scholarly journals The Characteristics and Distribution of Congenital Heart Disease in Outpatient Clinic and Inpatient Ward of RSUD Dr. Soedono Madiun East Java in Year 2015

2018 ◽  
Vol 4 (1) ◽  
pp. 9
Author(s):  
Finariawan Finariawan ◽  
Syifa Mahmud S.A.
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Health Insurance ◽  
National Health Insurance ◽  
National Health ◽  
Congenital Heart ◽  
Treatment Plan ◽  
Medical Intervention ◽  
First Year ◽  
First Year Of Life

Background: Congenital heart disease is a heart abnormality that presents at birth and fatal in the majority of the case. Congenital heart disease affecting up to 8-10 in every 1,000 newborn. Methods: This study was a descriptive research about the characteristics and distribution of congenital heart disease at ward and clinic of a government hospital in East Java for a year, by investigating medical record from 1 January 2015 – 31 December 2015. We classified and analyzed the patients based on the different groups of age, gender, type of congenital heart disease, the age of first diagnosed, nutritional status, co-morbidities of the disease, medical intervention, and the funding. Result: Total sample from this research was 49 subjects, consist of 53% male and 46% female. CHD was mostly diagnosed in the first year of life (75%), with acyanotic CHD as the most common type. Malnutrition was found in 51% of the subjects. Nonsurgical medical intervention was the most common management performed to treat the condition (97%). The funding with National Health Insurance (PBI or non-PBI) was used in more than half of the subjects (51%). Conclusion: As the conclusion, CHD was commonly found in the first year of life with noncyanotic type dominated the CHD patients. As the highly cost of this disease, it was surprising that only half of the subjects were covered by National Health Insurance. A good funding resource was really needed to make sure the treatment plan of the diseases was well executed.

scholarly journals Parental experience of the neuromotor development of children with congenital heart disease: an exploratory qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Elena Mitteregger ◽  
Martina Wehrli ◽  
Manuela Theiler ◽  
Jana Logoteta ◽  
Irina Nast ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Qualitative Study ◽  
Motor Development ◽  
Congenital Heart ◽  
Healthcare Professionals ◽  
Qualitative Content Analysis ◽  
First Year ◽  
First Year Of Life ◽  
Neuromotor Development

Abstract Background Children with severe congenital heart disease (CHD) are a group of children at risk for neurodevelopmental impairments. Motor development is the first domain to show a delay during the first year of life and may significantly contribute to parental concerns, stress, and difficulties in early child-parent attachment. Thus, the aim of the study was to better understand the wishes and concerns of parents of children with CHD and explore their experience of their children’s neuromotor development in the first year of life. Methods In this qualitative study, fourteen families were recruited. Their children were aged 1–3 years and had undergone open heart surgery within the first 6 months of life. Semi-structured interviews were audio-recorded and transcribed. The data was explored within an expert group, and a qualitative content analysis was conducted using VERBI MAXQDA software 2020. The study was conducted in accordance with the COREQ checklist. Results Parents of children with CHD reported several burdens and needs. Parental burdens concerned the child’s motor development, their own physical and psychological strain, and difficulties in communication with healthcare professionals. The needs, parents reported included supporting their child’s motor development, a medical coordinator, and better communication between healthcare professionals and parents. During the first phase of their children’s illness, parents underwent a dynamic transitional phase and expressed the need to rely on themselves, to trust their children’s abilities, and to regain self-determination in order to strengthen their self-confidence. Conclusions It is essential to involve parents of children with CHD at an early stage of decision-making. Parents are experts in their children and appreciate medical information provided by healthcare professionals. Interprofessional teamwork, partnering with parents, and continuous support are crucial to providing the best possible care for children and their families. Family-centred early motor intervention for CHD children might counteract the effect of parental overprotection and improve children’s motor development and thus strengthen child-parent interaction. In future work, we aim to evaluate a family-centred early motor intervention for children with CHD developed on the basis of this qualitative study. Trial registration Not applicable.

scholarly journals Updates in Congenital Heart Disease: Can Outcomes Improve?

2019 ◽  
Vol 36 (S 02) ◽  
pp. S22-S28
Author(s):  
Gerard R. Martin ◽  
Russell R. Cross ◽  
Lisa A. Hom ◽  
Darren Klugman
Keyword(s):  
Intensive Care Unit ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Malformations ◽  
Congenital Heart ◽  
First Year ◽  
Cardiac Intensive Care Unit ◽  
Cardiac Intensive Care ◽  
First Year Of Life ◽  
Pulse Oximetry Screening

AbstractDespite numerous advances in medical and surgical management, congenital heart disease (CHD) remains the number one cause of death in the first year of life from congenital malformations. The current strategies used to approach improving outcomes in CHD are varied. This article will discuss the recent impact of pulse oximetry screening for critical CHD, describe the contributions of advanced cardiac imaging in the neonate with CHD, and highlight the growing importance of quality improvement and safety programs in the cardiac intensive care unit.

CONGENITAL HEART DISEASE: INCIDENCE IN THE FIRST YEAR OF LIFE

1988 ◽  
Vol 128 (2) ◽  
pp. 381-388 ◽  
Author(s):  
RALPH G. GRABITZ ◽  
MICHEL R. JOFFRES ◽  
RUTH L. COLLINS-NAKAI
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Disease Incidence ◽  
First Year ◽  
First Year Of Life

scholarly journals Congenital Heart Disease and Its Impact on the Development of Anastomotic Strictures after Reconstruction of Esophageal Atresia

2018 ◽  
Vol 2018 ◽  
pp. 1-5 ◽  
Author(s):  
Pernilla Stenström ◽  
Martin Salö ◽  
Magnus Anderberg ◽  
Einar Arnbjörnsson
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Esophageal Atresia ◽  
Congenital Heart ◽  
First Year ◽  
Retrospective Case ◽  
Anastomotic Strictures ◽  
First Year Of Life ◽  
Severe Congenital Heart Disease

Background. The aim was to explore if severe congenital heart disease (CHD) influenced the need for dilatation of anastomotic strictures (AS) after the repair of esophageal atresia (EA). Methods. A retrospective case-control study was conducted examining AS in children with EA and Gross type C. The spectra of CHD and cardiac interventions were reviewed. The frequency of dilatations of AS during the first year following EA reconstruction was compared between children with and without severe CHD requiring cardiac surgery during their first year of life. Endoscopic signs of stricture were an indication for dilatation. Results. Included in the follow-up for AS were 94 patients who had EA reconstructions, of whom 10 (11%) children had severe CHD requiring surgery during the first year including 19 different cardiac interventions. In total, 38 patients needed dilatation of esophageal AS, distributed as six (60%) with severe CHD and 32 (38%) without severe CHD (p=0.31). Conclusion. Severe CHD was present in 11% of children with EA. Esophageal AS developed in 60% children with concomitant CHD, but although high, it did not reach statistical difference from children without CHD (38%).

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