A “Child’s Rights Perspective”: The “Right” of Children and Young People to Participate in Health Care Research

Research in paediatric nursing, paediatric psychology, health care management and environment-behaviour studies suggest that there are many obstacles in completing qualitative research in health care settings with children and young people. As a result, the evidence from this kind of research is limited. Both authors have recently completed participatory qualitative studies with children and young people in paediatric environments, both in Malaysia and Australia. These will be briefly described and some of the practical and methodological challenges that each researcher experienced will be discussed. Each challenge has strong implications and potential impact on the research quality; and also on the children and young people’s experience of research. Keywords: qualitative, children, health care, research eISSN 2514-751X © 2017 The Authors. Published for AMER ABRA by e-International Publishing House, Ltd., UK. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.

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Searching for the Payoff In Health Care, Research

Clinical Neurology News ◽

10.1016/s1553-3212(10)70023-6 ◽

2010 ◽

Vol 6 (2) ◽

pp. 2

Author(s):

RICHARD J. CASELLI

Keyword(s):

Health Care ◽

Health Care Research ◽

Care Research

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Quality control and assessment of qualitative interview in health care research

Journal of Chinese Integrative Medicine ◽

10.3736/jcim20080702 ◽

2008 ◽

Vol 6 (7) ◽

pp. 668-673 ◽

Cited By ~ 1

Author(s):

YM Xie

Keyword(s):

Health Care ◽

Quality Control ◽

Health Care Research ◽

Qualitative Interview ◽

Care Research

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Reflective insights from developing a palliative care children and young people’s advisory group

Palliative Medicine ◽

10.1177/0269216320976035 ◽

2021 ◽

pp. 026921632097603

Author(s):

Anna Roach ◽

Debbie Braybrook ◽

Steve Marshall

Keyword(s):

Palliative Care ◽

Young People ◽

Health Research ◽

School Health ◽

Public Involvement ◽

After School ◽

Advisory Group ◽

Research Projects ◽

Children And Young People ◽

Care Research

Background: The importance of actively involving patient and public members throughout the different stages of palliative care and health research projects is widely acknowledged, however patient and public involvement work rarely considers insight from children and young people. Although this is becoming increasingly recognised in other areas of research, there is currently no structured guidance on how to best involve children and young people in palliative care research. Aim: To plan and deliver a Young People’s Advisory Group in palliative care and health research at a secondary school. Findings: Attending an after-school ‘Health and Social Research Methods Club’ for 11 weeks benefitted children and researchers. Children were taught about data collection methods, data analysis and ethics in health research and used these skills to provide valuable feedback which has been implemented in current palliative care research projects. Children took part in considered discussions around palliative care topics and enjoyed attending the group. Conclusion: This project has equipped researchers with skills and provided a structured template for future Young People’s Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research.

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Risk Factors for Childhood Obesity among Asian Americans: A Systematic Review of Literature and Recommendations for Health Care Research

Journal of Health Care for the Poor and Underserved ◽

10.1353/hpu.2015.0056 ◽

2015 ◽

Vol 26 (2A) ◽

pp. 171-190 ◽

Cited By ~ 8

Author(s):

Wenhua Lu ◽

Cassandra S. Diep ◽

E. Lisako J. McKyer

Keyword(s):

Risk Factors ◽

Systematic Review ◽

Health Care ◽

Childhood Obesity ◽

Asian Americans ◽

Health Care Research ◽

Review Of Literature ◽

Care Research

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Access and participation: What factors influence the provision and utilisation of health care services by children with learning disabilities?

European Psychiatry ◽

10.1016/j.eurpsy.2017.01.481 ◽

2017 ◽

Vol 41 (S1) ◽

pp. S452-S452

Author(s):

A. Rebowska

Keyword(s):

Health Care ◽

Learning Disabilities ◽

Young People ◽

Intellectual Disabilities ◽

Health Care Services ◽

Healthcare Services ◽

Children And Young People ◽

Care Services ◽

Healthcare Needs ◽

Wide Range

AimsThe aim of this literature review is to explore the range of factors that influence the degree of access to health care services by children and young people with learning disabilities.BackgroundChildren with learning disabilities are at increased risk of a wide range of health conditions comparing with their peers. However, recent reports by UK government as well as independent charities working with children and young people with learning disabilities demonstrated that they are at risk of poor health outcomes as a result of barriers preventing them from accessing most appropriate services.MethodsComprehensive searches were conducted in six databases. Articles were also obtained through review of references, a search of the grey literature, and contacting experts in the field. The inclusion criteria were for studies evaluating access to healthcare services, identification and communication of health needs, organisational aspects impacting on access and utilisation, staff attitudes where they impacted on access, barriers, discrimination in patients with intellectual disabilities age 0–18. The literature search identified a sample of 36 papers. The marked heterogeneity of studies excluded conducting a meta-analysis.ResultsBarriers to access included problems with identification of healthcare needs by carers and healthcare professionals, communication difficulties, the inadequacy of facilities, geographical and physical barriers, organisational factors such as inflexible appointment times, attitudes and poor knowledge base of healthcare staff.ConclusionThe factors identified can serve as a guide for managers and clinicians aiming to improve access to their healthcare services for children and young people with intellectual disabilities.Disclosure of interestThe authors have not supplied their declaration of competing interest.

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