Electronic data capture system (REDCap) for healthcare research and training in a resource-constrained environment: Adoption and growth at a South African institution (Preprint)

2021 ◽  
Author(s):  
Irma Adele Maré ◽  
Beverley Kramer ◽  
Scott Hazelhurst ◽  
Mapule Dorcus Nhlapho ◽  
Roy Zent ◽  
...  

BACKGROUND Electronic data capture (EDC) in academic healthcare organizations provides an opportunity for the management, aggregation and secondary use of research and clinical data. It is especially important in resource constrained environments such as the South African public healthcare sector, where paper records are still the main form of clinical record-keeping. OBJECTIVE We describe the strategies followed by the Faculty of Health Sciences, University of the Witwatersrand (Wits FHS), during the period of 2013-2021 to overcome resistance and encourage adoption of the Research Electronic Data Capture (REDCap) system by academic and clinical staff. REDCap has found wide use in varying domains including clinical studies, research projects and administrative, financial and human resource applications. Given REDCap’s global footprint in more than 5 000 institutions worldwide and potential for future growth, the strategies followed by the Wits FHS to support users and encourage adoption may be of interest to others utilizing the system, particularly in resource-constrained setting. METHODS The strategies to support users and encourage adoption included: 1) Top-down organizational support; 2) Secure and reliable hosting infrastructure and systems administration 3) An enabling and accessible REDCap support team 4) Regular hands-on training workshops covering data collection instrument design and use of REDCap; 5) Annual local symposia to promote networking and awareness of all the latest software features and best practices for using them 6) Participation in REDCap Consortium activities; and 7) Regular and ongoing mentorship from members of Vanderbilt University Medical Center. RESULTS During the period 2013-2021, utilization of the REDCap EDC system by individuals in the Wits FHS increased from 129 active user accounts in 2013 to 3 447 active user accounts respectively in 2021. The number of REDCap projects numbered 149 in 2013 and increased to 12 865 in 2021. REDCap at Wits also supported various publications and research outputs including journal articles and postgraduate monographs. As of 2020, a total of 233 journal articles and 87 postgraduate monographs acknowledged the use of the Wits REDCap system. CONCLUSIONS By providing reliable infrastructure and accessible support resources, we were able to successfully implement and grow the REDCap electronic data capture system at the Wits FHS and its associated academic medical centers. We believe that the increase in use of REDCap was driven by offering a dependable, secure service with a strong end-user training and support model. This model may be applied by other academic and healthcare organizations in resource-constrained environments planning to implement EDC technology.

2016 ◽  
Vol 34 (Supplement 1) ◽  
pp. e247
Author(s):  
Jing Zhang ◽  
Lei Sun ◽  
Yu Liu ◽  
Hongyi Wang ◽  
Ningling Sun ◽  
...  

2016 ◽  
Vol 3 (3) ◽  
pp. 236-241 ◽  
Author(s):  
Cameron B. Alavi ◽  
John D. Massman

2007 ◽  
Vol 23 (8) ◽  
pp. 1967-1979 ◽  
Author(s):  
Joseph Huffstutter ◽  
W. David Craig ◽  
Gregory Schimizzi ◽  
John Harshbarger ◽  
Jeffrey Lisse ◽  
...  

Author(s):  
Akiyoshi KAWAI ◽  
Tomoaki KUWANO ◽  
Hisao NAKAJIMA ◽  
Kiyofumi MIZUNO ◽  
Hiroyuki NISHIMOTO ◽  
...  

2021 ◽  
Vol 15 (8) ◽  
pp. e0009675
Author(s):  
Saugat Karki ◽  
Adam Weiss ◽  
Jina Dcruz ◽  
Dorothy Hunt ◽  
Brandon Haigood ◽  
...  

Background In the absence of a vaccine or pharmacological treatment, prevention and control of Guinea worm disease is dependent on timely identification and containment of cases to interrupt transmission. The Chad Guinea Worm Eradication Program (CGWEP) surveillance system detects and monitors Guinea worm disease in both humans and animals. Although Guinea worm cases in humans has declined, the discovery of canine infections in dogs in Chad has posed a significant challenge to eradication efforts. A foundational information system that supports the surveillance activities with modern data management practices is needed to support continued program efficacy. Methods We sought to assess the current CGWEP surveillance and information system to identify gaps and redundancies and propose system improvements. We reviewed documentation, consulted with subject matter experts and stakeholders, inventoried datasets to map data elements and information flow, and mapped data management processes. We used the Information Value Cycle (IVC) and Data-Information System-Context (DISC) frameworks to help understand the information generated and identify gaps. Results Findings from this study identified areas for improvement, including the need for consolidation of forms that capture the same demographic variables, which could be accomplished with an electronic data capture system. Further, the mental models (conceptual frameworks) IVC and DISC highlighted the need for more detailed, standardized workflows specifically related to information management. Conclusions Based on these findings, we proposed a four-phased roadmap for centralizing data systems and transitioning to an electronic data capture system. These included: development of a data governance plan, transition to electronic data entry and centralized data storage, transition to a relational database, and cloud-based integration. The method and outcome of this assessment could be used by other neglected tropical disease programs looking to transition to modern electronic data capture systems.


2016 ◽  
Vol 13 (4) ◽  
pp. 401-407 ◽  
Author(s):  
Hubert Y. Pan ◽  
Simona F. Shaitelman ◽  
George H. Perkins ◽  
Pamela J. Schlembach ◽  
Wendy A. Woodward ◽  
...  

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