Oral histories of HIV/AIDS support group members, NGO workers and home-based carers in KwaZulu-Natal

2016 ◽  
Vol 15 (1) ◽  
pp. 27-34
Author(s):  
Philippe Denis
Keyword(s):  
Support Group ◽  
Oral Histories ◽  
Home Based ◽  
Kwazulu Natal ◽  
Group Members ◽  
Hiv Aids

scholarly journals New Patterns of Disclosure: How HIV-Positive Support Group Members from KwaZulu-Natal Speak of their Status in Oral Narratives

2014 ◽  
Vol 58 (2) ◽  
pp. 278-297 ◽  
Author(s):  
Philippe Denis
Keyword(s):  
Support Group ◽  
Belief Systems ◽  
Hiv Positive ◽  
People Living With Hiv ◽  
Mpumalanga Province ◽  
Kwazulu Natal ◽  
Group Members ◽  
Oral History Interviews ◽  
Positive Support ◽  
Hiv Aids

AbstractThis paper examines the representations and emotions associated with disclosure and stigma in Pietermaritzburg, KwaZulu-Natal, seven years after the start of the South African government’s ARV roll-out programme on the basis of in-depth oral history interviews of HIV-positive support group members. It argues that the wider availability of ARV treatment, the ensuing reduced fatality rate and the increased number of people, including men, who receive counselling and testing, may mean that HIV/AIDS is less stigmatised and that disclosure has become easier. This does not mean that stigma has disappeared and that the confusion created by competing world-views and belief systems has dissipated. Yet the situation of extreme denial and ideological confusion observed, for example, by Deborah Posel and her colleagues in 2003 and 2004 in the Mpumalanga province seems to have lessened. The interviews hint at the possibility that people living with HIV may have, more than a decade before, a language to express the emotions and feelings associated with HIV/AIDS. They were also found to be more assertive in matters of gender relations. These new attitudes would make disclosure easier and stigma more likely to recede.

IS STIGMA RECEDING? STORIES OF AIDS SUPPORT GROUP MEMBERS IN PIETERMARITZBURG, SOUTH AFRICA

2016 ◽  
Vol 1 (1) ◽  
pp. 3-16 ◽  
Author(s):  
Philippe Denis ◽  
Molly Longwe ◽  
Ntokozo Zitha
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Gender Stereotypes ◽  
Antiretroviral Treatment ◽  
Health Conditions ◽  
People Living With Hiv ◽  
Kwazulu Natal ◽  
Group Members ◽  
Oral History Interviews ◽  
Living With Hiv

The paper describes the experience of people living with HIV in KwaZulu-Natal. It is based on oral history interviews with members of two support groups in the Pietermaritzburg area that were conducted in 2009 and 2011, respectively. The interviews show that, if stigma and discrimination remain a key component of the experience of people living with HIV in KwaZulu-Natal, certain evolutions are taking place. Nearly all the  nterviewees were on antiretroviral treatment and their health conditions had improved. They deeply appreciated the solidarity they found in their support groups. In most cases their families, friends and neighbours responded positively when they disclosed their status. Yes, obstacles remained. The interviewees, most of whom were women, saw gender stereotypes and men’s resistance to testing, treatment and care as one of their biggest challenges.

Stuttering-Related Podcasts: Audio-Based Self-Help for People Who Stutter

2020 ◽  
Vol 5 (5) ◽  
pp. 1131-1138
Author(s):  
Lauren E. Dignazio ◽  
Megan M. Kenny ◽  
Erik X. Raj ◽  
Kyle D. Pelkey
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Online Survey ◽  
Multiple Choice ◽  
Speech Language Pathologists ◽  
Group Leaders ◽  
Self Help ◽  
Group Members

