scholarly journals Reflections on running online expert advisory groups with young people with lived experience of depression

2021 ◽  
Author(s):  
Juliette Westbrook ◽  
Sophie M. Allan ◽  
Brioney Gee ◽  
Faith Orchard

Service user involvement is fundamental to healthcare research, including knowledge transfer, advising on study protocols and the development of interventions. However, to date, service user involvement within child and adolescent mental health research is still uncommon and there is limited focus on best practice within the literature. Furthermore, consultations and advisory groups have traditionally been held face-to-face; however, the COVID-19 pandemic has accelerated a shift towards online research involvement as an alternative. This paper will examine our experience of conducting online expert advisory groups with young people (aged 14-24) with lived experience of depression and describe challenges and adaptations that need to be considered in order to make the events safe and accessible. Based on our own reflections of the process and feedback from young people taking part, we highlight the grouping of young people, facilitating pre-session nerves, intergroup communication and accessibility of online engagement. Young peoples’ reflections on the value of the advisory groups are also discussed. We conclude by offering suggestions, based on our reflections, for future online research consultations.

2011 ◽  
Author(s):  
Elizabeth Morrow ◽  
Annette Boaz ◽  
Sally Brearley ◽  
Fiona Ross

2014 ◽  
Vol 31 (4) ◽  
pp. 233-243
Author(s):  
L. Montgomery ◽  
M. Donnelly

BackgroundService user involvement is receiving increasing support from mental health policy makers, service planners and research commissioners. However, we lack a good understanding of the nature and extent to which service users are involved in personality disorder (PD) services and the effects of involvement in these services.ObjectivesTo review and appraise published sources; increase understanding about service user involvement in PD services; and highlight knowledge gaps and related issues.MethodsA scoping review methodology was adopted. Data were ‘charted’ to illustrate the landscape of writings and views and a qualitative analysis synthesized the results in terms of key emergent themes.ResultsOnly a small amount of published work was identified with significant gaps in the literature. Effects were reported mostly in terms processes and emotional and practical benefits for service users. Emergent themes were wellness and health, recruitment and support for service users.ConclusionsThis scoping review uncovered a lack of published work despite service user involvement being a key strand of health policy. There is a need for outcomes-focused research regarding service user involvement. Successful user involvement in PD services requires attention to be focused on the context, recruitment, support and ‘wellness’ of service users.


2014 ◽  
Vol 28 (22) ◽  
pp. 37-41 ◽  
Author(s):  
Penny Tremayne ◽  
Pip Russell ◽  
Helen Allman

2011 ◽  
Vol 35 (6) ◽  
pp. 609-615 ◽  
Author(s):  
Rosemary Barber ◽  
Peter Beresford ◽  
Jonathan Boote ◽  
Cindy Cooper ◽  
Alison Faulkner

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