scholarly journals A Longitudinal Case Study of the Quality of Life Trajectory: A Mother of Multiple Children with Pervasive Developmental Disorders

2015 ◽  
Author(s):  
Miyako Kimura
Keyword(s):  
Quality Of Life ◽  
Pervasive Developmental Disorders ◽  
Developmental Disorders ◽  
Longitudinal Case Study ◽  
Life Trajectory

scholarly journals Predictors of Quality of Life Among an International Sample of Mothers of Children 12 and Under With Corpus Callosum Disorders

2020 ◽  
Vol 14 (1) ◽  
Author(s):  
Peggy Henninger ◽  
Donna M. L. Heretick
Keyword(s):  
Quality Of Life ◽  
Corpus Callosum ◽  
Pervasive Developmental Disorders ◽  
Developmental Disorders ◽  
Online Survey ◽  
Autism Spectrum ◽  
Double Abcx Model ◽  
Double Abcx ◽  
Abcx Model

Previous research supports application of the Double ABCX model of family adaptation of parents of children with autism spectrum disorder and other pervasive developmental disorders. This is the first study to consider processes of adaptation among parents of children with agenesis of the corpus callosum (ACC). Using a quantitative cross-sectional design, an international sample of 266 mothers of children, aged 12 or under, with ACC completed an online survey. Parental reports of stress, resources, coping, and sense of coherence were evaluated as predictors of four subdimensions of parental quality of life for 178 mothers. In general, findings support the Double ABCX model as a viable approach to understanding processes that are related to quality of life among this group of mothers.

Developing dementia: The existential experience of the quality of life with young-onset dementia – A longitudinal case study

Dementia ◽  
2018 ◽  
Vol 19 (3) ◽  
pp. 878-893 ◽  
Author(s):  
Kirsten Thorsen ◽  
Marcia Cristina Nascimento Dourado ◽  
Aud Johannessen
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Single Individual ◽  
Longitudinal Case Study ◽  
Young Onset ◽  
People With Dementia ◽  
Treatment Support ◽  
Young Onset Dementia

BackgroundCognition and the ability to take care of daily activities and oneself gradually declines among people with dementia. Studies are scarce, especially regarding how people with young-onset dementia (YOD) (<65 years) experience the quality of their lives with the progression of dementia. People with dementia living alone face special challenges.AimTo examine the experience of the quality of life with YOD as a single person.MethodThe study presents a longitudinal case study with in-depth interviews exploring the experiences of a person with YOD. Individual interviews were conducted seven times over a period of three years from 2014 to 2017.FindingsWe examined if and how seven themes concerning the quality of life and well-being were fruitful for understanding the experiences of dementia in the everyday life of a single individual. The study explored needs and challenges during the development of dementia, and how the person reacted over time, set in context. The themes significant for well-being are: identity, connectedness, security, autonomy, meaning, growth and joy.ConclusionThe study shows how treatment, support, and services must be individualized when dementia develops in order to support identity, resources and mastering capacity, and promote well-being.

scholarly journals Depression and quality of life in mothers of children with pervasive developmental disorders

2010 ◽  
Vol 18 (1) ◽  
pp. 33-40 ◽  
Author(s):  
Maria Ângela Fávero-Nunes ◽  
Manoel Antônio dos Santos
Keyword(s):  
Quality Of Life ◽  
Pervasive Developmental Disorders ◽  
Developmental Disorders ◽  
Family Income ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Demographic Profile ◽  
Quality Of Life Scale

The aim of this study was to evaluate the prevalence of dysphoria/depressive symptoms in mothers of autistic children and to identify correlations between quality of life and socio-demographic profile. An exploratory, descriptive and cross-sectional study was carried out, involving 20 mothers, by applying a socio-demographic profile questionnaire, the Brazilian version of the Beck Depression Inventory (BDI) and the WHOQOL-Bref quality of life scale. Dysphoria/depression criteria were found in 15% of the mothers. Overall quality of life was evaluated as positive in 70%, however only 40% were satisfied with their health. The Physical domain (mean=69.4) was perceived as the best, and environment domain as the worst (mean=60.8). Quality of life had a positive association with family income and level of education, and a negative association with depression. Considering the results, further research, especially on those variables that were not statistically relevant, is suggested.

scholarly journals Quality of life of parents raising children with pervasive developmental disorders

2012 ◽  
Vol 12 (1) ◽  
Author(s):  
Atsurou Yamada ◽  
Misuzu Kato ◽  
Miyoshi Suzuki ◽  
Masako Suzuki ◽  
Norio Watanabe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pervasive Developmental Disorders ◽  
Developmental Disorders ◽  
Raising Children

Nursing-Home Resident Quality of Life: A Longitudinal Case Study Approach

2017 ◽  
Vol 31 (3) ◽  
pp. 243-258 ◽  
Author(s):  
Robin L. Stadnyk ◽  
Stephanie A. Chamberlain ◽  
Grace Warner ◽  
E. Marie Earl ◽  
Christy Nickerson Rak
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Nursing Home Resident ◽  
Longitudinal Case Study ◽  
Case Study Approach ◽  
Study Approach

Misophonia: An Evidence-Based Case Report

2020 ◽  
Vol 29 (4) ◽  
pp. 685-690
Author(s):  
C. S. Vanaja ◽  
Miriam Soni Abigail
Keyword(s):  
Quality Of Life ◽  
Case Report ◽  
Case History ◽  
Pure Tone ◽  
Physiological Responses ◽  
Evidence Based ◽  
Management Option ◽  
Pure Tone Audiogram

Purpose Misophonia is a sound tolerance disorder condition in certain sounds that trigger intense emotional or physiological responses. While some persons may experience misophonia, a few patients suffer from misophonia. However, there is a dearth of literature on audiological assessment and management of persons with misophonia. The purpose of this report is to discuss the assessment of misophonia and highlight the management option that helped a patient with misophonia. Method A case study of a 26-year-old woman with the complaint of decreased tolerance to specific sounds affecting quality of life is reported. Audiological assessment differentiated misophonia from hyperacusis. Management included retraining counseling as well as desensitization and habituation therapy based on the principles described by P. J. Jastreboff and Jastreboff (2014). A misophonia questionnaire was administered at regular intervals to monitor the effectiveness of therapy. Results A detailed case history and audiological evaluations including pure-tone audiogram and Johnson Hyperacusis Index revealed the presence of misophonia. The patient benefitted from intervention, and the scores of the misophonia questionnaire indicated a decrease in the severity of the problem. Conclusions It is important to differentially diagnose misophonia and hyperacusis in persons with sound tolerance disorders. Retraining counseling as well as desensitization and habituation therapy can help patients who suffer from misophonia.

Chronic Refractory Cough: A Case Study

2017 ◽  
Vol 2 (3) ◽  
pp. 57-62
Author(s):  
Anna Maria Siciliano
Keyword(s):  
Quality Of Life ◽  
Adult Female ◽  
Chronic Cough ◽  
Treatment Regime ◽  
Speech Language Pathology ◽  
Old Adult ◽  
Language Pathology

This paper presents a successful behavioral case study in treatment of chronic refractory cough in a 60-year-old adult female. The efficacy for speech-language pathology treating chronic cough is discussed along with description of treatment regime. Discussion focuses on therapy approaches used and the patient's report of changes in quality of life and frequency, duration, and severity reduction of her cough after treatment.

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