Baseline Quality of Life among Patients with End Stage Kidney Disease in a Resource Limited Setting

End-Stage Kidney Disease (ESKD) is a serious and irreversible condition. Understanding the impact of ESKD and its treatment on an individual's Quality of Life (QoL) is important.

Download Full-text

Patient-Reported Quality of Life after Major Abdominal Operation in a Resource-Limited Setting

Journal of the American College of Surgeons ◽

10.1016/j.jamcollsurg.2020.07.245 ◽

2020 ◽

Vol 231 (4) ◽

pp. S127-S128

Author(s):

Laura N. Purcell ◽

Rachel Reiss ◽

Vanessa J. Msosa ◽

Kate D. Westmoreland ◽

Anthony G. Charles

Keyword(s):

Quality Of Life ◽

Resource Limited Setting ◽

Abdominal Operation ◽

Resource Limited ◽

Patient Reported ◽

Major Abdominal Operation ◽

Limited Setting

Download Full-text

Health-related quality of life in end-stage kidney disease

OSH Kidney Disease ◽

10.1093/med/9780199695690.003.0005 ◽

2012 ◽

pp. 77-90

Author(s):

Edwina A. Brown ◽

Fliss E. M. Murtagh ◽

Emma Murphy

Keyword(s):

Quality Of Life ◽

Kidney Disease ◽

Health Related Quality ◽

End Stage Kidney Disease ◽

Related Quality ◽

Health Related ◽

End Stage

Download Full-text

Thyroid Surgery in a Resource-Limited Setting: Feasibility and Analysis of Short- and Long-term Outcomes

Otolaryngology ◽

10.1177/0194599816684097 ◽

2016 ◽

Vol 156 (3) ◽

pp. 464-471 ◽

Cited By ~ 9

Author(s):

Aria Jafari ◽

David Campbell ◽

Bruce H. Campbell ◽

Henry Nono Ngoitsi ◽

Titus M. Sisenda ◽

...

Keyword(s):

Quality Of Life ◽

Thyroid Surgery ◽

Outcomes Research ◽

Chart Review ◽

Resource Limited Setting ◽

Resource Limited ◽

Sf 36 ◽

Limited Setting

Objective The present study reviews a series of patients who underwent thyroid surgery in Eldoret, Kenya, to demonstrate the feasibility of conducting long-term (>1 year) outcomes research in a resource-limited setting, impact on the quality of life of the recipient population, and inform future humanitarian collaborations. Study Design Case series with chart review. Setting Tertiary public referral hospital in Eldoret, Kenya. Subjects and Methods Twenty-one patients were enrolled during the study period. A retrospective chart review was performed for all adult patients who underwent thyroid surgery during humanitarian trips (2010-2015). Patients were contacted by mobile telephone. Medical history and physical examination, including laryngoscopy, were performed, and the SF-36 was administered (a quality-of-life questionnaire). Laboratory measurements of thyroid function and neck ultrasound were obtained. Results The mean follow-up was 33.6 ± 20.2 months after surgery: 37.5% of subtotal thyroidectomy patients and 15.4% of lobectomy patients were hypothyroid postoperatively according to serologic studies. There were no cases of goiter recurrence or malignancy. All patients reported postoperative symptomatic improvement and collectively showed positive pre- and postoperative score differences on the SF-36. Conclusion Although limited by a small sample size and the retrospective nature, our study demonstrates the feasibility of long-term surgical and quality-of-life outcomes research in a resource-limited setting. The low complication rates suggest minimal adverse effects of performing surgery in this context. Despite a considerable rate of postoperative hypothyroidism, it is in accordance with prior studies and emphasizes the need for individualized, longitudinal, and multidisciplinary care. Quality-of-life score improvements suggest benefit to the recipient population.

Download Full-text

Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study

BMC Nephrology ◽

10.1186/s12882-021-02584-8 ◽

2021 ◽

Vol 22 (1) ◽

Author(s):

Sima Sadat Hejazi ◽

Meimanat Hosseini ◽

Abbas Ebadi ◽

Hamid Alavi Majd

Keyword(s):

Quality Of Life ◽

Content Analysis ◽

Kidney Disease ◽

Family Caregivers ◽

Hemodialysis Patients ◽

End Stage Kidney Disease ◽

The Family ◽

End Stage ◽

The Impact

Abstract Background Patients with end-stage kidney disease experience serious complications which affect their lives. Few studies have investigated the patients’ quality of life qualitatively from the perspective of family caregivers as the closest individuals to the patients. The family caregivers are directly involved in the patients’ disease progression and observe the changes, problems, and complications of disease and hemodialysis. This study aimed to explain the components of quality of life in hemodialysis patients from the family caregivers’ perspective. Methods In this qualitative inductive content analysis, 16 family caregivers of hemodialysis patients, presenting to the teaching hospitals of Tehran, Iran, were enrolled via maximum-variation purposive sampling; sampling continued until reaching data saturation. The data collection method included in-depth semi-structured interviews. Also, an inductive content analysis was carried out based on Elo and Kyngas’ method. Results A total of 311 codes, 19 subcategories, eight generic categories, and three main categories were extracted in this study. The main (and the generic categories) included mental and psychological problems (depressive mood, incompatibility and reduced tolerance, mental exhaustion, and deprivation of basic needs), social disruption (social isolation and social threats), and physical problems (general complications and disabilities and defects in the normal functioning of organs). Conclusion Family caregivers can be valuable information sources for formal caregivers to plan treatment for chronically ill patients who are mainly cared for at home. The present results can help us increase the existing knowledge on the impact of end-stage kidney disease and hemodialysis on the patients’ quality of life. It seems that addressing the issues related to quality of life, mentioned by the caregivers, can positively affect the patients’ quality of life and even reduce the caregivers’ burden.

Download Full-text