Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study (Preprint)

BACKGROUND People with recently acquired spinal cord injury (SCI) experience changes in physical, social and psychological aspects of their lives. In the last decades, attention has grown for aspects of self-management and self-efficacy in SCI research. However, we still do not know what the self-management and self-efficacy outcomes of first rehabilitation are and whether utilizing these skills may prevent secondary health conditions (SHCs) and increase participation and psychological adjustment early after SCI. OBJECTIVE To describe the course and determinants of self-management and self-efficacy during and after first SCI rehabilitation; and to determine theory-based associations between self-management and self-efficacy with SHCs, participation and psychological adjustment. METHODS Multicenter prospective longitudinal cohort study. All people with a newly acquired SCI admitted to one of the 8 specialized SCI rehabilitation centers in the Netherlands will be considered for inclusion in this study. Main assessments will take place during the first and last week of admission and 3, 6 and 12 months after discharge. The target sample is 250 participants. The primary outcomes are self-management (knowledge and execution of self-care) and self-efficacy (confidence in the ability to manage the consequences of SCI and of self-care). Secondary outcome measures are SHCs, participation and psychological adjustment to SCI. RESULTS The first results with the complete set of data are expected in June 2019. CONCLUSIONS This protocol describes the SELF-SCI cohort study investigating self-management and self-efficacy of initial inpatient SCI rehabilitation. Second, associations will be investigated with SHCs, participation and psychological adjustment early after onset of SCI, until 1 year after discharge. The results will be used to test theories about motivation to perform health-promoting behaviors and adjustment to SCI.

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Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study

JMIR Research Protocols ◽

10.2196/resprot.8054 ◽

2018 ◽

Vol 7 (2) ◽

pp. e68 ◽

Cited By ~ 3

Author(s):

Tijn van Diemen ◽

Eline WM Scholten ◽

Ilse JW van Nes ◽

Jan HB Geertzen ◽

Marcel WM Post ◽

...

Keyword(s):

Spinal Cord ◽

Cohort Study ◽

Self Efficacy ◽

Spinal Cord Injuries ◽

Longitudinal Cohort Study ◽

Self Management ◽

Longitudinal Cohort

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Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study

10.2196/jrp.v7i2.8054 ◽

2017 ◽

Author(s):

Tijn van Diemen ◽

Eline WM Scholten ◽

Ilse JW van Nes ◽

Jan HB Geertzen ◽

Marcel WM Post ◽

...

Keyword(s):

Spinal Cord ◽

Cohort Study ◽

Self Efficacy ◽

Spinal Cord Injuries ◽

Longitudinal Cohort Study ◽

Self Management ◽

Longitudinal Cohort

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Physical Activity and Sedentary Behavior From Discharge to 1 Year After Inpatient Rehabilitation in Ambulatory People With Spinal Cord Injury: A Longitudinal Cohort Study

Archives of Physical Medicine and Rehabilitation ◽

10.1016/j.apmr.2020.06.027 ◽

2020 ◽

Vol 101 (12) ◽

pp. 2061-2070

Author(s):

Karin Postma ◽

Johannes B.J. Bussmann ◽

Tijn van Diemen ◽

Marcel W.M. Post ◽

Jos Dekkers ◽

...

Keyword(s):

Physical Activity ◽

Spinal Cord ◽

Spinal Cord Injury ◽

Cohort Study ◽

Sedentary Behavior ◽

Inpatient Rehabilitation ◽

Longitudinal Cohort Study ◽

Longitudinal Cohort ◽

Cord Injury

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Self-Efficacy of Older People Using Technology to Self-Manage COPD, Hypertension, Heart Failure, or Dementia at Home: An Overview of Systematic Reviews

The Gerontologist ◽

10.1093/geront/gnaa045 ◽

2020 ◽

Author(s):

Garuth Chalfont ◽

Céu Mateus ◽

Sandra Varey ◽

Christine Milligan

Keyword(s):

Heart Failure ◽

Older People ◽

Systematic Reviews ◽

Self Efficacy ◽

Patient Activation ◽

Self Care ◽

The Self ◽

Self Management ◽

Overview Of Systematic Reviews ◽

At Home

Abstract Background and Objectives Although telehealth research among the general population is voluminous, the quality of studies is low and results are mixed. Little is known specifically concerning older people and their self-efficacy to engage with and benefit from such technologies. This article reviews the evidence for which self-care telehealth technology supports the self-efficacy of older people with long-term conditions (LTCs) living at home. Research Design and Methods Following Preferred Reporting Items for Systematic Reviews and Meta-Analyses Statement (PRISMA) guidelines, this overview of systematic reviews focused on four LTCs and the concept of “self-efficacy.” Quality was appraised using R-AMSTAR and study evaluation was guided by the PRISMS taxonomy for reporting of self-management support. Heterogeneous data evidencing technology-enhanced self-efficacy were narratively synthesized. Results Five included articles contained 74 primary studies involving 9,004 participants with chronic obstructive pulmonary disease, hypertension, heart failure, or dementia. Evidence for self-care telehealth technology supporting the self-efficacy of older people with LTCs living at home was limited. Self-efficacy was rarely an outcome, also attrition and dropout rates and mediators of support or education. The pathway from telehealth to self-efficacy depended on telehealth modes and techniques promoting healthy lifestyles. Increased self-care and self-monitoring empowered self-efficacy, patient activation, or mastery. Discussion and Implications Future research needs to focus on the process by which the intervention works and the effects of mediating variables and mechanisms through which self-management is achieved. Self-efficacy, patient activation, and motivation are critical components to telehealth’s adoption by the patient and hence to the success of self-care in self-management of LTCs. Their invisibility as outcomes is a limitation.

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