scholarly journals Pediatric cancer survivorship: is our work nearly done or just beginning?

2010 ◽  
Vol 4 (1) ◽  
pp. 5-7
Author(s):  
Melissa M Hudson
Keyword(s):  
Cancer Survivorship ◽  
Pediatric Cancer

scholarly journals Healthcare provider perspectives on pediatric cancer survivorship care plans: a single institution pilot study

2020 ◽  
Vol 29 (2) ◽  
pp. 697-706
Author(s):  
Karely Mann ◽  
Yelena P. Wu ◽  
Samantha T. Pannier ◽  
Claire Hacking ◽  
Echo L. Warner ◽  
...  
Keyword(s):  
Pilot Study ◽  
Healthcare Provider ◽  
Cancer Survivorship ◽  
Pediatric Cancer ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Single Institution ◽  
Care Plans ◽  
Provider Perspectives ◽  
Healthcare Provider Perspectives

scholarly journals Disparities and Barriers to Pediatric Cancer Survivorship Care

2021 ◽  
Author(s):  
Erin M. Mobley ◽  
Diana J. Moke ◽  
Joel Milam ◽  
Carol Y. Ochoa ◽  
Julia Stal ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Cancer Survivorship ◽  
Pediatric Cancer ◽  
Barriers To Care ◽  
Grey Literature ◽  
Childhood Cancer Survivors ◽  
The United States ◽  
Survivorship Care ◽  
Key Informants

Objectives. Survival rates for pediatric cancer have dramatically increased since the 1970s, and the population of childhood cancer survivors (CCS) exceeds 500,000 in the United States. Cancer during childhood and related treatments lead to long-term health problems, many of which are poorly understood. These problems can be amplified by suboptimal survivorship care. This report provides an overview of the existing evidence and forthcoming research relevant to disparities and barriers for pediatric cancer survivorship care, outlines pending questions, and offers guidance for future research. Data sources. This Technical Brief reviews published peer-reviewed literature, grey literature, and Key Informant interviews to answer five Guiding Questions regarding disparities in the care of pediatric survivors, barriers to cancer survivorship care, proposed strategies, evaluated interventions, and future directions. Review methods. We searched research databases, research registries, and published reviews for ongoing and published studies in CCS to October 2020. We used the authors’ definition of CCS; where not specified, CCS included those diagnosed with any cancer prior to age 21. The grey literature search included relevant professional and nonprofit organizational websites and guideline clearinghouses. Key Informants provided content expertise regarding published and ongoing research, and recommended approaches to fill identified gaps. Results. In total, 110 studies met inclusion criteria. We identified 26 studies that assessed disparities in survivorship care for CCS. Key Informants discussed subgroups of CCS by race or ethnicity, sex, socioeconomic status, and insurance coverage that may experience disparities in survivorship care, and these were supported in the published literature. Key Informants indicated that major barriers to care are providers (e.g., insufficient knowledge), the health system (e.g., availability of services), and payers (e.g., network adequacy); we identified 47 studies that assessed a large range of barriers to survivorship care. Sixteen organizations have outlined strategies to address pediatric survivorship care. Our searches identified only 27 published studies that evaluated interventions to alleviate disparities and reduce barriers to care. These predominantly assessed approaches that targeted patients. We found only eight ongoing studies that evaluated strategies to address disparities and barriers. Conclusions. While research has addressed disparities and barriers to survivorship care for childhood cancer survivors, evidence-based interventions to address these disparities and barriers to care are sparse. Additional research is also needed to examine less frequently studied disparities and barriers and to evaluate ameliorative strategies in order to improve the survivorship care for CCS.

Physical Activity and Pediatric Cancer Survivorship

2010 ◽  
pp. 319-347 ◽  
Author(s):  
Alejandro F. San Juan ◽  
Kathleen Wolin ◽  
Alejandro Lucía
Keyword(s):  
Physical Activity ◽  
Cancer Survivorship ◽  
Pediatric Cancer

Interventions to address disparities and barriers to pediatric cancer survivorship care: a scoping review

2021 ◽  
Author(s):  
Erin M. Mobley ◽  
Diana J. Moke ◽  
Joel Milam ◽  
Carol Y. Ochoa ◽  
Julia Stal ◽  
...  
Keyword(s):  
Cancer Survivorship ◽  
Scoping Review ◽  
Pediatric Cancer ◽  
Survivorship Care

scholarly journals Pediatric Cancer Survivorship Research: Experience of the Childhood Cancer Survivor Study

2009 ◽  
Vol 27 (14) ◽  
pp. 2319-2327 ◽  
Author(s):  
Wendy M. Leisenring ◽  
Ann C. Mertens ◽  
Gregory T. Armstrong ◽  
Marilyn A. Stovall ◽  
Joseph P. Neglia ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Cancer Survivorship ◽  
Cancer Survivor ◽  
Pediatric Cancer ◽  
Childhood Cancer Survivor ◽  
Research Experience ◽  
Competing Risks Analysis ◽  
Large Cohort Study ◽  
Childhood Cancer Survivor Study ◽  
High Standards

The Childhood Cancer Survivor Study (CCSS) is a comprehensive multicenter study designed to quantify and better understand the effects of pediatric cancer and its treatment on later health, including behavioral and sociodemographic outcomes. The CCSS investigators have published more than 100 articles in the scientific literature related to the study. As with any large cohort study, high standards for methodologic approaches are imperative for valid and generalizable results. In this article we describe methodological issues of study design, exposure assessment, outcome validation, and statistical analysis. Methods for handling missing data, intrafamily correlation, and competing risks analysis are addressed; each with particular relevance to pediatric cancer survivorship research. Our goal in this article is to provide a resource and reference for other researchers working in the area of long-term cancer survivorship.

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