health and “entry points” for preventive, individualized health plans. CONCLUSIONS Describing this developmental process offers guidance on how to utilize the nested design model within a health care context. CLINICALTRIAL

2018 ◽  
Vol 172 (6) ◽  
pp. 513 ◽  
Author(s):  
Charlene A. Wong ◽  
James M. Perrin ◽  
Mark McClellan

1995 ◽  
Vol 14 (2) ◽  
pp. 158-167 ◽  
Author(s):  
Robert G. Hughes ◽  
Tania L. Davis ◽  
Richard C. Reynolds

PEDIATRICS ◽  
2000 ◽  
Vol 106 (Supplement_E1) ◽  
pp. 1256-1270 ◽  
Author(s):  
M. Douglas Jones ◽  
Thomas Boat ◽  
Robert Adler ◽  
Harlan R. Gephart ◽  
Lucy M. Osborn ◽  
...  

Some of the challenges of financing pediatric medical education are shared with all medical education; others are specific to pediatrics. The general disadvantage that funding of graduate medical education (GME) is linked to reimbursement for clinical care has uniquely negative consequences for freestanding children's hospitals because they therefore receive little Medicare GME support. This represents both a competitive disadvantage for such hospitals and an aggregate federal underinvestment in children's health care that now amounts to billions of dollars. The need to subsidize medical student and subspecialty education with clinical practice revenue jeopardizes both activities in pediatric departments already burdened by inadequate reimbursement for children's health care and the extra costs of ambulatory care. The challenges of funding are complicated by rising costs as curriculum expands and clinical education moves to ambulatory settings. Controversies over prioritization of resources are inevitable. Solutions require specification of costs of education and a durable mechanism for building consensus within the pediatric community. Pediatrics2000;106(suppl):1256–1269; medical student education, continuing medical education, medical subspecialties, children, pediatrics, health maintenance organizations, managed care, hospital finances, children's hospitals.


2018 ◽  
pp. 181-203 ◽  
Author(s):  
Barbara Wolfe ◽  
Maria Perozek

2019 ◽  
Vol 18 ◽  
pp. 160940691983511
Author(s):  
Lauri Litovuo ◽  
Nina Karisalmi ◽  
Leena Aarikka-Stenroos ◽  
Johanna Kaipio

Interest in studying experiences has grown rapidly; however, little attention has been paid to the applicability of qualitative methods for capturing the service experience in children’s health care. This study examined and compared three data collection methods to capture the multidimensional service experience of child patients and their families: video diaries with child patients, narrative interviews with parents of a child patient, and semistructured interviews with health-care professionals working with child patients. The methods were analyzed with respect to their benefits and limitations and their applicability for capturing the multidimensional service experience presented by service experience co-creation framework, including the temporal, factual, spatial, locus, control, and organizational dimensions. The key findings are as follows: (A) The video diary method has the potential to capture the temporally broad and spatially complex phenomenon of child patients’ service experience and enables researchers to capture service experience created beyond the hospital setting (e.g., through hobbies or in school). (B) Narratives with parents have the potential to capture the temporal, spatial, locus, and organizational dimensions through stories and are well-suited for mapping children’s experiences and the actors influencing them. (C) Semistructured interviews with health-care professionals have the potential to capture a generalized but temporally narrow view of the service experience of child patients, concentrating on experiences within hospital settings. This is beneficial for developing health-care service providers’ actions. Structured analysis and comparison of methods guides researchers to select appropriate methods to take a complementary approach in the understanding of experiences in the context of children’s health care.


2015 ◽  
Vol 06 (01) ◽  
pp. 110-119 ◽  
Author(s):  
L.E. Costello ◽  
A. Gebremariam ◽  
K.J. Dombkowski ◽  
S.J. Clark

SummaryObjectives: To assess parents’ current utilization and future willingness to use patient portals to interact with their child’s health care provider.Methods: A cross-sectional survey of a nationally representative sample of US parents was conducted using an established online panel. Bivariate analyses assessed associations between current utilization and future willingness to use patient portals, parental concerns, and demographic variables.Results: Among the 1,420 parent respondents, 40% did not know whether their child’s health practice offers the option of setting up a patient portal for their child. Of the 21% of parents who reported being offered the option of setting up a patient portal for their child, 59% had done so. Among parents who had the option but chose not to set up a patient portal for their child, lack of time and low perceived need were the main reasons cited. Current use and likelihood of future use was highest for viewing lab results and immunization records. The most common concern about patient portals was the security of the child portal system.Conclusions: Current use of patient portals by parents is low. Only about half of parents currently using or likely to use a portal perceive value in using portals for certain tasks, which suggests that providers will need to continue traditional communication mechanisms to reach their entire patient population.Citation: Clark SJ, Costello LE, Gebremariam A, Dombkowski KJ. A national survey of parent perspectives on use of patient portals for children’s health care. Appl Clin Inf 2015; 6: 110–119http://dx.doi.org/10.4338/ACI-2014-10-RA-0098


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