Should I post this on Instagram?: Contrasting Social Media Use between Young adults with IBD and Type 1 Diabetes (Preprint)

BACKGROUND There is increasing focus on social media usage among young adult patients. OBJECTIVE This study aims to understand and compare the social media habits of youth with inflammatory bowel disease (IBD) and type 1 diabetes (T1D). METHODS This is a cross-sectional study of subjects from Boston Children’s Hospital outpatient IBD and diabetes clinics. Patients over the age of 18 were invited to complete a brief anonymous survey, which asked about the various ways they use several social media platforms. RESULTS A total of 108 patients were included evenly split across disease type. Eighty-three percent of participants spent at least 30 minutes per day on social media, most commonly on Instagram and Facebook. While the content varied based on the platform, patients with IBD posted or shared content related to their disease significantly less than those with T1D (38% vs 23%, P=0.02) Among Instagram users, IBD patients were less likely to engage with support groups (22% vs 56%, P=0.04). Among Twitter users, IBD patients were less likely to seek disease information (77% vs 29%, P=0.005) Among Facebook users, IBD patients were less likely to post about research and clinical trials (31% vs 65%, P=0.04) or for information seeking (49% vs 87%, P=0.003), IBD patients were also less likely to share their diagnosis with friends or family in person. CONCLUSIONS Young adults with IBD were less willing to share diagnosis, post or explore disease on social media. This could lead to a sense of isolation and should be further explored.