Purpose It is known that people who stutter (PWS) benefit from self-help experiences, such as attending support groups or conferences. However, limited research has been done to explore the listening of stuttering-related podcasts as a form of self-help for PWS. This study seeks to understand the reasons why PWS listen to stuttering-related podcasts and provide descriptions of their listening experiences. Method Thirty-three PWS who have listened to stuttering-related podcasts were recruited to participate in an online survey that included multiple-choice and open-ended questions. Responses were analyzed and grouped into descriptive themes. Results Participants reported listening to stuttering-related podcasts as a way to gain information and perspective. They also reported experiences that fit themes of empowerment and camaraderie, as a result of listening. Conclusions Stuttering-related podcasts seem to be a positive self-help tool for PWS. Stuttering support group leaders and/or speech-language pathologists may consider introducing their group members or clients who stutter to this type of audio-based self-help experience.

"Break the Silence": Art and HIV/AIDS in KwaZulu-Natal

African Arts ◽  
2001 ◽  
Vol 34 (1) ◽  
pp. 36 ◽  
Author(s):  
Allen F. Roberts
Keyword(s):  
Kwazulu Natal ◽  
Hiv Aids

scholarly journals People living with HIV/AIDS and the utilization of home-based care services

2011 ◽  
Vol 5 (20) ◽  
pp. 3166-3174 ◽  
Author(s):  
O Oguntibeju O ◽  
T Ndalambo K ◽  
Mokgatle Nthabu M
Keyword(s):  
People Living With Hiv ◽  
Care Services ◽  
Home Based ◽  
Living With Hiv ◽  
Home Based Care ◽  
Hiv Aids

scholarly journals Linkage to primary care after home-based blood pressure screening in rural KwaZulu-Natal, South Africa: a population-based cohort study

BMJ Open ◽  
2018 ◽  
Vol 8 (12) ◽  
pp. e023369 ◽  
Author(s):  
Mark J Siedner ◽  
Kathy Baisley ◽  
Joanna Orne-Gliemann ◽  
Deenan Pillay ◽  
Olivier Koole ◽  
...  
Keyword(s):  
South Africa ◽  
Blood Pressure ◽  
Linkage To Care ◽  
Sampling Weights ◽  
Rural South ◽  
Home Based ◽  
Kwazulu Natal ◽  
Blood Pressure Screening ◽  
The Impact ◽  
Rural South Africa

ObjectivesThe expanding burden of non-communicable diseases (NCDs) globally will require novel public health strategies. Community-based screening has been promoted to augment efficiency of diagnostic services, but few data are available on the downstream impact of such programmes. We sought to assess the impact of a home-based blood pressure screening programme on linkage to hypertension care in rural South Africa.SettingWe conducted home-based blood pressure screening withinin a population cohort in rural KwaZulu-Natal, using the WHO Stepwise Approach to Surveillance (STEPS) protocol.ParticipantsIndividuals meeting criteria for raised blood pressure (≥140 systolic or ≥90 diastolic averaged over two readings) were referred to local health clinics and included in this analysis. We defined linkage to care based on self-report of presentation to clinic for hypertension during the next 2 years of cohort observation. We estimated the population proportion of successful linkage to care with inverse probability sampling weights, and fit multivariable logistic regression models to identify predictors of linkage following a positive hypertension screen.ResultsOf 11 694 individuals screened, 14.6% (n=1706) were newly diagnosed with elevated pressure. 26.9% (95% CI 24.5% to 29.4%) of those sought hypertension care in the following 2 years, and 38.1% (95% CI 35.6% to 40.7%) did so within 5 years. Women (adjusted OR (aOR) 2.41, 95% CI 1.68 to 3.45), those of older age (aOR 11.49, 95% CI 5.87 to 22.46, for 45–59 years vs <30) and those unemployed (aOR 1.71, 95% CI 1.10 to 2.65) were more likely to have linked to care.ConclusionsLinkage to care after home-based identification of elevated blood pressure was rare in rural South Africa, particularly among younger individuals, men and the employed. Improved understanding of barriers and facilitators to NCD care is needed to enhance the effectiveness of blood pressure screening in the region.

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